It is great to read your story as it shows progress on the other side. I am a 52 yr old swimmer with mitral regurgitation. The mitral valve leak caused atrial swelling which brought on AFIB. Now I am headed in for both a valve repair and a MAZE. Did you at any time visit MA General? I have both a cardiologist and surgeon there at the moment, but was curious what precipitated the choice of Adams over anyone here in Boston.
Thanks
Tim
Jim Jones Hey Tim:
Good afternoon to you. I did consider MGH 6 years ago after a bout of endocarditis and communicated with a MGH cardiologist and surgeon. I also talked ... Read more
Jim Jones Hey Tim:
Good afternoon to you. I did consider MGH 6 years ago after a bout of endocarditis and communicated with a MGH cardiologist and surgeon. I also talked to other cardiologists and surgeons at that time and ended up at the Brigham with Dr. O'Gara, a cardiologist. We followed the mitral valve for 5 years and in 2013 I elected surgery. I wanted a repair and the valve disease (Barlow's) presented a very complex repair scenario. I wanted a repair v. replacement if possible. I was referred to Dr. Adams at Mt. Sinai. He is one of the very top MV repair surgeons in the country and does the most MV repair volume east of the Mississippi. He also was at the Brigham for about 20 years. The complexity of repair led me to NYC because in 2013 Boston did not have a comparable MV repair option for me. Mt. Sinai is a valve reference center. For me, that mattered as their expertise aligned with my valve disease complexity. I hope this helps. My best to you Tim as you head towards surgery.
On December 29, 2014...
Sharon Shultz posted a note for Jim that says:
Hi Jim, it's great to hear you are doing so well! I am scheduled for mitral valve and tricuspid valve repair with dr. Adams in March. Am so very nervous. Do you have any words of wisdom to share? Thanks.
Jim Hernandez posted a note for Jim that says:
Ty Jim for extending yourself and experience to me...I hope to tap your wealth of knowledge among others to find out what I am in for
Lise Boutiette posted a note for Jim that says:
Jim---Wow -- an entire year---what amazing progress for such an old guy as yourself!! I could NOT be happier to see that you have continued to exhibit a truly "text book case" post surgery recovery!!! However, you deserve all the credit for following the advice of the remarkable doctors and focusing on such a dedicated exercise regimen ---who else would go for a 45 min. run after walking 6-8 miles on a typical vacation day???
You have been an inspiration to many on the Heart Journal, but we were very lucky to have the support of the many family, friends, and Heart Journal cohorts throughout this journey.
To continued great health, to many more memory building experiences ...together ...and, of course, to countless 5k trophies and medals! Cheers! Much love, moi xo
Jim Jones Why, thank you and much love right back at you! It sure has been an eventful year. It shows you old guys can recover well too. Let's make the next year even ... Read more
Jim Jones Why, thank you and much love right back at you! It sure has been an eventful year. It shows you old guys can recover well too. Let's make the next year even better still. I sure couldn't have done this without you but let's agree to not make this a regular habit! Here's to great health for all of us. xxxooo
On November 7, 2014...
Ann Jackson posted a note for Jim that says:
Jim, congratulations on your recovery !! So happy that you have done so well, and now better than ever... You definitely have inspired us all, and your observations and excellent advice are extremely helpful. Thank you!, and continued good health.
Jim Jones Well, Gabi, thanks so much for remembering and for your encouragement! It means a lot to me. I hope all is well with you and that your weather is a bit better ... Read more
Jim Jones Well, Gabi, thanks so much for remembering and for your encouragement! It means a lot to me. I hope all is well with you and that your weather is a bit better than mine-it is grey and cool here. All the best!
On November 5, 2014...
Lynn Ennis posted a note for Jim that says:
Hey Buddy! What a year! Congratulations on making it look so easy…we both know it was NOT!! I remember this time last year, holding thumbs for you, counting down my minutes. And look at us now, tearing it up! Have a great Nov. 5th!!
Jim Jones Why, Lynn, thank you and it seems to me today is November 7th. Does that ring a bell with you??? It sure seems that you and I are getting it done. Let us keep ... Read more
Jim Jones Why, Lynn, thank you and it seems to me today is November 7th. Does that ring a bell with you??? It sure seems that you and I are getting it done. Let us keep that up this year. Is it a deal? Now let me leave a note on your journal!
On November 4, 2014...
Lise Boutiette posted a note for Jim that says:
Jim- you should be so proud of how well you have done on this road to recovery ! Imagine ... almost a whole year and no trips to NYC! I continue to be amazed at your stamina and perseverance - I will always remain your most ardent fan!! To many more successful 5 K 's and those priceless medals:)! Love, me
Jim Jones Hey Chris, thanks so much for the encouragement. I hope all is well in your world also. Yes, it is hard to believe it will be exactly 1 year for me tomorrow! All the best.
On November 2, 2014...
Carol Jackson posted a note for Jim that says:
Jim,
So glad to hear you are doing so well and shaved time off your race. Time marches on and it's so hard to believe that both of us were getting our hearts repaired 1 year ago. Do you remember when we were both Adam's "featured patient"? I am now giving advice to a 30 something guy who is planning to have aneurysm and BAV surgery in Dec. My mom just found out 3 of her valves are bad, so the Dr. is going to do the TAVR on the aortic valve sometime in Dec. It will be interesting to see how she does at her age. All the best to you and your family.
Jim Jones Well, Susan, I do try to do my part. Now heal up, girlfriend, as you know we are all in this together. Am thinking of you this week.
Jim Jones Carol:
You have moved from patient to guide. We will now call you Pathfinder. You certainly are the right person for the job! All the best to your Mom and the ... Read more
Jim Jones Carol:
You have moved from patient to guide. We will now call you Pathfinder. You certainly are the right person for the job! All the best to your Mom and the gentleman facing surgery. And, as former "featured patients", I do believe that Adam holds us to a higher standard!
On September 3, 2014...
Carol Jackson posted a note for Jim that says:
Jim,
Sounds like you are doing great. Wow! Running two 5K races! I received a Fit Bit for Christmas so I've been using mine everyday but will never get near to what you are doing in steps. I am not a runner, but I work out a lot with my trainer and swim(the Fitbit doesn't work with water!) It sure is hard to believe that you, Lynn, etc all had surgeries a little after me! I also remember Aubrey because he had surgery 1 month before me so I followed him and others before me. I am doing great! I still think every day how lucky I am to be alive and to be on the other side of surgery. I would agree with all your helpful hints especially cardio rehab. My 1 month anniversary is coming up on Oct 8 Take care!
Jim Jones Carol:
So glad to hear form you and I am so happy you are doing well. yes, it seems like this time last year we were having entirely different sorts of conversations! ... Read more
Jim Jones Carol:
So glad to hear form you and I am so happy you are doing well. yes, it seems like this time last year we were having entirely different sorts of conversations!
I just returned last night from 2 weeks in Europe where I walked and ran 250,000 steps or more than 135 miles so it seems that both my FitBit and my repaired valve are both working quite well. Keep doing as well as you are and let me know when your FitBit can swim. All my best!
On September 2, 2014...
Aubrey Jones Jr posted a note for Jim that says:
Heyas Jim. Looks like your doing well also. Just checking in on the one year mark and it looks,like we are all on the right path. I know I would not have made my last birthday if not for the surgery. Keep running and enjoying. Aubrey
Jim Jones Aubrey - So, so glad your are doing well. Your wife and you inspired me in my recovery. Thanks for having yours done first as my personal trailblazer. Here's ... Read more
Jim Jones Aubrey - So, so glad your are doing well. Your wife and you inspired me in my recovery. Thanks for having yours done first as my personal trailblazer. Here's to a great next year for all of our 2013 graduating class!
On August 12, 2014...
Louise Tompkins posted a note for Jim that says:
Jim, Great to hear that you are busier than ever and doing so well. Looking forward to seeing you for myself on Sunday.
Jim Jones Well, thank you Louise! We are really looking forward to seeing you on Sunday also. It's been too long. My best to Bill, or, as I know him, "Mr. Baseball!".
On August 11, 2014...
Lise posted a note for Jim that says:
Jim -it is hard to believe it has been 9 mos. !!!A friend said to me the other day that they keep forgetting you even had surgery ,because your life is back to normal , and you are operating at a pace that many could not sustain!! As others have said , you are an inspiration -I am so proud to see you still trying to help those facing the challenges of surgery- you have always been one to give very sound advice ,and God knows I have benefited from that!! To many more enjoyable races ....together! :) Much love, moi
Jim Jones Hey, great to hear you like races, we have one this Friday! We are a team in all things. Your continuous contributions have been a big reason why I am doing ... Read more
Jim Jones Hey, great to hear you like races, we have one this Friday! We are a team in all things. Your continuous contributions have been a big reason why I am doing well - come on now. Much love right back at you!
On August 11, 2014...
Susan Smith posted a note for Jim that says:
I'm impressed Jim. All those steps which turn into all those miles. I am not in the race with you and the others, but I refuse to give in or give up. The fluid in the lung is the slower down, but soon I will get rid of another 500 cc in the right lung and I will feel better. Life is much better than before surgery so I will move forward. Race away Mr. Jim and yes you are an inspiration. Always your friend,
Jim Jones Well, Susan, I never figured you as one that gives up at all! Get rid of the fluid and feel better. So glad that things are better than before surgery. Now ... Read more
Jim Jones Well, Susan, I never figured you as one that gives up at all! Get rid of the fluid and feel better. So glad that things are better than before surgery. Now the body can do its thing and heal more. I continue to follow your journey with extreme interest. All the best!
On August 11, 2014...
Lynn Ennis posted a note for Jim that says:
You are a machine Jim! Congratulations on all those miles! If valve surgery had a magazine you would be the cover! I like the gentle competition of FITBIT- altho I usually lose- it does help inspire me to get out there. I would encourage everyone post op to consider it. We could get quite a group going.
Its not easy getting back to normal…hard to escape this experience without feeling harmed…but you are a good role model…slow and steady wins the race. Maybe I'll race in 2015! Enjoy that gorgeous NE weather- we are dry and hot out west!
Jim Jones Why thank you, Lynn! You also are a great role model. Perhaps we could share the cover?
Hi to Steve and enjoy dry and hot. We are having the best summer in ... Read more
Jim Jones Why thank you, Lynn! You also are a great role model. Perhaps we could share the cover?
Hi to Steve and enjoy dry and hot. We are having the best summer in memory after a tough winter. Let's now head together toward the 1 year anniversary.
On August 11, 2014...
Brian Walsh posted a note for Jim that says:
I definitely cleared a million with a 15K per day step goal (10K was just too easy)
Training is good although I just realized I flubbed my plan and was off a week, so have to trim a week out of my plan but it is all good. I'm ready to go and looking forward to the run. Getting ready to post my own update shortly, once I get the AHA page back up and running.
Jim Jones Brian:
You are a running machine. Enjoy running and stay healthy! Getting closer to race day. I have a local 5K on Friday that should be fun.
On August 10, 2014...
Chris K posted a note for Jim that says:
Jim:--Wow--racing again so soon! Sounds like you are doing great--its amazing how quickly most of us can recover from such major surgery!
Jim Jones Chris, it really is amazing how quickly we can recover and also get to the point where we say that we feel much better than before the surgery. Here is to good health and good days to us all!
On August 10, 2014...
Ernie A.S. posted a note for Jim that says:
You da man!!!
Jim Jones Why, Ern-dog, thank you! How are you doing? Hope all is great on the west coast, big guy. You are coming up to your 1 year anniversary - time has certainly moved right along.
On August 10, 2014...
Dan S. posted a note for Jim that says:
Over 2 million steps, I am such a loser @ 1,700,000 steps.
You have worked hard, Why don't you take a siesta in Mexico ummm for about three months and let me catch up....
Keep up the work my friend. You are an inspiration to all of us!
Jim Jones Well, Dan, if you channel Forrest Gump you will pass me in no time! 1.7 million steps is not too shabby at all. It is amazing how many steps we actually take. ... Read more
Jim Jones Well, Dan, if you channel Forrest Gump you will pass me in no time! 1.7 million steps is not too shabby at all. It is amazing how many steps we actually take. Thanks for your kind words, Dan, I will keep 'er up.
On August 10, 2014...
Brian W. posted a note for Jim that says:
Looking good! I'll have to send you a fitbit request. Got mine about 6 weeks ago.
Jim Jones Hey, Brian, knowing your exercise commitment you are probably already at 2 million steps! I think you are going to crush me. How is your training coming along? All the best, Brian.
On April 25, 2014...
Ernie A.S. posted a note for Jim that says:
Damn. Got back to jogging/walking, then yesterday made it about 2 miles into a 3 mile round trip and injured my right calf again. I stretched good too before I started my jog. I had to call my roommate to come pick me up because I still had a mile to go to get home and a lot of it was uphill. I would have just injured my calf further. Arrrrr!! Making it harder to reach my goal of jogging a 5k this year. :(
Jim Jones Now that is lousy. Heal fast, Ern-dog! You may want to skip stretching before you run. I have stopped after many years. A walk for 5 -10 minutes at the beginning ... Read more
Jim Jones Now that is lousy. Heal fast, Ern-dog! You may want to skip stretching before you run. I have stopped after many years. A walk for 5 -10 minutes at the beginning at a progressive pace would be less stress on your cold muscles. I hurt my left leg last year by stretching beforehand.
You can still reach your goal this year. My goal is also to run races before yearend. We can compare notes. A foam roller also works well after a run. Good luck, big guy!
On April 5, 2014...
Dan Sinclair posted a note for Jim that says:
Jim,
If you look in "my subscribers" you should see my email address
dsinclair@.......
Of course you are going to make me feel like I am not walking enough....but I guess that is the idea......
Jim Jones Jeez, Dan, I had not even considered that! (or, DID I???)
I want us to be sitting together poolside in FL when we are 90 extolling the virtues of the weather ... Read more
Jim Jones Jeez, Dan, I had not even considered that! (or, DID I???)
I want us to be sitting together poolside in FL when we are 90 extolling the virtues of the weather and acting surprised that the original Fitbit battery from 2013 is still working!
I did send a Fitbit invite and look forward to teaming up with you!
On April 3, 2014...
Dan Sinclair posted a note for Jim that says:
Hey Jim,
Thought I would check in with a couple of my fellow HVS brothers. How are you doing? I hope extremely well ! I really could not ask for anything more in terms of my recovery. I feel great, working my butt off, but the cool thing is I am able to.
Got 250 miles on my fitbit since January, would have more if I wasn't so busy at work! Take Care and let me know how you are doing.
Jim Jones Big Dan:
I am so pleased to hear that you are doing extremely well. Keep that up!
Now, you better get rolling on your fitbit because I am closing in on 500 ... Read more
Jim Jones Big Dan:
I am so pleased to hear that you are doing extremely well. Keep that up!
Now, you better get rolling on your fitbit because I am closing in on 500 miles since the beginning of the year. Let me know your email address if you want to and I will send you a fitbit friend invite. Lynn Ennis and I are already firbit friends so we are able to track one another's progress.
I have 3 weeks left in rehab. I continue to improve. I am running/walking in 1 hour workouts 5-6 days a week. It will take me time to get back to full running.
Looking forward to that day. Working hard and seeing improvement there also.
Thanks for reaching out, Danny-boy! Best to Mary!
On March 18, 2014...
Carol Jackson posted a note for Jim that says:
Jim,
Thanks for your note on my site. I think your journal was way better than mine! I am looking forward to following Susan Smith's surgery.
How are you doing? Are you back to your normal routine? I'm in AZ again this time with Doug(the last time was a month with my mom) I feel great and have more energy than I ever had. I still talk to people about how important the journaling and meeting so many people on this website helped in my recovery. Stay in touch.
Jim Jones Carol:
I am so glad you are doing well! I am also happy you were able to get back to AZ - good for you.
I continue to improve. 6 more sessions of rehab left. ... Read more
Jim Jones Carol:
I am so glad you are doing well! I am also happy you were able to get back to AZ - good for you.
I continue to improve. 6 more sessions of rehab left. I am working a full schedule but still have a ways to go before I am 100%. Healing does take time. (BTW, I think your journal was way, way better than mine!)
Looks like our Susan has her date. I am so pleased to learn that.
Have a great one and continue to enjoy your new health.
On March 5, 2014...
Dan Sinclair posted a note for Jim that says:
Hey Jim,
Wanted to check in and say Hi. Hope all is going well with you Lise and the rest of your family. I am working like a madman 12 sometimes 14 hours a day, they must have done a good job on my heart because I feel pretty good !
Take Care,
Thanks so much for taking time to check in. I am so pleased to hear that you are feeling good. I bet in several months you won't believe how much better ... Read more
Thanks so much for taking time to check in. I am so pleased to hear that you are feeling good. I bet in several months you won't believe how much better you feel. I'm impressed with your endurance. That is impressive. Keep up your healing.
I am doing well. It is 4 months post-op today. I am 1/2 way thru cardiac rehab. I have derived a great deal of benefit from rehab - monitored exercise, yoga, nutrition, stress management, and a great group of fellow heart travelers. I'd say that I am 70% there - the rest of the 30% will take the next 8 months, IMO.
We are doing well. Some New England travel with more extensive traveling coming up. I'm working full time and have a busy schedule as usual. Had a check-up on Monday and the takeaway phrase was "excellent recovery". I'll take it!
All the best to Mary, you and your daughters!
On February 15, 2014...
Carol Jackson posted a note for Jim that says:
Jim,
Glad to hear you continue to do so well post op. i'm so glad that you also benefited from cardio rehab. Like you - it really gave me so much confidence, I learned a lot and also met some people who had similar experiences. I am back to normal- walking in the the HOT(88 today) sunny AZ weather before hightailing it back to the cold Midwest. Take care!
Jim Jones Carol
Thanks so much! It sounds like you are doing real well. So glad to hear that. If you can, stay in AZ for a bit.
It is NO fun here in the north!
All the best!
On February 14, 2014...
Sandei posted a note for Jim that says:
I just finished reading your entire journal. I love the way you documented your surgical journey. I'll be having the same procedure on March 6th and was curious about the immediate post op which you covered nicely. Two questions, how long did the leg swelling last? And did you have issues with depression? It was interesting to note that you needed to have your body slow up to match what your heart was doing (Kind of where I am now pre-op) Glad to read of the wonderful progress you've made.
Welcome and thanks for dropping by! The very best to you with your surgery and recovery. Thanks for your kind feedback.
Where will you have the surgery? What is involved?
Two good questions. It actually was groin swelling and it resolved itself within 48 hours in the hospital after copious doses of Lasix. They add lots of fluid to your body during surgery to protect the heart and support the procedure. For me it meant I had 25 pounds of excess fluid. With Lasix it was no big deal to eliminate the fluid.
My key takeaway from that experience is to tell them immediately if something is not right. They have protocols for everything. I also think they have seen everything.
I did not have what would be called clinically diagnosed cardiac depression. But I had and continue to have periodic low emotional moments. I'm not sure you can completely avoid low emotional moments. What I do is to read the heart blog and put in search terms for what is worrying or distressing me. I get lots of great information and comfort by doing that. I am also just now starting to read Adam Pick's book backward. That's because I want to be encouraged by my future rather than dwell on my mind and body "what ifs" or low energy. I take action - walk, yoga CD, connect with friends - actions that get me out of my ruminations.
I recommend that you line up your cardiac rehab before surgery as it is a sure fire way to avoid cardiac depression. The community of fellow travelers and the medical team are priceless in a good program.
Please let me know if you have any questions - I'm here to help as are so many others on HVJ. All the best.
On February 13, 2014...
Lynn Ennis posted a note for Jim that says:
That sounds great Jim! I envy you your rehab program.I just started doing my own thing...some days I overdue it!
You will be a veritable road runner when the snow melts! I also,look,forward to,a lower resting heart rate...I don't like the feeling of a pounding heart which comes way sooner than it used to. It's a long road to complete recovery.
I really wish you were back East in my 7:00AM cardiac rehab class. We'd have a blast. I am so impressed with your exercise level. I too have overdone ... Read more
I really wish you were back East in my 7:00AM cardiac rehab class. We'd have a blast. I am so impressed with your exercise level. I too have overdone it and felt like a 100 year old out of shape man the next day. Oh well, I'd rather overdo than "no do"!
It really is a longer road than I had figured on. I have had to develop patience and be flexible. I'll get back to extended running when I am able. The same goes for racing.
And, yes, bring on that lower heart rate!
All the best!
On February 12, 2014...
Brian W. posted a note for Jim that says:
Great progress and good to know. I did no rehab, but often wondered if I should have.
The Heart Rate definitely took some getting used to. Mine was in the 90s to 100 for a long time as I could not take any medication due to it lowering my BP too much. Finally around 8 months I think it finally started to come down and by a year I finally got back to my normal, with resting HR below 70 and normal around 70-80.
Jim Jones Hey Brian:
How do you like running in this cold weather?! Yeah, the heart rate really does take some getting used to. My resting heart rate is now 79. That's ... Read more
Jim Jones Hey Brian:
How do you like running in this cold weather?! Yeah, the heart rate really does take some getting used to. My resting heart rate is now 79. That's down from 100 in the hospital. It can be amazingly sensitive to any change in speed or elevation. I look forward to it returning to normal.
I hope your training is going well and everything else is well in your life. All the best.
On February 11, 2014...
Louise Tompkins posted a note for Jim that says:
Jim, Bill and I are happy to hear that you are able to show some speed on the treadmill. Hopefully, once the nice weather comes and the snow and ice melt you will be able to get outside and stretch your legs.
Jim Jones Hey Louise:
It's wonderful to hear from you especially given your busy schedule right now. Ditto on the nice weather. I was dreaming yesterday of singlets, ... Read more
Jim Jones Hey Louise:
It's wonderful to hear from you especially given your busy schedule right now. Ditto on the nice weather. I was dreaming yesterday of singlets, running shorts, green grass and sunny weather. Let's hope for an early spring. I hope that Bill and you are doing really well. Enjoy the next couple of weeks. All the best.
On February 11, 2014...
Rebecca S posted a note for Jim that says:
Jim, Your posts are always to helpful to everyone regardless of their stage in the process. So glad you are doing well with the rehab. I didn't get to finish about 1/3 of mine because of going back to work when I did. It was so very helpful though. When I quit work, I tried to go back and finish my sessions, but was told it was too late, they had already sent my file to Medical Records. Now I am trying to exercise at home and lose weight, not always easy.
Continue to take care of yourself. Thanks for all the encouragement you have given in the past.
Jim Jones Hey Rebecca:
As always it's wonderful to hear from you! Thanks for stopping by. I hope you are enjoying retirement. It does take a while to adopt a new routine. ... Read more
Jim Jones Hey Rebecca:
As always it's wonderful to hear from you! Thanks for stopping by. I hope you are enjoying retirement. It does take a while to adopt a new routine.
Good luck on your exercise. I belong to a gym so my toughest activity is to get myself out the door. Once I'm at the gym I'm okay.
You also take good care. Thank you so much for your kind words. Have a great week! All the best.
On February 11, 2014...
Tom Abbott posted a note for Jim that says:
I've been waiting for this latest update. Very positive and fun-sounding things you've got going on! Am of course very interested in reading soon how you'll be easing back into running. Keep up the good work!
Jim Jones Tom:
Thanks for reading my latest post. I certainly have a lot going on. Juggling cardiac rehab, work and life is a full-time activity!
Thanks for the encouragement ... Read more
Jim Jones Tom:
Thanks for reading my latest post. I certainly have a lot going on. Juggling cardiac rehab, work and life is a full-time activity!
Thanks for the encouragement as always. Right now I am running in 5 min. intervals followed by five-minute walks. I'm really looking forward to extending the run portion. Keep up your fine work training and racing, I continue to follow your progress. All the best, Tom.
On February 11, 2014...
Ann Jackson posted a note for Jim that says:
Jim,
I have really enjoyed and appreciated reading your posts- always uplifting and encouraging to others. You have really helped so many fellow patients. I'm so happy for you to be well on your way to a full recovery.
I could really relate to everything you said as my AVR surgery was nearly 3 years ago. It helps patients a great deal to know what to expect before and after surgery. You are excellent at conveying this to others.
Loved the post to you from your wife Lise. That was really sweet.
Continued prayers to you both.
Jim Jones Ann:
Thanks so much for stopping by and thanks for your very kind words. I'm certainly glad that you've enjoyed my posts. Thanks much for your encouragement. ... Read more
Jim Jones Ann:
Thanks so much for stopping by and thanks for your very kind words. I'm certainly glad that you've enjoyed my posts. Thanks much for your encouragement.
It must be quite something to be almost 3 years post surgery. I'm looking forward to getting the first year under my belt. As I'm sure you can remember, three months produces significant healing but I still have a ways to go.
I am also so pleased that you enjoyed Lise's posts to me. She has been absolutely incredible during this entire process. I don't know what I would've done without her (although I'm quite sure she has some ideas as to what she would've done without me!!)
Please keep those prayers coming and I hope you have wonderful health and an overall great life this year. All the best.
On February 11, 2014...
Clare posted a note for Jim that says:
I can't wait until I can run again. I am a half marathoner who is 4 weeks post op. I have been to two rehab sessions. They have me on the treadmill at a walk. One day I will be running again.
Congrats on your recovery. Keep it up.
Jim Jones Hey Clare:
Thanks so much for stopping by. I know exactly what you mean! It is the epitome of unfairness to take a runner off the road! I'm glad to see that ... Read more
Jim Jones Hey Clare:
Thanks so much for stopping by. I know exactly what you mean! It is the epitome of unfairness to take a runner off the road! I'm glad to see that you are a month post surgery and have already begun rehab. That's impressive. I waited to start rehab till the eight week mark.
Let's look forward to both of us getting back on the road and completing races. We can post our success. Continue your recovery well and all the best to you.
On February 10, 2014...
Ernie A.S. posted a note for Jim that says:
I was running in rehab just the other day. They were trying to get my beer from me before I could drink it. Oh waitaminute...
you meant CARDIAC rehab. They restricted me to walking while I was in there. :)
Jim Jones Jeez, Ernie:
What kind of bare bones cardiac rehab were you in?
Here in Wellesley mine offers a wine and cheese bar, beer and a juicing station just for starters. ... Read more
Jim Jones Jeez, Ernie:
What kind of bare bones cardiac rehab were you in?
Here in Wellesley mine offers a wine and cheese bar, beer and a juicing station just for starters. The positive sign is that we have 100% attendance and no dropouts. A possible negative sign is that many of our attendees are repeat members due to more surgeries. I see this as a coincidence. Have a good one, big guy!
On January 21, 2014...
Gabi x posted a note for Jim that says:
Oh its good news all around today! Well done on your recovery Jim. You deserve to feel really good after all your support to the rest of us. Keep it up Jim Jam!
Jim Jones Why thank you, Gabi! I will do my best. The next really big day is when I run in rehab. You keep it up too! Best.
On January 19, 2014...
Gabi x posted a note for Jim that says:
Jim, you have been so supportive to lots of families on this site, I just want to touch base with you and see if YOU are still good? Hope you and Lise are back on track and have put the surgery behind you. I picture you back at work, doing short runs and catching up with family and friends. Is this so?
Jim Jones Gabi
Well, thank you for your kind words and concern! It's great to hear from my Aussie friend.
I'd say I am 2/3rds back about 10 weeks after surgery. I just ... Read more
Jim Jones Gabi
Well, thank you for your kind words and concern! It's great to hear from my Aussie friend.
I'd say I am 2/3rds back about 10 weeks after surgery. I just finished 2 weeks of cardiac rehab with 13 weeks to go. It is helpful and something I look forward to each time. I have been working full time since the end of the year. I guess the doctors would say that I am right on track.
I hope to start running next month after I take another stress test. I have been out and about and I think folks are surprised how well I look based on their reactions. So, all in all, not too shabby!
Again, thanks so much for asking. How are you doing???
On January 15, 2014...
Vicki (Rachel's sister) posted a note for Jim that says:
Hi to Jim and Lise,
I wanted to say a big thank you for the card you sent Rach. It actually arrived very close to transplant day so I only got to read it to her yesterday. You did manage to raise a few smiles with your messages which is a big achievement considering how Rach has been feeling lately. It was very thoughtful of you both and I look forward to the day she's back on the journal and enjoying the HVJ community herself again.
Jim Jones Vicki
It was our pleasure. Once Rach is up and about we want to send something along that is a bit more fun then a get well card! Tell Rach we are her number ... Read more
Jim Jones Vicki
It was our pleasure. Once Rach is up and about we want to send something along that is a bit more fun then a get well card! Tell Rach we are her number one fans in Boston, MA. Please ask her to not hold the Boston Tea Party against us - that was in the 1700s.
We are rooting for continued healing and a wonderful outcome. Our best.
Jim Jones Got it. Just sent you a racing response. Please give me a holler at jjones@firstwellesley.com if you want to discuss racing more, Ernie. Have a great day!
On January 9, 2014...
Ernie A.S. posted a note for Jim that says:
What kind of racing do you do?
Jim Jones Ernie:
My racing over the last few years has covered races from 1 mile (road and track) to 10K. I'd like to focus now on 5-10K in 2014 and then get back in ... Read more
Jim Jones Ernie:
My racing over the last few years has covered races from 1 mile (road and track) to 10K. I'd like to focus now on 5-10K in 2014 and then get back in 2015 to a few 1 mile races (these are hard) and 15K road races (these need solid training). I don't know if I will ever get back to either 1/2 marathon (last 2 were in 2006) or longer. We will see how I recover and what my cardiologist says. Plus, I would need some serious training time.
On January 7, 2014...
Peter Fahlman posted a note for Jim that says:
Happy NewYear!
I'm impressed as can be but know I shouldn't have expected any less than a 100% commitment to recovery and rehab.
2014 and off to the Jim (or is that gym)? See you soon. Bundle up.
Thanks for stopping by. It is a bit chilly out there! First day of cardiac rehab today. Exercise at 7am, yoga at 8am and breakfast at 9am. Sounds ... Read more
Thanks for stopping by. It is a bit chilly out there! First day of cardiac rehab today. Exercise at 7am, yoga at 8am and breakfast at 9am. Sounds like a schedule to me! 29 more sessions to go. I can tell it will make a HUGE difference. You two stay warm!
On January 6, 2014...
Lise Jones posted a note for Jim that says:
Jim- has it really been 2 mos. and a day since the big day --and already the eve of Cardiac rehab?? Wow- what terrific progress you have made, and I am sure you will be a leading star in the Cardiac rehab class... much to the chagrin of the other participants! I know you will keep focused and heed the advice of the nurses and staff so that next April 5k Registration list has your name on it:) To continued progress - Cheers! love, moi xoxo
Jim Jones Indeed it has been 2 months. It now feels like years ago, that is odd. Hopefully they award trophies and medals in rehab - I love both! Let's get this done ... Read more
Jim Jones Indeed it has been 2 months. It now feels like years ago, that is odd. Hopefully they award trophies and medals in rehab - I love both! Let's get this done so I can race some races and start carrying my weight around here! XXXOO - Me (the heart patient)
On January 5, 2014...
Lynn Ennis dee_family@hotmail.com posted a note for Jim that says:
Hey Jim,
Yes, we graduated! It was so great for me to have you as my very own cardiac buddy…your kind words made my experience so much more bearable. It sounds like its all a GO for you..wonderful. I hope we can let the experiences of 2013 fade into fantastic 2014 ones! I will put me email address at the bottom..please, if you ever find yourself in san Francisco, give me a shout. I would love to actually meet you and all others of our class:)
Jim Jones Hey Lynn
Looks like we did graduate indeed. Thanks for the support throughout. Now for the next phase. I hope that 2014 will be terrific for us both. Thanks ... Read more
Jim Jones Hey Lynn
Looks like we did graduate indeed. Thanks for the support throughout. Now for the next phase. I hope that 2014 will be terrific for us both. Thanks for your email address. Would love to meet you. My email is jjones@firstwellesley.com. You find yourself in Boston please let me know. I find myself in San Francisco I will let you know. To the best in health, cardiac buddy!
On January 4, 2014...
Susan Smith, yes it really is my name posted a note for Jim that says:
Jim, I joined this Community just after Ernie became AS . Then Dan and you came along. I listen to your stories, your experiences and your lessons learned and became a well informed heart valve patient. I will miss the 3 Musketeers - Ernie, Dan and you. I am not yet to the surgery theatre, but am well on my way and will return to your Journals to refresh the lessons shared. Do drop in from time to time and let us all know how you are doing. God's continued blessings upon you and Lise. your friend always,
Jim Jones Nah, Susan Smith can't really be your real name. For sure, Jim Jones is not my real name!
Thanks so much Susan for your continuous encouragement. I'm glad ... Read more
Jim Jones Nah, Susan Smith can't really be your real name. For sure, Jim Jones is not my real name!
Thanks so much Susan for your continuous encouragement. I'm glad the posts were helpful. I am pleased you enjoyed the three musketeers-watch for the reality show we are debuting this year on Netflix. The first episode will be titled "Surgery, You got to be @#%$@ me!".
I sure will drop by and touch base as well as follow your exploits. Here's to great health!
On January 4, 2014...
Louise Tompkins posted a note for Jim that says:
Jim, Glad to hear that you are working and driving - being able to go out and do for yourself does wonders to uplift your mood. Good luck with the next stage of recovery.
Jim Jones Louise
Thank you. You sure have that right! Thanks so much for checking in and for your encouragement .Hope you all are well .We wish you a healthy and wonderful 2014. Stay warm, Louise!
On January 4, 2014...
Cheryl Shute Walter posted a note for Jim that says:
Looking forward to it! I can use all the cheerleaders I can get.
Cheryl Shute Walter posted a note for Jim that says:
Wait, I just met you. You can't be leaving me already, lol (just kidding). I'm so happy for you. Now get on with the business of LIVING the rest of your life!
Jim Jones Hey, Cheryl, you think I would leave you now? Not a chance! Consider me your personal pathfinder. I will go ahead and figure out the next steps in this journey. ... Read more
Jim Jones Hey, Cheryl, you think I would leave you now? Not a chance! Consider me your personal pathfinder. I will go ahead and figure out the next steps in this journey.
I will receive your posts, follow your progress and cheer your success. Be well!
On January 4, 2014...
Laura posted a note for Jim that says:
Jim,
I have enjoyed reading your posts. I'm happy to hear you are doing so well and moving on with your life. Best of luck with everything!
from a fellow MA resident, living in NYC, with a mitral valve surgery in her future...
Thanks so much for stopping by. Come on now-a MA resident that lives in NYC? Does it get any better than that??!
I am glad you enjoyed the posts. I see you have MV surgery in your future. If I can help in any way please feel free to post a note and I will get back to you.
All the best to you with everything and stay warm!
Uploading your photo!
Hope all is well, I expected to see a post about your two year or are you off running a marathon. Take Care Brother!
Dan