Guestbook of Jen Huff

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Jen Huffgot a new guestbook post

2670 days ago

c l posted a note for Jen that says:

Hi Jenn, I was in convo with Kathleen F. about my daughter and she mentioned you might be able to help me. My daughter's a senior in high school and swims ...Read more

Hi Jenn, I was in convo with Kathleen F. about my daughter and she mentioned you might be able to help me. My daughter's a senior in high school and swims competitively, was recently diagnosed with moderate to severe aortic valve regurgitation. She's asymptomatic, but was advised by her pediatrician to get her heart checked "just in case" since I had my AVR replaced a little over two years ago. and I wanted to know if you can share your cardiologist info since you live in asbury park area. I'm in central jersey. She's already seen two cardis, one pediatric and one adult. I'm not sure if she is still considered pediatric at 17? What's your thought? Thanks.

Jen Huffgot a new guestbook post

3233 days ago

Jared Willard posted a note for Jen that says:

Hello Jen, I'm Jared from New York. I had double valve replacement also. I had my mistral done twice and my aortic once. It's tough falling asleep now ...Read more

Hello Jen, I'm Jared from New York. I had double valve replacement also. I had my mistral done twice and my aortic once. It's tough falling asleep now with the clicking inside me. You got mechanical valves to right? My first surgery was 17 years ago and my 2nd was 7. Wanna chat sometime Id like to hear your journey.

Jen Huff Hi Jared - no, I had the Ross Procedure so I have my native pulmonary valve in the aortic position an ... Read more

Jen Huff Hi Jared - no, I had the Ross Procedure so I have my native pulmonary valve in the aortic position and a human cadaver valve in the pulmonary position.

Jen Huffgot a new guestbook post

3240 days ago

Laura Metrano reacted to this

Lisa Heinen posted a note for Jen that says:

Hi Jen, I just found out 2 weeks ago that my congenital bicuspid aortic valve needs replaced along with now having an aortic aneurysm - I too have been asymptomatic ...Read more

Hi Jen, I just found out 2 weeks ago that my congenital bicuspid aortic valve needs replaced along with now having an aortic aneurysm - I too have been asymptomatic and am in extreme shock! I just emailed Dr. Stelzer to see if I can possibly travel from SD to NY to have the Ross Procedure - any advice???

Jen Huff I'm sorry for the delay - I just saw this now. I use to live in San Diego too by the way :) If you ... Read more

Jen Huff I'm sorry for the delay - I just saw this now. I use to live in San Diego too by the way :) If you can go to Dr. Stelzer, that would be great. He is the most amazing person and surgeon that I have ever met. I'm not sure how old you are, but I'm assuming the Ross Procedure is a good option for you since you want to see Dr. Stelzer? If you can't get to see Dr. Stelzer, I am sure there are some great surgeons in SD. Please keep me posted! My email address is jwillman7@hotmail.com if you want to reach out.

Jen Huffgot a new guestbook post

3290 days ago

Damian Kudelka posted a note for Jen that says:

Jen. I hope recovery is going well. Just checking in about the vineyard heart run in May. Did you sign up?

Jen Huff Hi Damian - I didn't sign up - I actually realized I'm going to be out of town that weekend. Good luc ... Read more

Jen Huff Hi Damian - I didn't sign up - I actually realized I'm going to be out of town that weekend. Good luck and hope all is going well with you!

Jen Huffgot a new guestbook post

3306 days ago

1 person reacted to this

Kathleen F. posted a note for Jen that says:

I hope you are able to jog your birthday mile today and you enjoy every step of it! Happy Birthday!

Jen Huff I have been jogging two miles :) hope all is well with you!

Jen Huffgot a new guestbook post

3310 days ago

Damian Kudelka posted a note for Jen that says:

Jen. Any good news from Stelzer? I'm curious to compare how you feel after jogging. I know we are all different, but I have felt a bit tired after jogging ...Read more

Jen. Any good news from Stelzer? I'm curious to compare how you feel after jogging. I know we are all different, but I have felt a bit tired after jogging a 12 min mile. A bit means later in the day i felt it and was fairly wiped and a little tired the next day. I only had rehab once so I'm still building steam...

Jen Huff Yes! I have been jogging on the treadmill. About a 15 minute mile for 2 miles. I'm really not too tir ... Read more

Jen Huff Yes! I have been jogging on the treadmill. About a 15 minute mile for 2 miles. I'm really not too tired after. I'm going to try jogging outside this week. I have been going to rehab 3x a week. Dr. Stelzer said not to have my heart rate go over 140.

Jen Huffgot a new guestbook post

3313 days ago

Kathleen F. posted a note for Jen that says:

Hey Jen, I think the all-clear to drive is usually at week 4. I don't drive regularly so didn't think to ask. I was more concerned with being able to run, ...Read more

Hey Jen, I think the all-clear to drive is usually at week 4. I don't drive regularly so didn't think to ask. I was more concerned with being able to run, have a coffee and a glass of wine!

Jen Huff Thanks! Do you gave a good running watch/heart rate monitor? I have a Garmin Forerunner 110 but not s ... Read more

Jen Huff Thanks! Do you gave a good running watch/heart rate monitor? I have a Garmin Forerunner 110 but not sure the HR monitor is accurate.

Jen Huffgot a new guestbook post

3313 days ago

Damian Kudelka posted a note for Jen that says:

Ps if you get the all clear think about signing up for the 5k in May- it's a AHA sponsored run

Jen Huff Where is it? I will do it!

Damian Kudelka Great! No stopping us now!!! Check out my journal it's on there or Google healing heart run May ham ... Read more

Damian Kudelka Great! No stopping us now!!! Check out my journal it's on there or Google healing heart run May hamptons. It's may 17 I beleieve.

Jen Huff Great thanks! Do you wear a heart rate monitor when you jog?

Damian Kudelka I didn't last time, but I intend to. Going to rehab tomorrow for the first time so will ask them abou ... Read more

Damian Kudelka I didn't last time, but I intend to. Going to rehab tomorrow for the first time so will ask them about bpm ranges. What have you heard about heart rate?

Jen Huff Dr. Stelzer said to keep mine under 140. I go to rehab tomorrow so we will see. I have a heart rate m ... Read more

Jen Huff Dr. Stelzer said to keep mine under 140. I go to rehab tomorrow so we will see. I have a heart rate monitor but I'm not sure if it's accurate.

Jen Huffgot a new guestbook post

3321 days ago

Janea Christensen posted a note for Jen that says:

Hi Jen, Are you on coumiden? Or did you get a tissue valve? I wondered what your experience on coumiden has been like.

Jen Huff Hi! I had the Ross Procedure so no mechanical valve for me.

Janea Christensen I have never understood what the Ross is. It must be a valve repair?

Jen Huff My aortic valve was replaced with my pulmonary valve. My pulmonary valve was then replaced with a hum ... Read more

Jen Huff My aortic valve was replaced with my pulmonary valve. My pulmonary valve was then replaced with a human cadaver valve. I also needed my aortic root replaced.

Jen Huffgot a new guestbook post

3325 days ago

LaDonna Mangile posted a note for Jen that says:

How is your cardiac rehab going? Have you thought of anything else we should take to the hospital?

Jen Huff Cardiac rehab is going slow. I want to do more but they won't let be yet bc my ejection fraction is l ... Read more

Jen Huff Cardiac rehab is going slow. I want to do more but they won't let be yet bc my ejection fraction is low so I need to wait for my next echo on 4/3. I will see what my surgeon says. Better safe than sorry! I think another thing to bring to the hospital is maybe some special food treats from home. The first few days I had no appetite but when I did, my doctor said I had no restrictions and I craved Justin's peanut butter cups! Lol