Matthew's Posts

Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve

Member Since: June 19, 2026

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Matthew Holt posted an update
45 minutes ago (August 16, 2026)
I wrote up my entire journey thus far (and I haven't quite made my final decision public but coming soon) and put it on my blog. It's long (in 5 parts) but here's the first one. Sadly due to spam you can't comment on my blog but you can here... Read more.
Matthew Holt posted an update
2 weeks ago (August 1, 2026)
OK, to recap I am a now 63 year old male. Completely asymptomatic with bicuspid valve and discovered last year that I had severe aortic stenosis. My team at UCSF doesn't want to give me a TAVR and is keenly trying to get me to have a SAVR. I'm now... Read more.
2 weeks ago (August 1, 2026)
I had a full sternotomy for a (bicuspid valve) replacement with ascending aneurysm and root aneurysm repair at age 63.. The first 2 weeks were the roughest, but thankfully, I had no complications. I started rehab at 3 weeks, and did return to work part time at 8 weeks. I... Read more.
2 weeks ago (August 2, 2026)
Hi Matthew I have similar story, with bicuspid aortic valve that progressed to severe in a few years. I am 66 now, and just had SAVR July 9, 2026. I went for several opinions, and all recommended a tissue valve via SAVR. They all agreed that I will eventually need... Read more.
1 week ago (August 6, 2026)
Maggie, what was the entry point? Sternotomy?
1 week ago (August 6, 2026)
Hi Matthew I small incision on my chest. I guess it’s called a mini. It starts about three inches below my neck and goes about 3-5 inches. Not bad at all compared to what I envisioned. I think I’ll be able to wear a blouse and it won’t show. All... Read more.
Matthew Holt posted an update
4 weeks ago (July 16, 2026)
62/3 male. Completely asymptomatic with bicuspid valve and discovered last year that I had severe aortic stenosis. My team at UCSF doesn't want to give me a TAVR and is keenly trying to get me to have a SAVR. I'm looking into the BELIEEVERS trial at Cedars, OHS via the... Read more.
❤️ Kate Griffith reacted to this
4 weeks ago (July 17, 2026)
Mathew, Like you I had BAV with severe stenosis and was asymptomatic. We were pretty much the same age. I had the valve replaced via a mini (through the ribs) by Dr. Gaca (Duke). This was not a robotic surgery. My recovery was great. I was out of the hospital... Read more.
3 weeks ago (July 20, 2026)
Dan, thanks so much. What was the level of pain like say 3-4 weeks post surgery, and how long before you were back to driving and other activities, including exercise? And what was the main reason people on this group steered you away from TAVR? Matthew
3 weeks ago (July 23, 2026)
Mathew, Pain was manageable, never took an opioid only use Tylenol and Aleve. Each are process by different parts of the body. the level of pain 3 to 4 weeks after surgery was a none issue. I went 4 hours on a tread mill at 2.5 MPH with in six... Read more.
2 weeks ago (August 1, 2026)
Dan -- I was comprehensively talked out of a TAVR today by cardiologist Dr Yeung at Stanford. Dr Le the surgeon actually told me that I can wait till I am symptomatic BUT I also need shoulder and knee surgery sooner rather than later so probably wont. He also told... Read more.
1 week ago (August 6, 2026)
Minis are the way to go, it could be two weeks but I did not need to drive so I did not push the issue.

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