Thank you for the well wishes! My surgery consisted of a repair to my unicuspid aortic valve (now bicuspid), and a repair of an ascending aortic aneurysm. My aortic root was and is still healthy.
I didn’t have any major complications post-op. Like most OHS patients, I experienced severe chest pain (muscular and skeletal) during the first 4-5 months of the healing process. Months 5-12 have been intermittent pain that also involves my neck and right shoulder.
I do experience pre-ventricular contractions (PVC) that my surgeon and cardiologist determined as benign. I don’t drink caffeine and rarely drink alcohol in an attempt to avoid PVCs.
Feel free to let me know if you have additional questions = ) Having the support of fellow patients has really helped me through this journey!
Hi Cristen- I've followed your story here with great interest. My husband has been diagnosed with an aortic aneurysm at the root. Surgeons have told us he ...Read more
Hi Cristen- I've followed your story here with great interest. My husband has been diagnosed with an aortic aneurysm at the root. Surgeons have told us he is a candidate for the David Procedure with minimal repair work to his aortic valve. We're finding that there are only a few surgeons out there who do this surgery via a mini-sternotomy. Did you have the David Procedure? Sounds like your mini-sternotomy was a success. Thanks for any feedback!
Cristen Marzula Hi Joan - My aortic root was healthy and didn't require surgical repair. If possible, I would highly ... Read more
Cristen Marzula Hi Joan - My aortic root was healthy and didn't require surgical repair. If possible, I would highly suggest that you consult with a cardiologist and surgeon at a facility of excellence (Cleveland Clinic, Mayo, etc). These specialized procedures (on high risk patients) are performed daily at top facilities.
Peter Willard posted a note for Cristen that says:
Cristen that is a great story we are lucky to be born when we did because years ago they did not have these operations.I had a bovine valve in 2010. ...Read more
Cristen that is a great story we are lucky to be born when we did because years ago they did not have these operations.I had a bovine valve in 2010.
Good Luck
Pete
Cristen, I could not resist sharing your pictures and your incredible story with our community across Facebook, Twitter, LinkedIn and my blog. Absooooolutely ...Read more
I often receive the question, "How fast does a heart surgery incision heal?" It's a great question. Unfortunately, I don't have a precise answer considering
Hi Cristen! How are you doing? I'm up on Monday and I'm a ball of nerves...I'm supposed to get the confirmation tomorrow. How has your recovery been so far? ...Read more
Hi Cristen! How are you doing? I'm up on Monday and I'm a ball of nerves...I'm supposed to get the confirmation tomorrow. How has your recovery been so far? Hope all is well:)
Cristen Marzula Hi Amy! Thank you for checking on my progress = ) This past Thursday marked 6 weeks post-op. I had m ... Read more
Cristen Marzula Hi Amy! Thank you for checking on my progress = ) This past Thursday marked 6 weeks post-op. I had my follow-up appointment on Friday with my cardiologist, Dr. Tuzcu of the Cleveland Clinic, and received GREAT echo and EKG results. That's definitely a first for me in 30 years!
My journal is in desperate need of an update - I found it really difficult to keep up with the abundance of communication outlets and just focused on relaxing and recovering. I will admit that the pain the first 3-4 weeks following surgery was definitely a challenge! My appetite also struggled, which effected my initial healing. Around Day 12 I really pushed myself to start eating small meals and snacks every hour.
As my surgeon Dr. Roselli told me, expect to have "bad days," but know that the next day WILL be better. It has been quite the physical, emotional, and spiritual journey! I will definitely keep you and your family in my prayers tomorrow. I hope that you're able to find peace and a moment of calm as you enter the operating room. Wishing you a successful surgery AND recovery.
Hey Cristen! Thanks for the message. Yes, I noticed that our stories are very similar so I've been following your surgery and recovery closely! Hearing how ...Read more
Hey Cristen! Thanks for the message. Yes, I noticed that our stories are very similar so I've been following your surgery and recovery closely! Hearing how good your experience was gives me hope. I hope you're continuing to get stronger and get back to normal. I'll be so glad when this is all over!
Cristen Marzula The greatest advice I received was from my surgeon. Upon our initial consolation, Dr. Roselli made i ... Read more
Cristen Marzula The greatest advice I received was from my surgeon. Upon our initial consolation, Dr. Roselli made it very clear that there will be "bad days" during the recovery process, but to trust that the next day will be better. The other bit of simple, yet informative advice was to "take it slow." It's quite easy to compare our recoveries to other patients. I didn't walk out of the ICU, and I certainly didn't jump on a treadmill 4 weeks post-op! This has definitely been the most physically challenging experience. Celebrate the small accomplishments of each day - it might start with getting out of bed on your own or the first time brushing your teeth. Baby-steps = )
I certainly will be keeping you in my thoughts and prayers! I can't wait until you feel well enough to post about your successful surgery.
Emily Shively Thanks for the advice! I went for my pre op testing this morning, and I'm curious about sonething. Fr ... Read more
Emily Shively Thanks for the advice! I went for my pre op testing this morning, and I'm curious about sonething. From one young heart patient to another - are you always the youngest person in the waiting room? I always am - by far. Even the nurses are always surprised by my age. I guess that's just part of having a bicuspid valve! :)
Cristen Marzula Haha that definitely tends to be our norm ; ) I also had several of the medical staff comment on my ... Read more
Cristen Marzula Haha that definitely tends to be our norm ; ) I also had several of the medical staff comment on my "young age." More now than ever, I feel VERY fortunate that my valve actually lasted 30 years!
I recently saw a young patient wish herself a Happy Birthday, and comment that she was also celebrating her new valve being 14 days old. I love that idea = )
I praise God for your successful surgery and the strength that he has given you , it seem you have a great support group with , My prayers will continue to ...Read more
I praise God for your successful surgery and the strength that he has given you , it seem you have a great support group with , My prayers will continue to be with you and your family , May the blessing of God continue to be upon you . be bless my friend . I miss yah !
Terri Alberta posted a note for Cristen that says:
Hi Cristen, thank you for posting! I have been following you because my son Cole (age 37) is scheduled for surgery with your surgeon Dr. Roselli on Jan 7. ...Read more
Hi Cristen, thank you for posting! I have been following you because my son Cole (age 37) is scheduled for surgery with your surgeon Dr. Roselli on Jan 7. He is going to have his mitral valve repaired and his bicuspid aortic valve repaired or replaced. I am so glad that your surgery went well and you are now home with your family and on the road to recovery. We have not met with Dr. Roselli so it has helped us so much to follow you. Happy New Year! Best, Terri
Cristen Marzula Hi Terri! I'm so happy to hear that my posts have been beneficial for both you and your Son. Prior to ... Read more
Cristen Marzula Hi Terri! I'm so happy to hear that my posts have been beneficial for both you and your Son. Prior to my initial consultation with Dr. Tuzcu (cardiologist), I had already watched Dr. Roselli's white-board discussions on CC's website. (I highly suggest viewing all of Dr. Roselli's videos on YouTube) As soon as Dr. Tuzcu confirmed that I required surgery and would next meet with Dr. Roselli, my anxiety was replaced with excitement. Dr. Roselli was just fantastic! He explained my surgical options, and quickly discussed the pros and cons of each procedure before focussing in detail on the one that would benefit MY lifestyle. Just like watching his videos, Roselli will clearly illustrate his plan for the surgery through a series of drawings. I'm certain that your Son's experience will be as positive as mine. Please feel free to ask me any questions = )
Jim Kelly-Evans Dr. Roselli's videos are wonderful as are the other videos on the CC site.
Hello Cristen! I'm so happy the 2nd surgery went well! I just wanted to let you know that I'm keeping you in my thoughts and prayers! Please let me know if ...Read more
Hello Cristen! I'm so happy the 2nd surgery went well! I just wanted to let you know that I'm keeping you in my thoughts and prayers! Please let me know if you need anything, Happy Holidays to you and your family, your post only is an awesome present! Keep your spirits up and take care. Darby
Hi Cristen, how you doing. You didn't post any other news. Good luck to you Girl.
Cristen Marzula Hi Rafael - I'm 4 days post-op and finally had the energy and focus to post. It was very difficult t ... Read more
Cristen Marzula Hi Rafael - I'm 4 days post-op and finally had the energy and focus to post. It was very difficult to properly communicate for the first 3 days. Thanks for checking in. Recovery is certainly a slow daily process with many baby steps.
Deborah Marcucci posted a note for Cristen that says:
Hello Mimi! I feel like I know you as your mother is your greatest supporter and over the years any conversation with her absolutely must include her babies ...Read more
Hello Mimi! I feel like I know you as your mother is your greatest supporter and over the years any conversation with her absolutely must include her babies -as it should. The power of a praying parent has worked for many years and at some point it is by your faith that God must work. How wonderful via events such as this that we learn that lesson.
Myself and a couple others have come into agreement with your mothers prayers. No need to re-pray for God is not deaf and he expects faith to accompany prayer and it I believe I must ask again for the same thing then where is my faith? So at 11:00 I began to praise God for working through the hospital staff for the wisdom, skills, and compassion he has instilled in them to serve you well.
I cannot imagine the fluctuating emotions at a time like this. You have always been a strong person per your mother's reports and that same strength, positive speech, and perseverance will assist in this leg of your life journey.
I look forward to speaking with your mother after your surgery and hearing of your awesome and beyond normal rate of recovery.
tina fluhrer this is a beautiful post! Faith is accompanying my prayers as I watch my brother recover from valve r ... Read more
tina fluhrer this is a beautiful post! Faith is accompanying my prayers as I watch my brother recover from valve replacement on Monday. I praise God for working through the hospital staff for wisdom skills and compassion he has instilled to serve them well. Beautiful post!
Cristen Marzula My Mommie is an incredible woman who truly loves her "babies." I wouldn't be where I am today withou ... Read more
Cristen Marzula My Mommie is an incredible woman who truly loves her "babies." I wouldn't be where I am today without her! I'm convinced she has a direct connection with the Holy Spirit ; )
Thank you so much Debbie for your kind words and prayers. My mom thinks that I'm going to become this incredible athletic champion on my road to recovery - always my #1 fan! Haha
Happy Holidays and best wishes for a wonderful 2015!
Tammi Gunwall We are are thinking and praying for you both today. You will do great!!! You have so many people out ... Read more
Tammi Gunwall We are are thinking and praying for you both today. You will do great!!! You have so many people out there that love you and are lifting you up in prayer as you enter surgery. Don't worry...God's got this. :)
Tom Bender in KC posted a note for Cristen that says:
Cristen,
My thoughts and prayers to you, your family and surgron. I had the surgery 1 year ago. Had BAV since birth. Got it replaced at age 56. Feel great. ...Read more
Cristen,
My thoughts and prayers to you, your family and surgron. I had the surgery 1 year ago. Had BAV since birth. Got it replaced at age 56. Feel great. Did not have many symptoms. My coworker who steered my to this website had it done 2 years ago in her 20s. God will take care of you.
Prayers to you and the doctors who will be performing this operation!! One thing I do know is your a strong women, your smile and energy is contagious and ...Read more
Prayers to you and the doctors who will be performing this operation!! One thing I do know is your a strong women, your smile and energy is contagious and I know that will carry you through the tough days ahead! Love you girl!!!
Amy DiGiovanni Noack posted a note for Cristen that says:
Sending positive vibes Cristen! All the best to you and your loved ones tomorrow. You'll be on your way to a healthy you in no time:) from one heart sista to ...Read more
Sending positive vibes Cristen! All the best to you and your loved ones tomorrow. You'll be on your way to a healthy you in no time:) from one heart sista to another...God Bless
Thank you for the well wishes! My surgery consisted of a repair to my unicuspid aort ... Read more
Thank you for the well wishes! My surgery consisted of a repair to my unicuspid aortic valve (now bicuspid), and a repair of an ascending aortic aneurysm. My aortic root was and is still healthy.
I didn’t have any major complications post-op. Like most OHS patients, I experienced severe chest pain (muscular and skeletal) during the first 4-5 months of the healing process. Months 5-12 have been intermittent pain that also involves my neck and right shoulder.
I do experience pre-ventricular contractions (PVC) that my surgeon and cardiologist determined as benign. I don’t drink caffeine and rarely drink alcohol in an attempt to avoid PVCs.
Feel free to let me know if you have additional questions = ) Having the support of fellow patients has really helped me through this journey!