Good Morning, Sunny,
We have been praying for you and trusting the Lord for your care. It's good to hear from you and learn you are making progress. We are looking forward to seeing you this next Sunday. We hope you will be at home in that fancy recliner. Let us know if there is anything we can do. Love, Sue and Rod
Hi Sunny - we have been incommunicado at a seminar in Seattle since Tuesday and just now catching up with email and your status. So glad to hear of your good progress. Hope you are home by the time you see this. Love, Marilyn and Tommy
I was wondering how you were doing. Sounds like you have had quite a time of it. Hang in there, you have come a long way, but there is still a lot to accomplish in the weeks to come. Things will get better.
Kerry, Tracy, Sunny and Doug and all family, Praising God for His love, care and grace to your wife and mother during her journey to health!! We continue to pray for each of you as you support, help and love her at OHSU. May God continue to protect the health of you all. Praying for doctors, nurses, lab workers and all techs helping to find the answers. Much LOVE, Sue Coffin
Sunny, tell your friend who is bringing the tiara for 'Doug's queen' that if she ran across a king's crown maybe it would the your lead surgeon! Want to see a picture of you with the tiara in the hospital for sure.
Sunny and her dear family,
Kerry thank you so much for posting the updates.
Praising God for his wonderful plan for her surgery, her surgery team and His plan for her life.
Sunny you are continue be in my prayers hourly during this time of recovery. We are praying for no complications, no infection, easing of the pain level and return of energy. May you continue to feel the hand of God on your body and life on this journey to wellness. YOU are loved. Sue (Oregon)
Such wonderful news from Kerry this morning. I was concerned last night when there wasn't any news on the site but slept with a prayer for you on my lips. Hope you are feeling much better this morning. Tell them you want a dark chocolate sundae with whipped cream and a cherry for breakfast. Love, Marilyn
Sunny, My dear , dear friend and sister in Christ Jesus.
You have been in my prayers, thoughts and heart throughout today. Lifting you surgery team to the Father.
Tracey, Kerrie and family you also are my prayers and thoughts. Praising God for your love and support to your mother. Give your dad a hug also. Sue Coffin
Good morning dear friend, Thank you for this site, it is you and so good for us to hear the updates w/out phoning you. You are on my heart and in my prayers and in God's hand which is the best place to be. I love your family team a good support system.
THANK YOU FOR SENDING ME YOUR JOURNAL.I HOPE YOUR KEEPING MIKE BUSY. I TOLD HIM YOUR GOING TO OREGON BRING SOME WARM CLOTHES. AT NIGHT I PRAY TO CLOSE MY BRAIN DOWN AND NO MORE THINKING TILL TOMORROW. IT HAS WORKED FOR ME FOR A LONG TIME NOW, WITH GOING TO SLEEP FASTER AND COMPLETE REST. TRY IT YOU CAN'T LOOSE. I AM TAPPING EVERY DAY FOR YOU. I WILL TAP FOR THE FEAR OF BEING HELD DOWN. YOUR ALWAYS IN MY PRAYERS.
Happy to help with the sleeplessness Sunny! And thanks for the hugs! I used to keep myself up at all hours over crazy baloney until I learned that trick. Of course now being an OHS survivor/warrior not much can phase me anymore. -- DVB
I liked your journal post today. It is good to see you are doing better. There is a lot to deal with, but you seem to be doing well.
I am pretty much set for my surgery tomorrow. Kind of running out of time to do much else now, but I think I have most everything ready and will finish up this evening. I will be staying with my son afterwards, so it is a bit of a challenge getting set up in his place. But it is much closer to the hospital and doctors, etc. so it should work out much better.
Well my surgery is TWO DAYS ahead of yours!
I KNOW how you feel! Plus I am in the "have no idea" stage on what valve to go with! Tissue or Mechanical! The good news about this is that I think it is masking the fear I have for surgery.
The good news? The numbers on this surgery are surprising! A TON of people have this each YEAR! It's like the "littlest/big surgery you have never heard of"!
I read posts of other people who say it's not that bad! I think we ALL know we are in for pain, but with the expectation there WILL be pain, we can mentally prepare for that. It's the punch you never see coming that hurts you the most.
At this point, have faith. Know that a hospitals #1 concern over your life is your comfort level!
I bought the book on this web site for the "enhance your recovery" portion alone! I have not read it yet, but plan to SOON!
Keep your head up and eyes open and I bet you will do fine....
I read your note in my guest book and decided to look you up. It does sound like we have similar issues.
I understand being nervous about the surgery. I figure that if it is not done, my condition will only get worse due to the Mitral Valve Regurgitation, which is contributing to the A-Fib and will eventually do other damage. Therefore, although there will be difficult times, I feel the long term benefits will make it worthwhile. Especially as I also enjoy ballroom dancing and have competed several times with my instructor and want to continue to do so. I will get around to posting some of those pictures.
Heart disease is a genetic issue in my family; but mostly due to blocked arteries, but also due to A-Fib, I don't know anyone else in the family with valve issues though, but there probably are/were. Anyway, I have seen several family members go through bypass surgery and do well afterwards, one even had to have a temporary pump in place until his heart could carry the load after the surgery; I thought that was amazing at the time, still is actually. We have gotten to call the scar the Family Crest.
In regards to the recliner, I was fortunate in that a friend at work loaned me one he had. He had used it after his bypass surgery.
I just read your journal. I had my aortic valve replaced in May 2010 at the Cleveland Clinic.
I live in South Carolina and when I was going through the testing to figure out what was wrong, I found my doctors here weren't nearly as advanced in their analysis as the doctors in the major heart centers. For example, my cardiologist said I should get a mechanical valve because all people younger than 60 should get mechanical valves because the bio-valves only last 5-8 years so I would need several replacements during my lifetime if I got a bio-valve. That thinking is WAY out of date.
I don't know anything about Salem, but from reading other journals by people living outside major metro areas together with my own experience, you might get a completely different story about your surgical options if you go to a major heart center rather than stay in Salem. One thing I figured out pretty quickly, is that I needed to get out of my small city and go to Cleveland (or somewhere similar) to get the best care and I'm glad I did just that.
Just noticed you replied to my note awhile ago. I have a moderate to severely leaky prolapsed mitral valve, a moderately leaky tricuspid valve and a mildly leaky aortic valve. Cleveland will be repairing the mitral and tricuspid valves....said the aortic valve wasn't bad enough to do anything with. I was told ( in Cleveland) that when your mitral valve gets bad enough, it puts pressure on the tricuspid valve and then that one starts to go.
This is Terri Kersey, Kent's wife. I just wanted you to know that my friend's father had aortic valve replacement done by Jeffrey Swanson who I believe is at St. Vincent's in Portland. He is mentioned on Adam's surgeon list. They were very pleased with him.
Also, when Kent had his pacemaker put in, Dr. E. wasn't available, so Dr. Patel was the surgeon for that. He was really great as well. Best wishes as you try to get some definite answers for treatment.
Dr. Wasenmiller was my cardiologist. However, I've switched over to Dr. Krishnamurthy who is in the same office. My wife and I are much happier with Dr. K. I think Dr. W is pretty much on his way out and Dr. K just seems to be much more responsive and plugged into my case.
You didn't find me because I'm not on there yet. I am having surgery in October on two valves (maybe three), but I haven't started a journal yet. I just keep reading everyone elses! I am going to the Cleveland Clinic to have mine done (live in Wisconsin) because they do more of them than anywhere else. I met with a surgeon there who was extremely kind and confident ( Dr. Gillinov), and I am feeling much less anxious since talking to him. Still not real excited about getting my chest sawed open, but I know I have to deal with it. I probably won't start a journal til a week or two before surgery.
I don't know if you've read Adam Pick's book on valve surgery, but he lists some of the top valve surgeons in the country. One of them is in Orgegon....Dr. Jeffrey Swanson....not sure where though. If you haven't read Adam's book, you might want to get it. It has a lot of good info. I was terrified until I found a doctor I liked and felt comfortable with. My outlook has improved since I found one. Good Luck!
I like to use healthgrades.com and vitals.com to find surgeons in my area. After I find someone interesting I'll just do a search by their name in yahoo or google to see if anything good comes up about them.
I was able to find someone in Portland that might be worth checking on. Here's a link to the article from the Legacy hospital
You might have to cut and paste that into your browser address bar. But his name was Dr. Andrew Tsen and it looks like they have the robotic surgery and also do the Maze procedure.
I'll be thinking about you and praying for a successful procedure. I found Adam Pick's book and this website to be a Godsend for me during my surgery last month. Hopefully someone else from Portland will give you some more insight!