Ruth Rosenberg - Heart Valve Journal

My Journal

942 days ago

Feeling a little alone because I have yet to talk to someone who had what I have. I had a resection of a subaortic membrane 8 years ago and now I have to redo ...Read more

Feeling a little alone because I have yet to talk to someone who had what I have. I had a resection of a subaortic membrane 8 years ago and now I have to redo it because it grew back

Susan Lynn Ruth - I'm sorry to hear that you're facing another procedure so soon. We have many heart warriors w ... Read more

Susan Lynn Ruth - I'm sorry to hear that you're facing another procedure so soon. We have many heart warriors who have had multiple surgeries and I hope they'll answer your question. But, remember, medicine has advanced in the last 8 years, so there's every reason to believe that this experience will be even better than your last. Think positively! You'll do just fine. ❤

Ruth Rosenberg Thank you for your warm wishes

Ruth Rosenbergposted an update

942 days ago

Getting closer to surgery date,just wanted to hear from people who had to reoperate, if the second time is harder to recover from.

Ruth Rosenbergposted an update

965 days ago

Scott Kinghorn reacted to this

I just scheduled a reoperation for October 7th to remove a subaortic membrane. My first one was done almost 8 years ago, in mount sinai .now I am going to ...Read more

I just scheduled a reoperation for October 7th to remove a subaortic membrane. My first one was done almost 8 years ago, in mount sinai .now I am going to mayo clinic in Rochester,minnesota with Dr dearani. This site provided me with a lot of insight of what to expect and many good wishes. I am freaking out a little with the thought of doing it again, and trying not to think about what if it comes back another time.

Ruth Rosenbergposted a journal

1074 days ago

Is there anyone who has had to do a resection of their subaortic membrane a second time? I had one done in 2013 and now they want me to do another one. I am ...Read more

Is there anyone who has had to do a resection of their subaortic membrane a second time? I had one done in 2013 and now they want me to do another one. I am afraid of it coming back again in a few years.

Shannon Gray Hi! Would this be another aortic dilation?

Ruth Rosenberg No it's a resection of the membrane

Ruth Rosenbergposted a journal

2656 days ago

I just got back from the dr. Having found out that my subaortic membrane is back. I had a resection in 2013 and my peak gradient post exercise is 60 mmHG lvot ...Read more

I just got back from the dr. Having found out that my subaortic membrane is back. I had a resection in 2013 and my peak gradient post exercise is 60 mmHG lvot does anyone have experience with subaortic membrane in adults. Mine was discovered at age 47 I am now 51. I am worried about having to reoperate. First they are sending me for a tee which I had last time and it was not a good experience to say the least.

Steve Farthing Maybe they can adjust the meds during the TEE if you let them know the problem in advance? Did they ... Read more

Steve Farthing Maybe they can adjust the meds during the TEE if you let them know the problem in advance? Did they mention a transcatheter balloon dilation option to correct the stenosis from the membrane?

Ruth Rosenberg No. they did not mention a balloon dilation is that an option?they did mention adjusting the mess for ... Read more

Ruth Rosenberg No. they did not mention a balloon dilation is that an option?they did mention adjusting the mess for tee.

Steve Farthing In some scenarios, baloon dilation can be an alternative according to this study: https://www.ncbi.nl ... Read more

Steve Farthing In some scenarios, baloon dilation can be an alternative according to this study: https://www.ncbi.nlm.nih.gov/pubmed/21875907
Also surgical options might include smaller incision mini-sternotomy or mini-thoracotomy methods (since you didn't mention any need to fix blocked arteries).