Linda H and Elsie posted a note for Steven that says:
Nice to hear from you again Steve. Glad everything is still doing good. Mine was 2 years ago last Sept. as well and everything is still ticking away. Thankful for each and every day.
Matt O. posted a note for Steven that says:
I'm not sure how often you still log in to this site, but I've spent some time reading your journal because we seem to have many things in common. I too have a bicuspid valve that is leaking that needs repair/replacement. I struggled as well with the mechanical.tissue question, although I am now in the tissue camp. In fact, my surgeon seems to think they can repair it instead of replace. Also, I have a 12 year old girl, and my biggest concern about scheduling surgery is how I can miss the fewest amount of her soccer games
I found your name because I noticed that you had Dr. Bavaria for your surgeon. I
m in Boston, so he is not an option, but the guy at Mass General I
m talking to studied under Bavaria.
So anyway, I just was curious if you feel like life is limited in any way now that you are a few years past it, or if the surgery was the thing that freed you up.
you can email me back or respond to one of my journals under the name of Matt O.
Bob Howard posted a note for Steven that says:
I am new to this. I have a very similar situation I believe
Born with aortic stenosis. I had survey to repair it when I was 14. I am now 45. I have always been active but limited
You seemed to have done a lot of homework on what type of valve Would you mind sharing why you choose what you did I would prefer no blood thinner but I am not sure I want to deal with this again. So I am leaning towards mechanical
So to hear you are doing great as you approach your one year surgery success anniversary. What a great idea to treat your surgeon to dinner. I was glad to see a post from a fellow hvj'r who went thru their surgery around the same time. I've got to get an update out there as well. Hope you are enjoying the season and spending time outdoors with your daughter.
Steve, I haven't heard this. But I have read that an abundance of calcium contributes to magnesium deficiency (the two are antagonists); and that magnesium deficiency is shown to correlate to valve disease, and thus may be a causal agent. Thus, some say that it's important to monitor a person's balance between calcium and magnesium intake.
Happy 4th buddy. I will be interested to see what others have to say about the calcium and tissue valves. I had not heard of that (other than from you previously) and I know there is no chance you are over thinking it.... Rock on my friend.
The surgeon was able to repair my mitral valve, but in the event that was not possible I too had opted for the tissue valve. However; I was not advised anything about that calcium...interesting I am sure that others are glad that you shared this knowledge.
8 wks post-op...! I will be 6 wks Friday. Not sure what is going on, but have some redness/discomfort in the center of my incision. I showed the cardiac rehab nurse who expressed concern as it was a bit warm to the touch and not red on the entire incision. She said to check my temp(normal thankfully) and also it could be allergy to the sternal wire---don't want to even contemplate that. The good news is my surgeon did not call me to come in so I will watch it and continue to follow-up.
I asked Adam if it would be OK to post a post-op surgical pic of my sternotomy (I see men do so I offered to cover my ta-tas) he said that is fine. I may wait a bit now in case there is something going on I can post what to look for and then post a pic when healed.
I have been in our pool and have used both scar gel and spf 50 sunsreen, all ok'd by the surgeon.
Hope you enjoy your 4th. Today is beautiful in CT. I hear tomorrow we could have more of those fun T-storms with the hail and high winds. Hopefully you were not impacted by the storm and have power to stay cool.
I imagine your daughter is done with soccer by now. Hope you are able to spend some good quality time this Summer.
Happy "Independence" Day, Steve. Your newly enhanced turbocharger will ensure blue ribbons and much good health and energy! Keep up the good work. (BTW: I do not think Bourbon has enriched calcium. Just saying.)
You rock! Keep up the good work. Push it when you can, rest when need. Please rest when you need. Recovery is not always linear. Key is to listen to your body. Once I started listening, recovery really took off (even more) for me.
YYYYYYYYYYYEEEAAHHHHHHHH.........Ur recovery rate surpasses all expectations.......u have amazing genes....can I say that???......cousin.....love u......elise.......oh yeah the gus is waving her right paw.....she sends her love as well.....Happy First Day Back At Work!!!!!!!
Hi Steve! If you increase 5% each day out that's doubling in two weeks. Some folks can do more, some less. Just be sure to listen to your body. Small increases each time are only small risks of overdoing it and hopefully just small discomforts when your body lets you know. The body is capable of amazing things strength and stamina-wise. Keep the beat -- DVB
Sounds like your doing very well. yes it is a ride. I tell everyone on here you better be ready. It is not explained very well by the Dr's. as to what you will be going through. Then you have the operation(s) and you learn really quickly what is happening.
So glad to hear your doing the walking thing. It really helps your body get back into doing what it wants to do, and it helps clear the mind a bit too to be out in the fresh air and de-stress. Funny to think about going back to work isn't it. Most people can't wait for a vacation. We HVJers can't wait to get back to work. Probably because it a bit of normalcy and we want that back so we feel whole again.
Well anyway. Glad to hear you are back up and healing well.
God Bless....and I'll be praying for ya....LOL!
It's great to hear that you're doing so well with recovery, including clearance for returning to work and driving and especially your walks. Upping the distance is of course good, but it's probably best to do it in smaller steps. Going from 2 to 3 in one day is a lot.
- Jim Smith
You're killing me. My 2 short walks today totaled maybe 1 mile AND I had no naps so very tired and uncomfortable. Just had a cup of tea, time for a pre-bed pain med.
Tomorrow should be nicer here in CT so hope to get more distance in AND a nap :)
My surgery was 5/25, 2 weeks ago today. While I feel okay the day is long and the walks are tough. I was told to do 3-4 smaller ones rather than one long one. Agreed- naps needed, I took one this am and a longer one this afternoon.
The weather was nice today and a good weekend in store so hope to get out some more. Karen
It's great to hear from you, happy to hear you're on the road to recovery, take it easy at work next week, I'm having my surgery Monday, it seemed like just yesterday when I made my first entry, and you responded, thanks for the support you have shown me over the past months, I too look forward to recovery... I'll keep in touch, and you keep posting the encouragement is spiritualy lifting...
Hey Stevie, everything sounds wonderful. I believe in one of our meetings I once said I was told that "Speedo has a lot of ideas, too bad they are connected to his mouth!"... Well, the analogy is that you have a lot of feelings, too bad for us they are connected to your keyboard!! hahahaha... I think it's great. I have learned two life lessons from YOUR experience (beside all the medical stuff): 1) that you are truly a great guy and I don't care how the RoundTable talks about you when you are not there!! .hahaha... no, really, sharing your feelings and letting loose when facing adversity is admirable and human, and 2) this Journal has renewed my faith in humanity. There are a lot of good people out there that are caring and helpful and I am glad that they have shared your journey and helped you. I makes be realize that our fast-paced, hip-hopped world, is not all me-centric, but that people still genuinely care about others! Looking forward to getting picked-on once again by you at oure next meeting! I'm getting nervous that with your new $6M body, you may look better than me in a Speedo!!!!!
Called you to see how you were doing and you were "life coaching" me.....I am so lucky to have you as my cousin and friend....love you strong spirit....elise......btw...eric sends his best.....can you smell him at your house? did I say that out loud? Oh no I did dent....oh yes I did.......Happy Tuesday!!!
Steve, oh my goodness! You have really been through it this past week! So sorry to hear about your SVT, but also amazed at how positive you are through it all. Way to go!!! How was the ablation done? Was it invasive? through the groin? Heal well, take it easy and listen to your body, although it sounds like you do very well at that! Thanks for the update.
I am so glad to hear you are home. We have all been thinking about you. We will be around to visit soon we jsut wanted to give you some space to rest. Let me know if you need anything, you have my number.
Steven, it's great to hear from you, sorry for your recent events, but it seems as if you have made it through, I had been checking to hear from you and had gotten a little worried, I'm scheduled for my surgery June 11th. I'm excited to get this done, it's been a short period leading up to the surgery but it has seemed lika an eternity. Take care and keep posting.
Hi Steve, I enjoyed reading your newest journal. It wasn't to long so dont worry about it. It is always good to hear all the things that happen to us. That way I think we are all aware it could happen but hope not. Its a little scary but not if that makes sense. Glad you are doing better now and keep on the right track.
For the long haul
Your blog was not too long. I enjoyed reading it. I agree it is truly amazing what can be done to heal us. There are mixed emotions for sure, but that is to be expected. We do need to put faith in our doctors, nurses, family and friends to be by our side and support us in this journey. Yes, I too got made fun of. My family found an app in the I store 'I'd cap that' and has managed to take pics of me and have captions randomly assigned that really fit the bill. The laughs are needed. I am out of ICU and plan is to go home Saturday. During surgery the surgeon found my mitral valve(left) to be more damaged than the echo and other tests conveyed. The surgery took longer and they were able to do a successful repair, but the right side of the heart had some swelling and slipped into Brady sinus (slower) rhtyhm. They had me on a temp pacemaker in case I needed some compensation, but that has been removed as of this morning, wires left intact, in case I need to be reconnected. I cannot wait to get home. I am sorry you had some occurences thereafter and ended up back in the hospital, but hopefully they have every aspect under control no. Hope you get the opportunity to get out soon to see your daughter's soccer game and enjoy the weather now that the humidity has passed. Karen Campo
Wow, Steve, you are an inspiration. I am so sorry that you had to go through all that but I am so happy that you are now fixed. I have enjoyed reading your posts and following your journey as I prepare for mine. (I will have Mitral Valve Repair at Mt Sinai in NY on June 18th).
Hope you continue to heal uneventfully. Again your outlook and attitude during this has been inspirational.
Thanks for the update Steve. Frankly I was a little concerned that you'd not posted in a while - so I was very happy to see the notification that you had. I'm familiar with the ablasion as my Mom had a succesful one following her heart surgery. Admittedly - hers did not involve the aorta - nor did the ablasion occur so soon after teh surgery. Anyway - glad you are home and recuperating. Get even better soon! Regards, Rich
Wow Steven! And to think I have been whining about a case of bronchial pneumonia! Good thing you aren't playing poker in Vegas...your "hand" really stinks! HOWEVER...once again...you were able to be fixed (fingers crossed?). So many people aren't, either incurable diseases like cancer or sudden death from conditions they know nothing about. Not to mention those who do not have the financial resources to "pay for" fixing. Oh well...'nuff of that. So happy you are once again on the road to recovery. I will just caution you (from my own experience) be careful of colds, stomach bugs, etc. If you read my journal post, you will see that after acing OHS, what started as a summer "head cold" quickly turned into bronchial pneumonia and after almost 4 weeks I still am not completely over it. Take care and don't fret about long posts, I enjoy reading them.
Linda Dixon, AVR 3/13/12
Wow, Steve, that's quite the story! it must have been very scary for you but so gratifying to be"fixed"....finally.
We're so lucky to live in the age where our heart disease is detected before it kills us. Twenty years ago we would have just died early from a heart attack and that would have been it.
I guess we're lucky, huh?
Stevie K, Glad to see you are progressing. Keeping a positive attitude, accepting help from family and friends, and seeing yourself healthy and back to your "normal" self, is 95% of the battle.
Hope to see you soon,