Jeffrey's Guestbook

Diagnosis: Aortic Regurgitation, Mitral Regurgitation, Tricuspid Regurgitation

Member Since: November 18, 2025

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Jeffrey Sweatlock got a guestbook from Tim Jensen
7 months ago (December 5, 2025)
Looking at the map, I see there is a reference center in Phoenix (Mayo Clinic). Meet with the doctors and see what they recommend. Valve replacement would be my last resort.
Jeffrey Sweatlock got a guestbook from Tim Jensen
7 months ago (December 5, 2025)
Hey Jeffrey, My story - I had a complex mitral valve defect that was repaired in 2011 but the valve was not repaired. In 2016, I had a re-repair at a reference center (Mt. Sinai in New York City) by Dr. David Adams and he succeeded in repairing my valve.... Read more.
I am curious with what you mean with "complex mitral valve defect". What was complex about it? I am asking because I have some upcoming procedure. As for reference centers, I have a slightly different opinion. Yes, you want someone very experienced. However, everyone needs to learn. And some top... Read more.
Agreeing, if you have opportunity, look for a experienced surgeon with many repairs per year. It's not a surgery for beginners as Robert says. If not, it's better a good replacement to a bad repair.
Tim: I thank you for your comments. I want to and I am trying to get to a Reference Center as you suggest. Dr. Chikwe did train under Dr. Adams.
Jeffrey Sweatlock got a guestbook from Brian McCann
7 months ago (December 4, 2025)
Jeffrey, you would be looking for what the insurance companies call a "network gap exception" where you don't have a reasonable option within the coverage area. I had the same situation where I needed care and the local options were not as good as an out of state option. This... Read more.
Brian: this is very encouraging that it only took you a few weeks to resolve. I too have an ACA plan. I would rather go to a Mitral Reference Center which has the team and surgeon who are doing this weekly instead of only a few times per year. Research... Read more.

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