Joanie, You'll be home very soon. It's good to hear that you have a positive attitude. I ended up staying at the hospital two days longer than what it initially appeared to be probable (discharged on Mon., six days after surgery the preceding Tues.). I also had low magnesium, and was given magnesium shots, which strangely really hurt (shots never bother me ... but this was different).
- Jim Smith
Joanie, hopefully you will go home today, glad you are doing so well, keep up those walks and keep taking those deep breaths, but pay attention to your body! It is hard the first week, but you are strong and you can do it! Thinking of you
Thinking of you! I know you will do fine, stay strong and take it one hour at a time, before you know it you will be on the other side of the mountain! Praying for you tonight and tomorrow and looking forward to reading your updates!
Joanie, you definitely are not alone now. We HVJ "valvers" are here for you. You will be in my prayers tomorrow and I look forward to hearing you are fixed and on the way to recovery. Keep us updated on your progress!
Linda Dixon, AVR 3/13/12
Good luck! I will be praying for you. When my daughter was born, there were no groups here in my area also. I helped start two local groups for parents of children with congenital heart disease. We had guest speakers and great support. In fact, I am still good friends with a woman I met in the group 23 years ago. Before this, I did feel all alone and helpless. When I was diagnosed with Mitral Valve problems, I was so very thankful that Adam started this site, and wrote his book. It was a tremendous source of knowledge and support. Again, the very best of luck to you. Prayers are being sent to you.
Joanie, this is a great place for support and questions, so many people going through the same things, and able to share them together. Friends and family sometimes just don't "get" how we are feeling and our insecurities!! I'll keep you in my prayers as you go through this next week. You will do great!
Welcome to HVJ. I had mitral valve repair on 3/2/10 , and am doing great. I was surprised to see you had TOF. I have not seen that on here, and my daughter was born with it in 1986...corrected in 1988.We too thought it was cured but were just informed her pulmonary valve is leaking and must be repaired in the near future. What type of valve are you getting, and is your surgeon experienced in CHD? Any info you can share would be helpful, and if I can help you in anyway please ask.
Joanie, I think you will do fine. I am 63 yrs young, lol and a widow. When I came home my daughter stayed the first night with me and then I was on my own! She brought me meals for a couple of weeks and I had cereal, bagels, fruit and the like for breakfast. I had most of the necessities within reach. I'm sure you will do just as well.
Hi Joanie, welcome to the HVJ site!
You will find lots of support and encouragement here. I quickly became addicted to the site last fall when I heard those words "it's time". I had aortic valve replacement in March. I did very well with the surgery and I'm sure you will as well. Take advantage of the site, if you have questions, put them out there. I think in some respects...open heart surgery is open heart surgery...regardless of which valve is being "fixed" or replaced. One thing for sure, we all have our moments of apprehension and down right fear...so we understand when others may not. So, my HVJ friend...welcome and keep us posted as you "climb this mountain"!