Erin's Posts

Diagnosis: Aortic Stenosis, Tricuspid Regurgitation, Coronary Artery Disease

Member Since: April 14, 2019

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Erin Cummings posted an update
1 year ago (October 2, 2024)
Can anyone recommend a good company for home INR monitoring? I've been using the same one for many years, and they are just awful. Zero customer service. I've been trying to update my machine for one with Bluetooth capabilities and can never get a live person on the phone to... Read more.
1 year ago (October 2, 2024)
My acquaintances use lindcare and we live in massachusetts. Getting live people on the phone in 2024 can be a problem with many big companies even when you finally get someone on the line the incompetence can be amazing. I usually mumble something like " thankfully they are at least... Read more.
1 year ago (October 2, 2024)
Richard is right! If at all possible, I always message any of my healthcare team in the "my chart" to ask any questions and for referrals, tests, etc. I get an answer more quickly and do not have to go through the 100 questions and "press this # to cennect... Read more.
Erin Cummings posted an update
3 years ago (June 30, 2023)
Has anyone here had a heart and/or lung transplant because of a previous history of radiation therapy?
❤️ Susan Lynn reacted to this
3 years ago (July 1, 2023)
Erin - We have had many folks who have had heart surgeries as a result of prior cancer treatment. I'm not sure if I've seen heart or lung transplants, but definitely valve repairs and replacements. I'm glad that there's a great resource for cancer survivors and that many have found... Read more.
Erin Cummings posted an update
4 years ago (October 5, 2021)
I was accepted into a tricuspid repair trial at Mass. General Hospital and am scheduled for the procedure this coming Friday, October 8th. It is the "Edwards PASCAL Trans-catheter Valve Repair Pivitol Clinical Trial (CLASP II TR)"". Has anyone out there had this? I am a long-term Hodgkin Lymphoma survivor... Read more.
👍 Holly Wale reacted to this
4 years ago (October 6, 2021)
Erin, I'm always excited to see your posts. You give me hope. I have never had this procedure, but I am a long-term Hodgkin's Lymphoma survivor as well. I'm very thankful you were accepted into the trial. You run through my mind quite often, and I for sure will be... Read more.
4 years ago (October 9, 2021)
Hi Erin, I haven't had my surgery yet, but have chosen to take part in a new study for the TAVR traschatiter aortic valve replacement. Hope your surgery went well.

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