Mark's Posts

Diagnosis: Aortic Regurgitation, Bicuspid Aortic Valve

Member Since: August 31, 2016

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Mark Jones posted an update
9 years ago (August 31, 2016)
This is an excellent website. I am 56 years old and been diagnosed with a bicuspid aortic valve with moderate regurgitation and mildly dilated ascending aorta. My cardiologist has advised that the heart is currently doing a pretty good job in dealing with the extra load, but that I am... Read more.
You are on this website which is one of the main things that helped me! That along with reading Adam Pick's book on what to expect with heart valve surgery. It has just about everything you need to know about heart valve surgery and getting through all the stages of... Read more.
Very good counsel Amy. Like you I'm someone who wants more rather than less information about what to expect, risks, outcomes and most importantly my desire to get back to some semblance of normality post operation (whenever that might be). Timing of my operation is not clear. I get reassessed... Read more.
Hey Mark. Like you I'm 50 was born with BAV and AS. At 10yrs old had aorta repair surgery. Was told that someday may need valve. But 10 your more conserned with baseball, cars and girls are starting to be kinda cool. Lol. So jump 40 yrs and feeling great... Read more.
Also on the up side... chics dig scares ! At least thats what I tell myself.... hahaha. But I do have beautiful wife of 26 yrs to back me on that .....
I think a lot of people's anxiety comes from a fear of mortality. I had a bit of that. I am a stats person so I researched a ton and found that the stats are in your favor for BAV replacement. It seemed that if you had a mildly competent... Read more.
I did tons of research, read Adam's book, and was able to find acceptance of my condition before I even talked to a surgeon about the possibility of surgery. It was 10 weeks until I could get a consult appointment and then 6 weeks after that for surgery. The worst... Read more.
I was born with BAV and had an ascending aortic aneurysm and knew that some day I would need surgery. When my cardiologist said it was getting worse about two years ago, I started researching surgeons and hospitals. I found Dr. Deeb at U of M Hospital who has done... Read more.
Mark. I take anxiety meds anyway. So, I did all the research, read Adams book, use this web site...... And ultimately upped my meds temporarily and then weaned back down when I got home. Welcome!! ❤️Best Regards
Mark, depending on your insurance, you can make an appointment to see a heart surgeon before your cardiologist refers you. You need a PPO. I did a bunch of research (PubMed if you are willing to dig through the medical terminology) about the pros and cons of early surgery, and... Read more.

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