Now in 10th week after aortic valve replacement as I rebuild slowly and assess the experience.
The Good Decision: Stopped smoking and started jogging at ...Read more
Now in 10th week after aortic valve replacement as I rebuild slowly and assess the experience.
The Good Decision: Stopped smoking and started jogging at age 34. (Now an 83 year old male and very likely would not have lived to this age without that decision. About 12 years ago I was informed that I had a slight aortic valve insufficiency, though continued to exercise regularly. My physician at the time alerted me that I should take a prescribed antibiotic dose an hour prior to any dental cleaning or significant repair.
The Bad Decision: I stayed with the antibiotic routine until last year when I was informed that the latest "advisory" from some professional committee had deemed this antibiotic unnecessary. I did not take the antibiotic for my last dental cleaning session in October - a major mistake!
This last December I began to experience loss of appetite, weight loss, fatigue, severe chills and high fever that I thought was related to a urinary tract infection I had been fighting with for a couple months. I think that infection led several of us to mistake the real source of the problem. My wife hauled me to the local hospital (UNCH) emergency room over my protest with a prolonged set of chills and fever. Initial tests showed a bacterial infection in the bloodstream. This started a series of specialized exams. An ultrasound scan of the heart finally found the source on the Aortic Valve. It was a bacterial infection of a type known to be associated with dental procedures (my second bad decision).
The build up of detritus from the infection threatened to slough off particles from the aortic valve into the blood stream with possibility of a stroke. Immediate Aortic valve replacement was recommended, seemed wise to me, and the surgery was performed the morning of January 10th. As others on this site have said, the anticipation and "centering of perspective" that occurred as I waited those few days had an unprecedented impact on me, an impact that I will always value.
I am now in my 10th week after surgery, not nearly as vital and energetic, but I am vastly improved from the earlier weeks and looking forward to added improvement. However, I am very surprised by the level of fatigue that seems not to lift much over time and glad to find this website as a resource to help cope with the fatigue and loss of vitality. I am not a patient person, especially with myself. I am looking forward to seeing how this is all going to work out and whether I have the strength and fortitude to get somewhat back to where I was four months ago: 2 more months; 6 months; one year or more?
Fatigue is the big issue right now! How best to cope with that?
Steven A Husted all i can say is it does get better i would say after a year you should be pretty close to your old s ... Read more
Steven A Husted all i can say is it does get better i would say after a year you should be pretty close to your old self it is different for each of us our body's are different some heal fast and some heal slow so give your body time to heal let your body talk to you and tell you how fast or slow
Phyllis Petersen Welcome Bill! I had minimally-invasive robotic mitral valve repair on October 13, 2016. Until reading ... Read more
Phyllis Petersen Welcome Bill! I had minimally-invasive robotic mitral valve repair on October 13, 2016. Until reading stories from others, and it wasn't easy finding a lot of robotic patients, I thought I'd be back to myself quickly. Some people seem to recover very rapidly, but there doesn't seem to be any set pattern. The hospital only talked in averages, because that's all they can do. A few weeks ago, I finished Phase II of cardiac rehab, which was fabulous at moving me forward, but I still had to come home and put my legs up. I'm now doing Phase III, which is continuing to work at the hospital's wellness center with access to nurses and exercise physiologists, but only going on the monitors once a month. I've lowered my reps and increased the weight on resistance exercises, plus added leg press machine, so that I could now focus on building muscle, while continuing to push the cardio a bit more. It's amazing what a difference with the leg fatigue. I don't know if there will be setbacks, but I keep looking forward and moving ahead. How long it will take is not really a question anyone can answer. Hang in there and go for progress not perfection.
Clare Auten I had AVR in Jan 2014. The fatigue lasted a while but it should eventually fade. I am 49 now. I did a ... Read more
Clare Auten I had AVR in Jan 2014. The fatigue lasted a while but it should eventually fade. I am 49 now. I did a half marathon at 9 months post op, very slowly, walked most of the way but reached the finish line.
Catie B I am sooo sorry you contracted that infection! But I'm thankful you are now on the mend. I hope day b ... Read more
Catie B I am sooo sorry you contracted that infection! But I'm thankful you are now on the mend. I hope day by day you will feel stronger and stronger.
Lilly Black I am so sorry that you were badly advised. My cardiologist and my doctor both advised me that it was ... Read more
Lilly Black I am so sorry that you were badly advised. My cardiologist and my doctor both advised me that it was mandatory that I take the antibiotic before every, and any type of procedure....so I am! So far....so good. Bill, if and when you are strong enough to walk, I highly recommend regular walks. It helped me recover much faster and helped me regain strength. 95% of the time I feel quite strong.....but in the last 2 days, I have been feeling so super tired with brain fog, like my body and my mind had it and just wanted to rest. We need to continue making good decisions in our lives for ourselves and we must listen to our bodies! good luck and I hope you feel better soon.