Hi Vickie, I am Linda Dixon, new to the site. I have aortic stenosis and dilated aorta. I notice that you had the same problem. Hope you are feeling well. I think I read that you had both your valve replaced and the aneurysm repaird with a mini incision. Am I correct? I haven't read where anyone else with AV replacement and aneurysm repair was able to not have full sternotomy. I'm waiting on word from Cleveland Clinic for a date to go. It sure would be nice not to have my sternum completely opened. Would appreciate any tips you might have. Merry Christmas!
Hi Vickie. I had my mitral repair April 26. Regarding a small amount of leakage. It depends on what is meant by small. In order for a valve to close, there has to be some back flow to push the leaflets into the closed position. You may want to ask your cardiologist for a quantitative measure so you can place yourself in an evidence-based risk category. -- DVB
Vickie, I am afraid you on your own with the mystery bump, hump, or lump. As a nurse my guess would just be a cyst of some sort. We'll give you a pass on the TMI because you didn't include a photo. :-) I hope you get better quickly.
It doesn't sound heart related. Have you been doing a lot of sitting? If I sit for a long time, one spot near my tailbone gets excruciatingly painful. Could you have bumped it or fallen on it? You definitely need to call your doctor.
Wow, another puzzle, Vickie. I'm having trouble visualizing...maybe that's not the best word to use, but you know what I mean...to understand this. As a bike, the kind you peddle, person, I've experienced some "sit area" things over the years. The last one happened before surgery when I just had to ride, just had to..and did about 35 easy miles, very careful not to get the heart rate up. After the ride I had a kind of linear lump in the area of the ishium, or as I called it on an anatomy test when I couldn't remember "ishium", called it the bicylcle sit bone, which, by the way, I did not get credit for. Anyway, you can understand bicycle sit bone to be where the rear connects to the bicycle seat. I guess the lump was three or four inches long, but it didn't really hurt. I'm guessing, from your description, your lump is not at all near where the heart lung machine may have been connected with your femoral artery, where I still have a lumps six wks after surgery, that seems to be going away, but very slowly...so that's my input...Barry on the mtn in NM
Hi Vickie - I am on 100 MG XL - not so much for my heart rate - but my Blood Pressure is still higher than normal. I am told I may have to stay on them for quite a while. I am a follow up with my cardiologist today - I will let you know what he says. Glad you are doing well.
About Beta Blockers. If Atenolol is one of them, I asked to be taken off at 3 1/2 weeks because they made me dizzy. They recommend tapering off. I'm still on Digoxin which I don't mind since I don't have any side effects, and the cardiologist said at my age it doesn't hurt to have something to help regulate the heartbeat. I'm 72.
You seem to be doing very well. It's not necessary to push it. You're already doing very well, and there is no benefit to acting heroic. Just let your heart heal.
It sounds like you are doing very well for day 23. I can't go back to work for over 3 months from my surgery, so I won't be back to teaching until next school year: too much lifting of students and wheelchairs. Don't overdo it at work. Take it slow.
I had my surgery 8 weeks ago as of tomorrow, and I am still on Toprol XL as well as amiodorone. I hope I can stop taking one or both when I see my cardiologist in mid May.This may not be typical. I had a 2nd hospitalization in mid-March with a bleeding ulcer which put my heart into a fib, which is not happening now but is the reason for the amiodorone.
Continue doing well. It is good to hear from you.
Vickie, sounds like your surgery went as expected with no complications - I like to hear that. We all know about the tubes, but as you say that is something we just have to push through - can't get there from here without going thru. I am so happy for you. I am scheduled for mitral valve repair at CCF in Aug. GOD bless you ..and very appropriate on this Easter Morn, you have been born to a new life. Emilyrae Helfen
I am so glad to hear you are home and doing well. Do be careful about overdoing it. It is easy to do. You do need to let others do things when possible and take it easy. Continued prayers for you.
Wishing you a safe journey in your surgery.These surgeons a top class and do this every day ,so as they say '' Its your life in there hands'' so you must trust them and listen to every word they say.If you do that you will be like me and come out the other side greatful for what they can do.
First I wish you the very best today. May the surgeons hands perform the needed repairs to restore you back to full health.
As I read your journal update, I has s similar issue between my cardiologist who was in Zurich Switzerland and Mayo. Talk about frustrating. I finally had them place it directly in my hands so I could properly assure the surgeon had what he needed. Unbelievable. Glad it finally worked out fo you as well.
Today is my 5th day after surgery. I slept in my own bed and could tell I will be fine. I chose to not take any of my pain meds overnight to get a sense of truth. It is ok, not good, but I am sure each day will be better.
Hi Vickie, My thoughts and prayers are with you tomorrow. You will not be able to rest tonight but that's okay because you'll have plenty of time to sleep. Within a day you will be up and at em'. I am at 6 weeks tomorrow and feel like I could be doing so much more but was told not to rush it I'm pushing myself too hard. Listen listen and listen to the dr. your body will tell you. Everyone here is so wonderful to talk to. they have helped me so much so don't be afraid to ask questions or just vent to us, that's why we are here. Well Good luck tomorrow and hope to hear from you soon with your wonderful updates that your ready to run a mile, lol
I had a temporary crown put in last summer and set an appointment to have the work done in a couple of weeks, but sudden need for heart surgery intervened. I still have the temporary crown. It works fine and is in no danger of causing problems. So I think yours will be OK for a long time.
You do know about pre-medicating before dental appointments, don't you? I wouldn't worry so much about the germs in the dentist's office as I would about sitting in that chair and getting tense while any drilling or cleaning was going on. My cardiologist recommended that I wait 6 months to go back to the dentist because of that tensing--gripping the arms of the chair can make the incision hurt.
Blessings to you and best of luck.
Typically you have to get all teeth corrections completed before surgery and a dental clearance signed by your dentist. I have read on here about folks having to get root canals and more before surgery. My guess is you will be required to get everything complted asap.
I am so happy to hear your great news. A shorter recovery time is a definite plus. I am so glad you are please with your surgeon. You continue to be in my prayers as you prepare for this life-changing surgery. All my best to you.
Over 3 hours when I had been told I would get a call if he was running at all late from surgery. Someone else came in right after me and waited the 3 plus he had to go do a cath right after seeing me!! I understand surgeons have emergencies but this was ridiculous. When I arrived and heard he was then running 1 hour late, I suggested rescheduling but hour after hour his office staff said "just a while longer". He was very nice and I am sure an excellent surgeon but the disorganization bothered me too much. I waited for the surgeon I chose about 30 minutes. Best wishes, good luck!
You are probably your best advocate. Listen well to those suggesting 2nd (3rd) opinions. Research and ask the surgeons about optional methods available for your surgery that may be suitable for your unique condition. Patience with waiting at apt is good. My experience...local docs would have sawed my sternum for valve repair; local docs would/did not offer advice on other options. I would not have known I was a candidate for minimally invasive to include robotic if I had not sought those opinions on my own. What a difference it makes. Cleveland Clinic is obviously not the only game there is, so to speak, but I will say you can't go wrong by calling there and asking about their opinions. Barry Stone...from the mtn in NM
I think I waited an hour or a little more the first time to see my surgeon. I was told that he was taking extra time to answer questions for other people with surgeries coming up. When he got to me, he also took as much time as I needed. Sometimes emergencies come up, too. I hope you don't have to wait much longer.
Surely you're going to interview other surgeons, aren't you? This one doesn't sound too promising. Or perhaps it's the cardiologist who isn't providing the information. Be assured, though, that the numbers certainly give the surgeon sufficient information. I doubt that every surgeon sits there going through hours of DVDs when he can get enough information from the numbers sent to him. Also, my cardiologist said that the TEE is the least useful of all the tests. He told me, when I asked him why they didn't do one for me, that the TEE results are frequently so at odds with the other test results and what they find in surgery, that most cardiologists are not wasting time and money on them. It isn't necessary to have every single test to determine if you need heart surgery. The cath usually provides more than enought information.
Please do get consult a second surgeon. It's done all the time and is your right. You don't have to go the the first surgeon your cardiologist suggests.
My surgeon hadn't yet looked at my echo when we met for the first time either. And I hadn't had my cath or CT scan yet. But the report from the echo was enough to have a general and meaningful conversation about the surgery. Believe me, this won't be the last tine you speak to you surgeon. I have mine on speed dial and we have already exchanged several emails. That said, you are right to drive the process and demand accountability.
I am glad you will finally meet with your surgeon. That means you are getting closer to surgery and feeling much better. When I met with my surgeon, he did speak about having looked at my echo and that it showed he might be able to repair my valve (which he was able to do). If I remember correctly, he had not yet looked at the heart cath CD, but I know the nurse had it in my file the day I was there.
I hope you feel free to ask as many questions as you have. This is your body. Don't be shy about making requests. I requested to listen to my relaxation and surgery CD's on MP3 during surgery and for the surgeon to say healing statements, as suggested in Peggy Huddleston's book. He agreed (as did the anesthesiologist on pre-op day). I am glad now that I was not too shy to ask. You should be able to meet with your surgeon and anesthesiologist, and many other people, on your pre-op day, so you will have another chance to ask last minute questions, if your surgery center operates in the same manner as mine did. I will be thinking about you and keep you in my prayers.
Hi Vickie, can't say I love my system, but it's the only one I've got. They do 9 ops a week at the St B and there were 155 people ahead of me when I was listed. The math is pretty simple after that. So we don't have "hard" dates, but we have general timelines once we're listed.
I have perfect peace from the Prince of Peace and I am blessed.
HI Vickie...test results were good. No blockage, bicuspid valve is working pristine...cardiologist says not to replace, just fix the aneurysm. I need to talke with surgeon to see what he says. Thanks for writing.
I an 54 and have a bicuspid aortic valve that was leaking in the moderate to severe category, as of Dec,. and had developed an aneurysm in the aortic root with a small amount of heart enlargement. I saw my heart surgeon on Feb. 7, and my surgery was scheduled for Feb. 25. Due to an emergency, my surgery actually took place on Feb. 28. I got along very well, and went home 5 days after surgery. My surgeon was able to repair my aortic valve and removed the aneurysm and replaced that section. If repair had not been possible, I would have received a pig valve. I am feeling much better. I had a little setback due to an ulcer that caused some bleeding, so be sure to watch out for any signs of internal bleeding in your stool when they add the blood thinning meds. I don't think that most people have that complication. I just didn't know the signs and let it go too far. I am home again and feeling better and am continuing on the wonderful road to recovery. By the way, I had my heart cath. on Jan. 11 and did not need another one.
I wish you the very best with your upcoming surgery. You will be in my thoughts and prayers. You will recover sooner than you think. Just continue to take it easy and take very good care of yourself and let others take care of you, too. I know that it is difficult in the weeks before surgery, because you don't feel well and cannot do what you would like to do. That will change after your surgery and recovery. Take the time to recuperate.
Hi Vickie, I was born with same exact thing. ..I;m 56. Now I have an Aortic Anureysem, as well. This coming Monday I'm having a Cath and TEE in preparation for surgery 5 April..Please keep in touch and God Bless.
Hi Vickie, thanks for posting me. In Canada we don't worry about things like insurance hassles, It's all about waiting. We don't get op dates here. We are told the Friday of the day to come in on the following week. I got permanent peace when I gave up on the system and placed my life in God's hands. That doesn't mean life instantly becomes a slice.I am thankful for our health system, frustrating as it is. It's the diference between stayin' and leavin' as I don't have 150 grand for arbitrary surg to ditch to the US.
As you prepare for your meeting with your surgeon, make sure with your cardiologists office that all complete records are transferred. The 7-10 days before the appointment touch base with the surgeons office and confirm they have everything. If they are missing anything at that point, go pick it up yourself and carry it with you to the appointment.
Have you had a TEE (Transesphaugeal Echo) yet? It is a standard valve preop test requirement. It should pretty much clear up if you have the anuerysm or not.
I did not personally meet my surgeon until the day before the actual surgery. but he had reviewed my records and confirmed my cardiloogists assessment and thus scheduled the surgery. From the time he reviewed my records until the actual surgery was 7 weeks.
Same diagnosis as you!!! I had my angoigram done on Dec.20th in anticipaction of my surgery on Jan.11th. Yes, bruising was there but little or no pain. My surgery actually took place on Jan.13th. My surgeon requested a CT scan in between the 2 two to check on the aneurysm which was done inconjunction with the valve replacement. Looking forward to hearing more about you!!
My surgeon did not do another cardiac cath. I was bruised for awhile, not pretty.
The length of time between visiting the surgeon and surgery varies greatly. The first surgeon I saw was ready to do the surgery immediately. The surgeon I used was a top guy at MA Gen Hosp. so I had to wait a month. It really depends on your situation.
The waiting in the begining is definitely hard. But in my case, it was worth it.
I definitely learned alot about patience!
hi vickie. i had my surgery within 2 weeks of meeting my surgeon. i was glad i didnt have much longer to think about it.im in new jersey and im 2 years post op at 48 yrs old. my email is firstname.lastname@example.org if you have any questions, feel free !
I met with a couple of surgeons in September to decide which to go with. They each told me it wasn't an emergency but I should have the surgery (a mitral valve repair) within about three months. So I had the surgery on January 18.
I had a cardiac cath at the end of June as part of the diagnostics to determine if I needed surgery. I did not have another after that.
I am four weeks postop now and doing fine. I hope this helps.
I met with my surgeon in November. At that time he said it was not an emergency but suggested I have it done within 3 months. We were lucky enough to go home, look at a calendar and find a time convenient for both of us. I called the office, told them which week we wanted and they called back with a January 13.
I had my cath the day before in the hospital and stayed overnight, so I cannot answer that question.
Susan in NJ
Here's my schedule:
Stress test every year after turning 65. A murmur I'd had most of my life got louder each year. Diagnosis: aortic stenosis
Sept 9, 2010, flunked stress test.
Sept 16, Cardiac Cath
Sept 21. Met surgeon.
Sept 24. Had surgery. (no time to get too nervous!!)
I don't think they do caths twice. They just don't change that much in a short period of time.