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Buffalo, New York,
Severe Aortic Stenosis
The Patient's Guide
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The only thing that is constant is change!Hi All
Something I neglected to post
6 months from discovery to recovery - released back to lifeHi All,
Three Months!Hi everyone
Yes, its true, tropical weather helps recovery!Hi All
March 19 updateGreetings Everyone
Time to Reflect and Count BlessingsI/ll be seeing my family practitioner this morning, For over a week now I have struggled with what I will say to him, and what my expectations realistically should be. I have lived under the diagnosis of Chronic Obstructive Pulmonary Disease for almost a decade - COPD being a descriptor for virtually all chronic repiratory ailments from asthma through tuberculosis. My "murmur" has been known to exist for years, Yet despite annual physicals, the underlying diagnosis of COPD guided the hand of all the health care professionals with whom I had contact. That is until one, John Bell-Thomson. Within moments of our first consult, he advised that I in fact was sufferring from Congestive heart failure and that the condition had existed for quite some time. He referred to my lungs as "wet walls"
Thanks to Adam PickI think it about time that I give a heartfelt thanks to Adam Pick, creator of this journal and author of the companion guide "The Patiemts Guide to Heart Valve Surgery"
Saturday March 5I am absolutely amazed at medical technology and techniques today.
Seventh DayHi Everyone
6 mulesRan over me. So I guess it's a good thing that I can be pretty stubborn to work my way out of this. Because im such a big guy, JBT was unable to do the mini. So, it looks like I have a 12 week recovery. I am going to go home today and take it easy. I will be happy to see friends over the next few weeks because I will certainly need you. That said, if you are sick please stick with phone calls. I'm doing well, just pretty tired. So I am sure everything will be great on the other side.
Anyone for happy hour?I'm back! Lol.
Great news from South Buffalo MercyHello friends and family of Jim,
Last post before the surgeryI have been searching for words all day for this post.
Final ClearanceI have just returned from the surgeons office having learned that I have been cleared for surgery Thursday morning at 730 am. There is something to be said for being the first of the day, yet I admonished them to get a good nites sleep tomorrow and no partying tomorrow night!
Countdown beginsPre-op testing day today. I got a call last eve from a friend in Florida. He expressed at some length his support for me particularly given how "scared" I had to be. His comments made me realize that I am actually oddly calm and at peace about this. Perhaps it's because I know the alternative is to be viewing the world from the wrong side of the garden bed far too soon. Perhaps it is because I just have this sense that I am not finished yet - there is far more to be done before I'll be allowed to exit. Perhaps it's my faith. Whatever the reason I want to assure all that are sharing this journey with me that while I am a bit anxious it is mostly to get it done and be on the other side of it, I am healthy emotionally and mentally as this event draws near. Thanks all for your support, it has been a tremendous contribution for me throughout this trying time.
Decision madeGreetings all
It shouldnt be so difficult..recordsSo, it turns out the cardiologists records clerk failed to send the angio to CCF. The second person I finally talked to said she was in the middle and it would be better if I called the hospital cath lab myself to make sure the CD was sent. You gotta be kidding me! In the middle??? Fortunately, the cath lab was very responsive and called me when the disk was in the package and delivered to their overnight courier desk. We'll see!
Cleveland UpdateWell, CCF finally has all of my records and tests. Originally I was told 5 days to review once they had everything. I had hopes it would be but a few days.
The Venue and Surgeon ChallengeAs I have read about the challenges and trepidation of all the folks that have gone through this before, I think the one thing that jumps off the page is the issue of who to choose and what venue is the very best.
Records to CCFAfter a week and several calls to my cardiologists office records clerks and then supervisor, my echo and angio are finally winging their way to Cleveland. With luck, their eval will be complete in a few days and I can make a final decision on the venue for my surgery.
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