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Member Since: August 15, 2019

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Gina G posted an update

4 years ago (April 5, 2022)

Hi everyone! I'm 2.5 years post isolated tricuspid valve replacement surgery (done at age 44 for a congenital defect), now very unfortunately with this Edwards LifeSciences bioprosthetic valve failing. I'm looking to get my Covid booster as I'm 6 mos out from my last (those three all Pfizer). It's been... Read more.

Rose Madura

4 years ago (April 5, 2022)

I'm sorry you have to have another surgery. I'm no expert on the vaccines but suggest you discuss with your doctors if you haven't already.

Gina G

4 years ago (April 6, 2022)

Thank you, Rose. My doctors won't actually give me an opinion on the vaccines, which is very frustrating. A nurse at the cardiologist's office who handles my Coumadin (not my congenital cardiologist) recommended mixing them up, however.

Gina G posted an update

6 years ago (December 17, 2019)

Hello everyone! New here (and not happy to be part of the OHS club) but I am grateful this site exists. I'm in my mid-40s and am 3-mos post-op isolated tricuspid valve replacement for a congenital problem (a variant of Ebstein's anomaly), severe TR and right ventricular enlargement. My surgery... Read more.

Anonymous

6 years ago (December 17, 2019)

Hi Gina, no I didn't have minimally invasive, I had the big one three weeks ago today. I am also very grateful that I survived the surgery and I am in the recovery stage no matter how difficult it might get. Hang in there and strong in the faith and... Read more.

Rita Savelis

6 years ago (December 18, 2019)

Minimally invasive (which I didn't have) can leave one with as much discomfort as OHS, especially as a woman when the entrance is through your breast. Surgery can go perfectly well, but one can be still left with much discomfort to deal with, which does eventually pass. Please let your... Read more.

Gina G

6 years ago (December 18, 2019)

Thank you so much, Ana. I'm glad you're on the other side now also. Wishing you a speedy and full recovery.

Gina G

6 years ago (December 18, 2019)

Thank you very much, Rita. It's definitely true about the discomfort unfortunately. My surgery was done out of state and correspondence with them hasn't gone all that well; they told me after the fact that everyone is different and it takes time. I wish I had been informed of all... Read more.

Catie B

6 years ago (December 19, 2019)

I'm very sorry for your suffering as nerve pain is very uncomfortable. And I hope that the issues can and will resolve before long. I am so sorry, too, for the long distance communication issues. My surgery was aortic and open, but afterward I struggled with a number of orthopedic... Read more.

Rita Savelis

6 years ago (December 19, 2019)

I also wish I had known more about possible side-effects pre-surgery.... but ultimately one can't know which ones one will get. Most are "normal" reactions to major trauma on our hearts, bodies and minds. We expected to be fixed and feel better faster than we do/did. It's hard. I hear... Read more.

Gina G

6 years ago (December 19, 2019)

Thanks so much for the support and good wishes, Catie and Rita. It's incredible the "odd" side effects both physically and mentally that can occur after OHS, resulting from the trauma to our heart, the bypass machine, etc. One day at a time, right?! Hoping and praying for the best... Read more.

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