Susan's Posts

Diagnosis: Aortic Regurgitation

Member Since: October 12, 2020

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Susan Nichols posted a photo
5 years ago (October 12, 2020)
👍 Rose Madura and Darrin Vohs reacted to this
Susan Nichols posted a photo
5 years ago (October 12, 2020)
Susan Nichols posted an update
5 years ago (October 12, 2020)
Hi everyone, I am the wife of Adam Nichols who is 40 years old and diagnosed with aortic valve insufficiency. There is also something else contributing to the regurgitation that is possibly a small sinus of the valsalva aneurysm or a fistula/communication between the aorta and the left ventricle. Possibly... Read more.
5 years ago (October 13, 2020)
Hello and welcome! I know it's not the type of "club" anyone wants to be in, but always so grateful for this supportive community. Making decisions about where and what type of valve, procedure are always so hard. So many times I just wished someone would do it for me.... Read more.
5 years ago (October 13, 2020)
Welcome, Susan! You'll know more about your husband's condition after the TEE. Most of us advise consulting with surgeons who do a high volume of the heart procedure that's is necessary. While approaches in heart surgery have greatly improved over the years, there's no substitute for experience. To Shannon's point,... Read more.
5 years ago (October 13, 2020)
I would definitely consult the Cleveland Clinic. High volume with great results. I think it is safe to say they have seen it all.
5 years ago (October 16, 2020)
Hi Susan, I think that additional consultation is always a good idea. And I agree with John the Cleveland Clinic would probably be the place in your region to do so. However, if you feel comfortable with both surgeons as you have stated, I think having too many cooks in... Read more.
5 years ago (October 16, 2020)
Your husband has a good person on his team with you as his helping spouse, I am sure what ever doctor you choose will be great. Most doctors in this field are incredible and I am sure your choice will be a great one.
5 years ago (October 25, 2020)
Thanks all for your support. We (my husband mainly) felt God was very much leading us to Franciscan Health in Indianapolis. Dr. Gerdisch, his staff, the nurses...I have been blown away. Although other hospitals may do more, we have received such compassionate care while being there. And, best of all,... Read more.

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