Susan's Guestbook

Susan Lynn  Rose - Glad everything worked out for you! I have to give credit where it's due. Our heart warrior and star contributor Deena Z gave you that incredible advice. I think I'm going to have my iron and ferretin checked, too!

Susan Lynn  Deena - Thank you for your good wishes!

I'm usually a pretty calm person, but that was a night my own heart palpitated! It all worked out - you made the right decision!

Ana Brusso  Oh my little Angel 😇 congratulations on your anniversary and many more. You are very special to me. 🙏❤️

Susan Lynn  Richard - I absolutely love sugar, cakes, candy... I no longer drink soda on a regular basis - so many bad ingredients.

My parents always thought I was going to get kidnapped because I would gladly go with anyone who offered me candy!

Ana Brusso  Oh my little Angel Susan Lynn, you just made me laugh with what your parents thought. I love sugar, cakes, candy etc., never have been a fan of sodas only as a mixer. Richard, what are párelles?

Susan Lynn  Hugh - I'm doing well.  Thanks for asking! I've been on the site less than usual - work has been a bit more demanding in recent months.  
Glad you're forging ahead with your fitness regime; it takes time to feel like yourself, again, but your dedication will pay off!   Be well,  Hugh! 

Susan Lynn  Hugh- Of course!  I am employed (part-time) for a local firm as a business and human resources consultant.  I primarily work from home and go to client sites when required.  How about you? 

Susan Lynn  I'm so glad it was helpful to you.  We 'Sue's' have to stick together!  If you have any questions, please feel free to ask! 

Hugh Martin  Yes thanks, I went for my first jog with my friends this year. I did far more walking than jogging, but felt great afterwards, partly due to having my wonderful wife with me! I wish we could correspond outside this forum, as we seem have to have very similar views on cardiac issues. Messenger? Instagram?

Susan Lynn  Hugh - I live in the northeast part of Pennsylvania (about two hours away from Philadelphia.) I was very nervous before surgery - I had a tonsillectomy at age 6 and that was the only time I had ever been in the hospital. I would have gladly taken sedatives, but I didn't have any. On the morning of surgery, I asked if they could give me something to relax (as well as anti-nausea medication just in case the anesthesia upset my stomach), but I don't know if they put it into my IV or not. Surprisingly, I was ready to just put the whole thing behind me and felt a bit calmer than I had in the weeks leading up to game day. Knowing that surgery would be over in a few hours, greatly eased the stress.

When we tell you that waiting is the worst part of the process, we're not kidding. Every part of pre-op, surgery, and recovery was completely tolerable. These medical professionals know what they're doing!

As I mentioned, I had a minimally-invasive side entry access for my procedure. I also had the nerves in that area frozen. The good news was that I didn't have any pain after surgery and early into recovery. The not so good news is that I had numbness, pins and needles sensations, and an occasional momentary shocking pain on my side and back for a year after surgery.

I felt pretty good in two weeks, but the fatigue lasted for months. When you're on bypass during surgery, it does a number on your blood. While my iron levels were high enough to be released from the hospital, I think it took awhile to get back to normal range. Plus, although my scars were healing and I was up and walking around, full recovery was far from over. Some physicians estimate it takes a full year for the heart to heal. I'm not sure if that's completely true, but I am concerned that you were quoted 4 weeks. For example, I had a lifting restriction for three months even though I didn't have my sternum cut. I was also on blood thinners for three months. My heart and body were still healing from the trauma of surgery.

Even though I basically interrogated the surgeons I considered, there were so many things I didn't ask and many things I wasn't told. I had a textbook procedure and it all ended up working out, but, be careful - ask questions, lots and lots of questions. And, come to this site to get feedback from people who have been in your position. You'll get the good, the bad, and sometimes the not-so-pretty answers from heart warriors who only want to help by sharing their knowledge and experiences with you.

Please feel free to ask all the questions you have! Wishing you the best!

Hugh Martin  Hi Susan, that is so helpful, thank you. Like you, I am partly excited by the prospect of resolving a problem that is basically genetic and partly nervous, as I have never had surgery before, although I have had 3 [unsuccessful] ablations and spent 5 days hospital last year with pneumonia.
I have spent all my life trying to keep fit, firstly playing football, then squash and now jogging, but that doesn't help a genetic problem, although it does make the heart stronger.
I am so glad you have remained on this site to provide advice.
Are you on facebook btw?

Hugh Martin  Hi Susan, are you ok? I had a CT scan on Monday that will determine when the consultant thinks the op should be carried out - he is contacting me tomorrow. Meanwhile I am tenderhooks!

Susan Lynn  Hugh - Yes, I'm fine. Sorry, somehow I missed your last post. Glad you have remained fit throughout your adulthood - that will make recovery a bit easier.
Please keep us posted on your CT results.

Hugh Martin  Hi Susan, thanks for your continued interest. Please read my latest journal for an update. Are you on facebook?

Hugh Martin  Alternatively, if you let me know your email address, I can send you a video about a patient at the Cromwell hospital, who had keyhole bypass surgery, using an artery from the chest

Susan Lynn  Thank you for the offer. I believe you and hope it's an option for US patients soon.
Btw, I'm not on Facebook. Just not my thing.

Hugh Martin  Lol. Email address? I don't want to post it on here, as it may be a breach of copyright. Do you have a supportive family btw? I have a wonderful wife, but my children live miles away!

Hugh Martin  Are you ok?. Heard yesterday from my cardiologist that everything is 'moderate', so nothing needs doing atm. I will have a treadmill test to see how far I can push exercise

Susan Lynn  Glad you received good news!  You may never need a repair! 
I'm doing well!,  As far as medication goes, I was put on extended release metoprolol and lisinopril a few years after surgery to address PACs, PVCs, and slightly elevated BP.  I'm hoping to have the dosage on the metoprolol lowered if possible.  I'm going to be trying to do that over the next few weeks while my cardiologist evaluates the efficacy of the reduced amount.   Wish me luck! 

Susan Lynn  Hugh - I wasn't on any medication before surgery.   That's part of the reason I'm frustrated taking meds now.  I had to have surgery, but there are days I feel like I traded one problem for another.  

Hugh Martin  I know what you mean, Susan! I was put on aspirin, lisinoprol and statins when I had angioplasty nearly 20 years ago. I contiunued to exercise, including running marathons, but suffering at the same time from IBS, until 3 years ago when AF put a stop to all that. Statins have always been a problem and, since my cardiologist suggested pausing them for a couple of weeks, I have felt so much better.

Susan Lynn  Amit - I had my nerves frozen during my minimally-invasive entry. I didn't have any pain after surgery. I did have numbness on my right side and, over the next year, pins and needles sensations as the nerves regenerated. It was completely tolerable. I would choose the mini-thoracotomy, again, in a second!

Also, I had surgery on Friday morning and was released midday on Monday. Every step went exactly as planned so I had a very short stay. You will hopefully have the same experience!

Ask your surgeon about freezing your nerves. Also ask about early extubation. The less time you spend with the tube in your throat, the better.

Finally, walk around the unit as soon as they'll let you and take multiple short walks every few hours. That's the key to getting out of the hospital!

I can tell you, almost everyone on this site will say, heart surgery wasn't nearly as bad as we imagined. Waiting is torture, but once you get to the hospital the process is very controlled and methodical. These committed professionals know what they're doing. They want a good result as much as you do!

Please feel free to ask any other questions you may have. You're going to do just great!

Amit Naik  Thanks. Still 7 days to go. Counting days . All this post definitely gives encouragement and boost confidence level. 

Dan Fouratt  Amit, I sent another response to you but as far as pain I did not need drugs.  I took Tylenol for a week and that is it. MIAVR I feel is great for many reasons.  Good luck on your journey.

Susan Lynn  Christopher - So far, so good!  I had a virtually painless, textbook, minimally-invasive repair. Surgery was Friday morning and I was out of the hospital by Monday at lunch time.  I walked around unassisted on the first full day of recovery and needed very little help at home.

In the name of full disclosure, since my nerves were frozen during the procedure, I did have numbness, pins and needles sensations, and an occasional sharp pain on my right side for about a year as the nerves regenerated.  They were annoying, but completely tolerable.   The most surprising part of OHS was the exhaustion.  The healing heart apparently consumes a ton of energy!  

Getting a good repair is the most important thing, but if you can find a surgeon that can give you a minimally-invasive mini-thoracotomy and a good repair, I'd highly recommend it!   If you have any questions, please feel free to ask!

Christopher T  I'm hearing more about this nerve pains with the mini thoracotomy.  Something I didn't really consider. I'm wondering if it is better to get the sternotomy instead. I've heard that there is less issues with nerve pain with the sternotomy. Mine would be minimally invasive robot.

Susan Lynn  Christopher - There are lots of sternotomy and mini-sternotomy heart warriors on this site who will hopefully share their experiences. I do know that the sternotomy facilitates the best view of the heart and fastest procedures which minimize 'pump' time. That's definitely a huge plus! Also, no need to connect to bypass via the femoral artery. It's definitely an individual choice. Choose what's right for you.

Susan Lynn  Christopher - I actually started working at my part-time job 4 days after surgery, but I have a sedentary, work-from-home position that only involves emails and phone calls. I felt pretty recovered in 2 weeks, except for my energy level. It took months to feel normal in that regard. Everyone is different, we have people who are running marathons in a few months after surgery and those who take a little longer. It's definitely not a competition - everyone's body knows when it's ready to get back to daily activities. Best of luck to you!

Marcus Krauss  I think this is great insight, Richard. As I've reflected back on my own heart surgery journey, no amount of research, preparation, Q&A, talking to other patients and doctors, etc, can really solve the fundamental issue, which is that as the patient, you need to learn to accept that you'll never have as much certainty as you'd like. I think once I realized that, it made the entire experience less stressful. No one gets out of this life alive, and I think everyone in this forum eventually comes to terms in his or her own way that there's only so much we can control about life.

J Alexander Lassally  Yes indeed. At a certain point, we have to just throw ourselves off the diving board and hope there is sufficient water clearance and there are no sharks or alligators below ! Not easy... I daresay us cardiac patients experience more uncertainty than many other surgery types.

Ana Brusso  Lots of wisdom written here. It is petrifying to know you are having open heart surgery. After two of them, the only thing that gave me peace was praying and know others were also praying for me. You just never know. 🙏❤️

Michael Ponzio  Well said. So many questions with no definitive answers because we cannot predict the future. Placing trust in God to guide the heads of the doctors. Thanks for sharing. 

Susan Lynn  You're so right, Richard! Heart surgery is scary and we have no other realitic alternative but to trust the surgeons and teams we've chosen. I will say, though, the success stories and reassurance that I received from heart warriors on this site before my procedure left me with a level of confidence that I could do it, too. Everyone's journey is certainly different, but seeing people enjoying life after surgery makes the ride a little easier. Even though it took you awhile to find the humor in it, you're inspiring many others in the waiting room who are also having trouble seeing the positive side of heart surgery at the moment. Keep up the good work!

Kimberly Eisenhut  Thank you Richard and J Alexander for these words of wisdom. My mind gets the better of me most days, and seeing everyone here sharing our thoughts and experiences help quite a bit on those days I am feeling stressed about all of this.

George Allen  For what it’s worth.  I have not had surgery yet but once diagnosed my cardiologist recommend using Antibiotics for dental work.  I take 4 - 500 mg tablets of amoxicillin one hour before any cleaning or other dental work.   

Dan Fouratt  For a long time when I had a "good" BAV I Premedicated before dental work.  The 10 to 15 years ago they stopped that requirement.  Now that I had my Valve replaced I am back on Premedicating.  I am going in next week and have my medication (same as George).

Susan Lynn  I pre-medicated for dental work throughout my entire adult life. Even though the American Heart Association has changed their recommendations over the years, all of my dentists felt that pre-medication protocol should be followed. I rarely take antibiotics so I wasn't worried about losing the effectiveness with overuse.

Dan Fouratt  I picked up my pills this morning for next Monday's appointment.  I give my dentist credit she gave me three doses.

Susan Lynn  Svetlomir - It depends what antibiotic you take and the amount of the medication.   I take 2 (500mg) clindamycin an hour before my appointment. 

Susan Lynn  Lilly - I had high cholesterol as far as I can remember. I didn't have high blood pressure, until my mitral valve regurgitation progressed.

The only one in my family who takes statins is my brother. They work for him, but I think there's too many convincing arguments to avoid them.


I was really panicked the day I had my cardiac catheterization because I thought after decades of high cholesterol, I would surely have blockages! But - all clear!!!!


Medicine tries to draw conclusions based on indicators they believe lead to complications. In my case, and my families', we have high cholesterol, but we don't have blockages.


Btw, my vegan sister also has high cholesterol and Hashimoto's.


Best of luck. Keep me posted on how you're doing!

Lilly Black  Susan, thanks for the interesting information! We learn so much from each other on this site. I was never diagnosed with blockages either. I will talk with my doctor to get another lipid panel and have a conversation about my propensity for blockage. What I fear the most however is an aneurysm! I will speak with Cardiologist in October and ask how we can check for additional aneurysms in my body! With connective tissue disorder, my tissue is very thin.

Interesting about your vegan sister! Did she agree to take Levothyroxine? That's the only medicine they prescribe for Hashimoto's.

I will definitely keep you posted on what I find out. Best of luck to you and thanks so much for your reply!

Susan Lynn  Richard - I'm so happy you found a great solution after 2 years of struggling. I've had a lifetime of issues with my eyes and will be looking at cataract surgery in the future.

Enjoy looking at all the beauty that's around you! Life is good!!

Richard Munson  Funny you say that and of course there is time for things  to change but for today, every time i stood up i was not even mildly unsteady. I am convinced that my eyes are now in sync and that is a potential cause. Even when i went to pt for balance they said that eyes can affect balance greatly. Fingers crossed.

Susan Lynn  Absolutely!!  I'd be happy to speak with you.   What's your email address?   I'll send you my number.

J Alexander Lassally  Diana - This is fairly common in thoracotomy from what I have gathered. One of the lesser discussed parts ...  Best of luck. 

Jim Rizzo   I had a mini T about 11 weeks ago and still feel occasional nerve pain. I was told to expect this for 6-12 months following surgery.   If it gets bad, I take acetaminophen.

Richard Munson  Common, had it about a year after but it went away. Nerves grow back slowly. Nothing i could not deal with. Sharp occasional pain. 

Susan Lynn  Diana - My experience was like Richard's. I had numbness, pins and needles, and occasional short bursts of pain for about a year. I thought it was a small concession for a (mostly) pain-free recovery!

Susan Lynn  Deena - Glad you had the chance to watch it. I think we can all relate to some part of Henrik's OHS journey. I don't know that I would have handled the news with the same grace he did if I received it in my late 30s.

You're right about surgery being the great equalizer. While our individual medical conditions are unique, there's a lot of similarity to our experiences and emotions. It was very validating for me, too.

Sue Maize   I felt the same way Deena! As in, well if an NHL player doesn’t want to do his walking routine, I won’t feel so bad that I likely won’t either! Which made me also realize, because I’m not in great shape like an NHL player, that I better make sure someone is with me for the first couple of weeks at home to make sure I DO get up and walk. 😰

Pamela Gregory  It brought me to tears. Felt like a was reliving parts as I had the same surgeon at the same hospital

Valerie Allen  Pamela, i had the same surgeon as you know. Wonder if it’s too soon (close to event) for me to watch.

Grace Mason   I don't think you would have a problem with it Valerie. It was less about the actual heart surgery than I thought it would be and more a story about Lundqvist's amazing hockey career and how his heart condition affected it and his self. I felt what made it great was how honestly and plainly he shared his feelings, which made it cathartic. I was equally impressed at how well he was able to share his feelings and what an amazing goalie he is.

Susan Lynn  Svetlomir - I had a mitral valve repair with an annulplasty ring and chordae repair. I didn't have any tissue resection. I went home on several drugs - some were stopped in a week, others over months, with the last one being the baby aspirin.

For the first three months, I took Coumadin and had my INR checked frequently during the first eight weeks to get my dosage calibrated to my diet. During the third month, I only had it checked a few times and then I was removed from it, completely.


I took a coated baby aspirin for that first year which may be the reason I didn't have any stomach upset. If you're not using coated aspirin, that change may help you.


It appears that post-op medications vary significantly from one surgeon to the next. There have been heart warriors on this site who've been discharged without any medications.


Be sure to communicate your symptoms to your doc, they may be able to do something to ease your abdominal pain. Best of luck to you!

Susan Lynn  You're welcome, Svetlomir! Unfortunately, I developed PACs and PVCs two years after my surgery. My cardiologist put me on Metoprolol succinate and lisinopril to keep them under control. I'd love to discontinue them, but they're working. I hate being on any medications.

Svetlomir Ivanov  So sorry to hear that, but what may be the reason ? You are look perfect on the pics? Is there any definite reason? 

Svetlomir Ivanov  Susan, did you stop aspirin abruptly or gradually? I hope, this condition is under control and no problem at all ?

Susan Lynn  Svetlomir - I stopped the aspirin abruptly.  You can't do that will every drug, but it was permissible with the baby aspirin. 

Svetlomir Ivanov  I was 6 month of sintrom, and no problem, after that 1 month of 100 mg.enteric-coated ''baby aspirin'', and stomach pains began..no Helicobacter pilory after test...But cardiologist insist to take...now he change to Plavix, do you now something about Plavix? I stop baby aspirin already a week ago, and hasitate to start this Plavix...My surgery was mitral valve repair with ring and chords, no resection...No other conditions at all

Susan Lynn  Svetlomir- I don't know if it would make a difference,  but baby aspirin in the US is 81 mg.  I'm not sure if you would tolerate that dosage any better than your 100 mg dose.  I don't know much about Plavix except that it's a prescription blood thinner. 
You might want to consider getting another opinion about your medication.   Unfortunately,  medicine is not an exact science and different cardiologists have varying philosophies on post-operative treatment.   Wishing you the best of luck! 

Susan Lynn  Teresa - First and foremost - think positively. Imagine every step going exactly as planned. Most people worry about things that never happen. Every part of surgery and recovery is tolerable. We did it - you can, too!

Secondly, as soon as you are able, walk the halls. Your only agenda is to walk, rest, repeat. Everything else will be handled by your nurses.

Third, remember that recovery isn't a linear process. Some days you're going to feel like a rock star. Be sure you don't overdo it or you'll set your recovery back by days or even a week. On other days, you'll be exhausted. Don't mistake this for a setback- healing takes a lot of energy. Your body needs the rest.

Fourth, keep your showers short and warm. Of all the post-op activities, showering was by far the most exhausting for me. I found out later, my long, hot showers were dropping my blood pressure.

Finally, plan something special you want to do in six to eight weeks. Let that be your goal. You can set some smaller interim ones before then, too. Celebrate that first trip out of the house - although it will probably be to a cardiology appointment. The first time out for lunch or dinner. Maybe even the first trip to the supermarket.

Like anything that's worth having, it takes time and patience. But, better days are ahead. You've got this, Teresa!

Teresa Karwan  Thank you so very much for taking the time to write back and for sharing your very positive and encouraging thoughts!  It means so much! 

Susan Lynn  It's 6 degrees at my house this morning!!! We rescheduled the date to Thursday, 1/25 - I can't wait to meet our Sweet Ana in person! We'll be thinking of you, Richard! Wish you were joining us!

Richard Munson  Why do they say its 20 but feels like 10. They used to say its 20 and it feels like 20. I’m 81 and i feel like 71. Must be my mitral valve wind chill.