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Diagnosis: Aortic Regurgitation

Member Since: May 10, 2023

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Sue Lee got a guestbook from Matthew Malooly

1 year ago (April 28, 2025)

Hi Sue, Just wondering how your son is doing? Just to give an update on my pericarditis - I'm back to exercising with some pretty high intensity routinely. Have been back to my goal 150 min/week for several months with no effects. Had my echo and my trace pericardial effusion... Read more.

Sue Lee

1 year ago (May 16, 2025)

Hi Matthew. We are still struggling with it. He feels fine most of the time and does recreational sport without issue. But he's still on a low dose of naproxen and colchicine. We tried to wean 6 months ago and he had a tiny flare up on chest pain with... Read more.

Matthew Malooly

1 year ago (May 20, 2025)

Aw sorry to hear that! But I'm glad he's back to doing some things! Yes I've been off of colchicine and NSAIDs since last fall. I never had EKG changes with mine, but it seems like my biggest warning symptom during periods of inflammation (when I wasn't in a full... Read more.

Sue Lee

1 year ago (May 21, 2025)

Thanks for the update. Did they do an EKG? After the first episode, our EKG changes were slight and he felt better within days after going back on naproxen and colchicine. His symptoms were the pain in back of shoulder and feeling off, plus usually elevated white blood count and... Read more.

Matthew Malooly

1 year ago (May 26, 2025)

yeah they did an EKG, there was some S-T segment inversion but I think that's very random and non-specific. I think what they're usually looking for is evidence of cardiac strain - if the effusion is big enough it can restrict the heart movement, and of course tamponade is bad.... Read more.

Sue Lee got a guestbook from Ruth joy

3 years ago (July 21, 2023)

Hi Sue , After open heart surgery everyone 's recovery is different . We all started slowly and gradually built up our walking . Listening to your body and doing what you feel able to and gradually increasing exercise . Your son is young and will be wanting to be... Read more.

Sue Lee got a guestbook from Barry Brasseaux

3 years ago (June 4, 2023)

Hi Sue. I know it is a difficult decision to decide on what valve choice to make. The mechanical valves do last and when I was young trying to decide I did not want to face another heart surgery to replace my valve. Little did I know that I would... Read more.

Sue Lee

3 years ago (June 7, 2023)

Much appreciated Barry. It's great hearing from people that had a mechanical valve at a young age and remained active, healthy and happy

Barry Brasseaux

3 years ago (June 7, 2023)

You are welcome. I am sure whatever way you both decide he will be just fine and have a very successful recovery.

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