Derek Schilling - Heart Valve Journal

My Journal

47 days ago

Do we know of anybody on this forum who has had a Ross procedure as their second AVR after initially getting a tissue valve?

susan harris sounds like a question for dr ismail el-hamamsy at mt sinai. he is very approachable. call his assist ... Read more

susan harris sounds like a question for dr ismail el-hamamsy at mt sinai. he is very approachable. call his assistant Leemor Salitto. not sure if i have spelling correct but that’s the team for Ross. they’ll know!

Derek Schilling Thank you

Derek Schillingposted an update

162 days ago

Hello- I am just wondering what the main drawbacks would be for going out of state for an avr reop that may not be conducive to local surgeons expertise? Looking ...Read more

Hello- I am just wondering what the main drawbacks would be for going out of state for an avr reop that may not be conducive to local surgeons expertise? Looking to go to a surgeon with many more cardiac surgeries completed vs. local where original operating surgeon may have retired. Want to cover all bases for future planning. Would feel better if able to get more difficult redo at say Cleveland Clinic . Currently have a stentless Medtronic Freestyle that already encompassed the full root replacement. 51 years old and valve is 7. Would prefer 1 more surgery and be done, so thinking mechanical, just wish tissue would last longer. Thank you.

Chris Germano Derek, I'm traveling from Southport NC to The Cleveland Clinic for my 1st SVAR. 10/27/25
I'd say i ... Read more

Chris Germano Derek, I'm traveling from Southport NC to The Cleveland Clinic for my 1st SVAR. 10/27/25
I'd say it's worth traveling for the best care and CC is at the top of most lists.

Derek Schilling Yeah,top notch facility. You will be in good hands !

Derek Schilling Chris Germano- I see you were at CC for pre op activities . Do you plan to drive or fly back to NC af ... Read more

Derek Schilling Chris Germano- I see you were at CC for pre op activities . Do you plan to drive or fly back to NC after surgery? And then post op checkups in NC also?

Pamela Gregory Hi Derek. I traveled from DE to the Cleveland Clinic and for me personally it was well worth it. I fl ... Read more

Pamela Gregory Hi Derek. I traveled from DE to the Cleveland Clinic and for me personally it was well worth it. I flew 1st class on the return flight so that I didn't have to worry about navigating people and luggage. Also if you drive a long distance you need frequent stops to walk to prevent blood clots. They will advise you what to do depending on the length of your trip. NC not so far so I would thing just walking on the plane once would do the trick. They have hotels very close for patients traveling from out of town. One is connected to the Clinic and there is a Holiday Inn about 2 or 3 blocks away that has a shuttle. It is literally a straight shot 2 or 3 blocks. Please let me know any other questions you may have

J Alexander Lassally Hi Derek - Interesting question. Probably for me, the tricky part was in the transition back to my ho ... Read more

J Alexander Lassally Hi Derek - Interesting question. Probably for me, the tricky part was in the transition back to my home docs and hospital. I traveled from the northwest to Cleveland, and while Cleveland was exemplary in every way, the care and rehab was lackluster at best back west - so you will have to work hard the transition back... MY case was extreme as it was new years and my cardiologist even refused to see me for meds updates... But yeah... Also the plane ride was challenging but it was doable. I would stay on the ground where you are having the surgery as long as possible. I did about 3.5 weeks

Valerie Allen I stayed in Cleveland for 2 weeks, part in hospital and part in connected hotel. It was an excellent ... Read more

Valerie Allen I stayed in Cleveland for 2 weeks, part in hospital and part in connected hotel. It was an excellent arrangement. I had to fly to Atlanta then after a couple hour layover, fly to Savannah. With the first class seat, the reserved wheelchair assistance and a heart pillow to hold during any bumps or just as a precaution, it was tiring but good.

Derek Schilling Thank you all, great info! That is what I was looking for, to see how others accommodate the travel p ... Read more

Derek Schilling Thank you all, great info! That is what I was looking for, to see how others accommodate the travel pre and post.

Chris Germano Hi Derek,
I'm flying up and flying back 1st class, just like Pam. I've set up for an airport wheel ... Read more

Chris Germano Hi Derek,
I'm flying up and flying back 1st class, just like Pam. I've set up for an airport wheelchair as well, just in case I need one on my connecting flight. I've had a Cleveland Clinic Cardiologist ever since I was diagnosed with my bi-cuspid aorta at a Duke Hospital in Raleigh NC. I would go to CC one year for an echo and the next year at Duke, I would have my CC cardiologist review the Duke echo with me via Zoom meeting. I did that for 6 years. I recently moved to the beach coast of NC (Southport/Oak Island). I have a new cardiologist down here for my follow-ups and found a top-notch heart rehab facility in Southport. I plan to get my post-op Echoes in NC, but have my CC cardiologist review them with me via Zoom. Hope that helps. all the best

Derek Schilling Thanks Chris, sounds like you have a great plan! Keep us all posted post-op. You will be back to good ... Read more

Derek Schilling Thanks Chris, sounds like you have a great plan! Keep us all posted post-op. You will be back to good health in no time. Time flies through the good and not so good times!

Derek Schillingposted an update

2395 days ago

At 1yr post-op for aortic valve and root replacement, what tests are typical to schedule with the cardiologist to check on things? Can an ultrasound be accurate ...Read more

At 1yr post-op for aortic valve and root replacement, what tests are typical to schedule with the cardiologist to check on things? Can an ultrasound be accurate enough?

Rose Madura I did not have any tests at one year. Each cardiologist will have their own protocol I would think. ... Read more

Rose Madura I did not have any tests at one year. Each cardiologist will have their own protocol I would think. They may do an echocardiogram to make sure everything looks good.

Marie Myers I had an echo at around 10 months, and have not had one since (Jan 2018) I think if your heart sound ... Read more

Marie Myers I had an echo at around 10 months, and have not had one since (Jan 2018) I think if your heart sounds good, and you are not having any symptoms, there may be no need to do an echo or an even more invasive test like CT scan.

leslie terjesen I had aortic valve replacement on 2/19 and having my carotoids checked tomorrow and an echo at the en ... Read more

leslie terjesen I had aortic valve replacement on 2/19 and having my carotoids checked tomorrow and an echo at the end of November. Feel wonderful and enjoyiing working out although I hurt my shoulder overdoing it on a rower. My husband is starting Rock Steady Boxing for Parkinson's on Monday, 3x a week, so I am also going to go to that gym since I need to drive him there and look forward to working out there. I am having these tests just for follow up explained my cardiologist where I live.

MARIE PICUN In October will be 1 year for me. My cardiologist wants me to have an echo in January of 2020. I will ... Read more

MARIE PICUN In October will be 1 year for me. My cardiologist wants me to have an echo in January of 2020. I will see my doctor in February.

Derek Schilling Thank you everyone!

Derek Schillingposted an update

2617 days ago

Julie Ann Smith reacted to this

Did anyone's doctor put them on a 325 mg aspirin for life after a bioprosthetic Aortic valve replacement? It seems there is much controversy as far as dosing, ...Read more

Did anyone's doctor put them on a 325 mg aspirin for life after a bioprosthetic Aortic valve replacement? It seems there is much controversy as far as dosing, and for how long after surgery to take.

Mary K I'm taking 81 mg. twice a day. No problem. AvR three and a half years ago.

Marie Myers Just a 81 mg aspirin for me daily after a tissue AVR.

Diane Maher Also taking one 81 mg low dose aspirin daily for life for AVR.

Dan Vechiola Just an 81 mg baby aspirin following the 3 months post surgery of Warafin for me.

Jennifer McInerney I’m the same as Dan. I just came off Warfarin and I’m on baby aspirin, 81 mg

David Moore David is on 81mg a day.

Derek Schilling Thanks all for the info, I am on a 325 mg and just wondering and considering if I can go down to an 8 ... Read more

Derek Schilling Thanks all for the info, I am on a 325 mg and just wondering and considering if I can go down to an 81 milligram per day.

Derek Schilling I am 7 weeks post-op

Dan Baltazor I'm on 325mg a day and I'm 11 weeks post op. I was told I would be dropped down to 81mg around 3 mon ... Read more

Dan Baltazor I'm on 325mg a day and I'm 11 weeks post op. I was told I would be dropped down to 81mg around 3 months post op which is coming up. I will be asking at my next appointment about it.

Derek Schilling Cool Dan, please let me know your doctor's thoughts, seems this is a doctor's preference type of thin ... Read more

Derek Schilling Cool Dan, please let me know your doctor's thoughts, seems this is a doctor's preference type of thing.

MARIE PICUN I had my aortic surgery Oct 9,2018. I am on 325 mg asprin till April. Then I will go down to 81mg asp ... Read more

MARIE PICUN I had my aortic surgery Oct 9,2018. I am on 325 mg asprin till April. Then I will go down to 81mg asprin.

MARIE PICUN Had a tissue valve.

Derek Schillingposted a journal

2669 days ago

Can a Ross Procedure be done for your second AVR? i.e. after a tissue valve and dacron sleeve used for aorta and root replacement, or is it for first OHS only? ...Read more

Can a Ross Procedure be done for your second AVR? i.e. after a tissue valve and dacron sleeve used for aorta and root replacement, or is it for first OHS only? If so, anybody have this done for round 2?

Derek Schillingposted an update

2673 days ago

Anyone here get Medtronics Freestyle porcine valve in their mid- 40's? Just wondering about durability in that age group.

Anders Carlos I’m not sure about that specific valve but in interviewing several top surgeons (Cleveland Clinic, ... Read more

Anders Carlos I’m not sure about that specific valve but in interviewing several top surgeons (Cleveland Clinic, Starnes at USC, others) they were all consistent that an AVR with porcine or bovine in someone in their mid 40s would last 5-8 years. Immune system at that age would burn through it quickly. There can always be outliers but from everything I’ve read that estimate seems fairly consistent for aortic replacement. Have you looked at the Ross?

Derek Schillingposted an update

2674 days ago

Is it possible or feasible, to have an aortic root replacement and ascending aorta replaced while still keeping your own bicuspid valve if it is still functioning ...Read more

Is it possible or feasible, to have an aortic root replacement and ascending aorta replaced while still keeping your own bicuspid valve if it is still functioning properly? Not wanting to fix something that's not entirely broken obviously

Marie Myers Yes. It is called the David Procedure. I thought I might have had that, since my valve was not my big ... Read more

Marie Myers Yes. It is called the David Procedure. I thought I might have had that, since my valve was not my big problem-the 4.8cm aneurysm was. My surgeon felt it was better to replace my valve at the time, to save me a re-operation in the future. I went with that plan 1 1/2 yrs ago at age 63.

Derek Schilling Thank you Marie. Doctor and I both leaning towards tissue medtronic's freestyle valve, but then my 15 ... Read more

Derek Schilling Thank you Marie. Doctor and I both leaning towards tissue medtronic's freestyle valve, but then my 15-year clock starts ticking, or less for re-op. Had to question if less of a risk of reop if my bicuspid would last that long

Derek Schilling Forgot to put out there that I am 44. Still not a hundred percent sure which valve route to go either ... Read more

Derek Schilling Forgot to put out there that I am 44. Still not a hundred percent sure which valve route to go either.

Marie Myers It was a hard decision for me at 63.( Probably the hardest decision I ever made) can only imagine how ... Read more

Marie Myers It was a hard decision for me at 63.( Probably the hardest decision I ever made) can only imagine how hard the decision is for you. Research as much as you can stand, and get a few different opinions. Wishing you peace with whatever decision you make!