Steve, I could be wrong. But, according to Robyn's note, I believe it's official that we are now #RossProcedureBrothers. So glad to hear that Dr. Stelzer worked ...Read more
Steve, I could be wrong. But, according to Robyn's note, I believe it's official that we are now #RossProcedureBrothers. So glad to hear that Dr. Stelzer worked his magic on your heart. Take it easy. Let the healing surround you. My thoughts and prayers are with you, your family and your medical team. (P.S. My wife's name is Robyn - spelled like your wife's name with the "y" instead of the "i".)
Steven Kantor Adam, I actually just sent you an email message. Happy to be your brother in the Ross procedure. I ... Read more
Steven Kantor Adam, I actually just sent you an email message. Happy to be your brother in the Ross procedure. I was inspired by your story. Having not been offered the Ross I’m beyond grateful to read articles published by esteemed physicians like Dr El-Hamamsy. What can be said about Paul Stelzer, MD? His bedside manner is the greatest. I can’t even tell you how many times he spoke about the Mount Sinai team. Stelzer and El-Hamamsy are true game changers and life savers. I’m blessed.
Steven Methot Are you able to celebrate or are you all in lockdown?
Steven, you are writing already? Hallelujah! Write more when you can and let us know how it went. Soo ... Read more
Steven, you are writing already? Hallelujah! Write more when you can and let us know how it went. Soooo happy for you and Robyn and your family. Be well and continued recovery and good health
Good morning Steve and Robyn. It was good to hear yesterday that surgery went well. I am sure the patient is doing well on this bright, beautiful morning (at ...Read more
Good morning Steve and Robyn. It was good to hear yesterday that surgery went well. I am sure the patient is doing well on this bright, beautiful morning (at least in Philly).
I know you will do well through your surgery and recovery because of your positive attitude on life and you live by. Sending lots of love for you and family. ...Read more
I know you will do well through your surgery and recovery because of your positive attitude on life and you live by. Sending lots of love for you and family. Always here for you whatever you need.
Best wishes for successful surgery!
I, too, had a Ross operation. Mine was a little more than two months ago in Ontario, Canada. My recovery is going well. ...Read more
Best wishes for successful surgery!
I, too, had a Ross operation. Mine was a little more than two months ago in Ontario, Canada. My recovery is going well. You're in good hands, Steven.
Stephen DeNittis posted a note for Steven that says:
Yooo Stevo, love you pal. Heart and Prayers for you. You need to get through this. We have a lot of stuff we still need to do boating, golf etc. We be thinking ...Read more
Yooo Stevo, love you pal. Heart and Prayers for you. You need to get through this. We have a lot of stuff we still need to do boating, golf etc. We be thinking of you and checking the message board. Best Stevie D
Steven Kantor Nothing but love for you Stephen DeNittis. You are the best.
Steve, we wish you all the best and will be praying for a successful outcome. I know you will have the best post-op care! Stay strong!
Steven Kantor Nancy, thank you so much! I appreciate it more than I could possibly express. I know I’ve chosen ... Read more
Steven Kantor Nancy, thank you so much! I appreciate it more than I could possibly express. I know I’ve chosen the best surgeon and hospital for this procedure. It’s out of my control now!! I feel the love and my recovery team is beyond what anyone could ever have. Thank you!!
Had no idea brother until Leor shared with me. How can I help? Can I bring a meal or two for you post-surgery?
Steven Kantor I like NY Strip and eggs on bagel sandwich! Thank you my brother. I’m good and looking forward to ... Read more
Steven Kantor I like NY Strip and eggs on bagel sandwich! Thank you my brother. I’m good and looking forward to getting through this. All good and lots of great things ahead...maybe some more golf lessons soon!! Happy Thanksgiving.
How sweet you guys. That sandwich sounds amazing. Hang in there Steven. 🙏🙏🙏
Linda H and Elsie posted a note for Steven that says:
Nice to hear from you again Steve. Glad everything is still doing good. Mine was 2 years ago last Sept. as well and everything is still ticking away. Thankful ...Read more
Nice to hear from you again Steve. Glad everything is still doing good. Mine was 2 years ago last Sept. as well and everything is still ticking away. Thankful for each and every day.
steve,
I'm not sure how often you still log in to this site, but I've spent some time reading your journal because we seem to have many things in common. ...Read more
steve,
I'm not sure how often you still log in to this site, but I've spent some time reading your journal because we seem to have many things in common. I too have a bicuspid valve that is leaking that needs repair/replacement. I struggled as well with the mechanical.tissue question, although I am now in the tissue camp. In fact, my surgeon seems to think they can repair it instead of replace. Also, I have a 12 year old girl, and my biggest concern about scheduling surgery is how I can miss the fewest amount of her soccer games
I found your name because I noticed that you had Dr. Bavaria for your surgeon. I
m in Boston, so he is not an option, but the guy at Mass General I
m talking to studied under Bavaria.
So anyway, I just was curious if you feel like life is limited in any way now that you are a few years past it, or if the surgery was the thing that freed you up.
you can email me back or respond to one of my journals under the name of Matt O.
Steven Kantor Matt -
I'd be happy to respond to you or discuss the matter by phone. My private email is contactste ... Read more
Steven Kantor Matt -
I'd be happy to respond to you or discuss the matter by phone. My private email is contactstevek@yahoo.com.
In short, I really have no limitations other than the fact that power lifting is probably something to avoid with a new valve and most people would say there is little benefit to that activity. Bavaria was amazing. From what I have read if they can repair your valve give that a shot. Absolutely. My was too calcified to repair. As to the mechanical v tissue debate, I take 1 asprin a day. No restrictions. There is a basic dietary restriction Bavaria gave me that others don't seem to discuss and that is to avoid calcium carbonate. You find it when you see things like organge juice "fortified" with calcium. Avoid that. Milk/yogurt...all good!
I'm hoping to get a long time out of my tissue valve. I didn't want to go on blood thinners and just because you get a mechanical valve doesn't mean you never have to get operated on again.
Matt, I don't care what all of the people say on this site, I didn't like getting operated on and I didn't like the recovery. However, my heart muscle is the strongest it's probably ever been. That is a miracle. They literally do fix us. I'd be happy to talk to you or correspond by email.
As to surgeons, get someone that does a lot of this work. I not only had the valve problem but also an aneurism and I develop an electrical problems (SVT) and I needed an ablasion done. It's all incredible.
The decisions is not easy but just remember there are something like 100,000 valve jobs done each year. Technology keeps getting better. I wish I got 20 more years before needing the surgery as blood thinners will likely improve, valves are getting better and the process improves. Tissue valve I hope bought me about 15 + years of medical advancement. It's also 15 years of not being on blood thinners!
Steve
Yeah, I'm familiar with the dang knee pain....sent me to the elliptical machine. But my knees don't hurt anymore!!
Glad to read you are doing great. Keep ...Read more
Yeah, I'm familiar with the dang knee pain....sent me to the elliptical machine. But my knees don't hurt anymore!!
Glad to read you are doing great. Keep it up!
Steven
I am new to this. I have a very similar situation I believe
Born with aortic stenosis. I had survey to repair it when I was 14. I am now 45. I have ...Read more
Steven
I am new to this. I have a very similar situation I believe
Born with aortic stenosis. I had survey to repair it when I was 14. I am now 45. I have always been active but limited
You seemed to have done a lot of homework on what type of valve Would you mind sharing why you choose what you did I would prefer no blood thinner but I am not sure I want to deal with this again. So I am leaning towards mechanical
Steven Kantor Bob,
If you send me your private email I'd be happy to connect with you.
As a quick response, I don' ... Read more
Steven Kantor Bob,
If you send me your private email I'd be happy to connect with you.
As a quick response, I don't think any patient wants to go on blood thinners nor does anyone want to go through this again. Just note there is no guarantee that if you get a mechanical valve you wont have to be operated on again. I'm betting on technology and leveraging quality of life. I take an aspirin each day and that's it. I hope to get 10-20 years of that! The perfect scenario doesn't exist yet but they're working on it! I hope this helps. I'd be happy to talk to you.