Guestbook of Sharon Behl

My Guestbook

Sharon Behlgot a new guestbook post

77 days ago

Melinda Donahue posted a note for Sharon that says:

hi Sharon,

How are you feeling after the surgery?

Sharon Behlgot a new guestbook post

504 days ago

Sharon Behl reacted to this

Marcia Snyder posted a note for Sharon that says:

Sharon, your story sounds so similar to mine! My initial surgery was repair mitral valve and replace ruptured chordae, repair tricuspid valve, and close ...Read more

Sharon, your story sounds so similar to mine! My initial surgery was repair mitral valve and replace ruptured chordae, repair tricuspid valve, and close a hole in my heart. At about 5 months the atrial flutter and fibrillation started - bad. While doing an ablation for the afib they discovered I also have severe mitral regurgitation again. Since my hospital doesn't do the re-repair, they just recommended the replacement. I'm on my own in searching for a re-repair, and can't find much other than HeartValveSurgery.com. How was your experience at Mount Sinai in NYC? I've considered going there for another opinion - according to this web page they are among the best. One of my concerns is the re-repair failing. With an artificial valve, I could do a valve-in-valve if it fails down the line. Did you consider that?

Sharon Behl We did consider that, and while the research on re-repairs doesn't seem as extensive as first time re ... Read more

Sharon Behl We did consider that, and while the research on re-repairs doesn't seem as extensive as first time repairs, I've been advised that re-repairs have similar outcomes as repairs, i.e., over 90% need no followup surgeries at all for at least 20 years. You and I unfortunately are in the "lucky" 10%. I would get a second opinion from Mount Sinai if traveling there is an option for you. They have a well run process of offering 2nd opinions. My experience was well worth the travel & lodging expense ( plus we saw a show and enjoyed NYC beforehand. Cleveland Clinic also has the expertise. Let me know what you decide.

Marcia Snyder Sharon, thanks so much for the feedback. I've started getting opinions from Northwestern Medicine in ... Read more

Marcia Snyder Sharon, thanks so much for the feedback. I've started getting opinions from Northwestern Medicine in downtown Chicago, Cleveland Clinic, and Mount Sinai. The Northwestern is most concerning to me - the doctor said he would do a re-repair, and he used to be on staff at Cleveland Clinic, but he seems too young and inexperienced! I'll wait and see what all three have to say. One of our big concerns is that I had ruptured chordae, and wondering if another chord ruptures, what happens then? Even doctors don't seem to know much about them.

I'll let you know when I make up my mind!

J Alexander Lassally Marcia - Did you have a thoracotomy the first time?

Marcia Snyder First surgery was sternotomy/open heart because of all the work they were doing.

Sharon Behlgot a new guestbook post

568 days ago

Sharon Behl reacted to this

Teresa Karwan posted a note for Sharon that says:

Thank you for reaching out! I’m so glad you texted! Please keep me posted on your progress! All the best to you!

Sharon Behlgot a new guestbook post

615 days ago

Dom posted a note for Sharon that says:

Had my TAVR nov 15th. Some BP issues, ejection fraction went down a bit with some abnormal filling . Getting another echo to see if it improves in next couple ...Read more

Had my TAVR nov 15th. Some BP issues, ejection fraction went down a bit with some abnormal filling . Getting another echo to see if it improves in next couple of months. They say this happens from all the mucking up to quote my cardiologist lol. Glad you’re turning corners. The walking always helps and the fact your hiking is a great sign.

Sharon Behl It seems most everyone's heart has to recover from the "mucking around." It is quite the assault howe ... Read more

Sharon Behl It seems most everyone's heart has to recover from the "mucking around." It is quite the assault however expertly done! Sounds like you are staying on top of things. Do your symptoms interfere with your daily functioning much?

Sharon Behlgot a new guestbook post

615 days ago

Kimberly Eisenhut reacted to this

Dominick Amatulli posted a note for Sharon that says:

How are you feeling? I hope all is well and the New Year is treating you well.

Sharon Behl Thanks for checking in Dominick! Recovery is slow but steady. Feel I turned a corner this week and ev ... Read more

Sharon Behl Thanks for checking in Dominick! Recovery is slow but steady. Feel I turned a corner this week and even started driving a bit (...and turned some corners, ha ha) Problems with high BP and severe nosebleeds are being resolved. How are you? And what's the latest plan for your heart?

Sharon Behlgot a new guestbook post

638 days ago

Dominick Amatulli posted a note for Sharon that says:

Glad you are home and doing well. Wishing you a speedy recovery and glad we were able to connect. Take care!

Sharon Behl 😄Same here, take good care!

Sharon Behlgot a new guestbook post

640 days ago

Sharon Behl reacted to this

Dom posted a note for Sharon that says:

Funny, I went back and looked at the year book. We did know each other and you wrote me a nice note. Your writing covered up your photo, but you kind of reminded ...Read more

Funny, I went back and looked at the year book. We did know each other and you wrote me a nice note. Your writing covered up your photo, but you kind of reminded me of Leslie. Wish you the best of luck. I know this is the fatiguing part then at 6 weeks you feel much better. Wish you a speedy recovery.

Sharon Behlgot a new guestbook post

640 days ago

Dominick posted a note for Sharon that says:

Glad to hear your surgery went well. Wish you continued and rapid improvement. . I remember Leslie, I believe we were in the same class. Sad to hear and ...Read more

Glad to hear your surgery went well. Wish you continued and rapid improvement. . I remember Leslie, I believe we were in the same class. Sad to hear and sorry for your loss. I. Trying to remember you, the only Sharon I remember was Sharon Becker, she was a year younger then me. Was your surgery open heart or robotic. How has the recovery been?

Sharon Behl Leslie was quite the engaged extrovert, Pres of Student Council, etc. I was more behind the scenes. S ... Read more

Sharon Behl Leslie was quite the engaged extrovert, Pres of Student Council, etc. I was more behind the scenes. Surgery was through a sternotomy, open heart, and recovery is slow & steady with the biggest challenge keeping the sternal repairs stable ( no lifting over 10 lbs, no twisting or pressure, etc.). So grateful that otherwise, I'm just really tired. Merry Christmas and hope you're doing well!

Sharon Behlgot a new guestbook post

642 days ago

Sharon Behl reacted to this

Ruth joy posted a note for Sharon that says:

Welcome home Sharon and welcome to recovery

Sharon Behlgot a new guestbook post

651 days ago

Susan Lynn, Pamela Gregory, Donna Casaletto reacted to this

Edward Crissey posted a note for Sharon that says:

Sharon. Was a pleasure meeting you today. You’re looking good and hopefully you get discharged soon. They decided not to ...Read more

Sharon. Was a pleasure meeting you today. You’re looking good and hopefully you get discharged soon. They decided not to discharge me to try and some more water out of me.

Valerie Allen Really? How wonderful, you two!

Sharon Behl Maybe see you in the halls tomorrow. We are stronger every day!

Melinda Donahue amazing Edward and Sharon ! Please tell us how you are feeling - wishing you a speedy and total reco ... Read more

Melinda Donahue amazing Edward and Sharon ! Please tell us how you are feeling - wishing you a speedy and total recovery

Pamela Gregory Very cool that you two got to meet! Sounds like you are both on the mend

Edward Crissey I’ll keep an eye out for you. I did 7 loops around the ward and 3 up and down the stairs today. ... Read more

Edward Crissey I’ll keep an eye out for you. I did 7 loops around the ward and 3 up and down the stairs today.

Rose Madura Very cool that you could meet up!

Sharon Behlgot a new guestbook post

652 days ago

Edward Crissey posted a note for Sharon that says:

Thought I would drop a note and say Hi. I’ve looked for you but haven’t found you. Hope your recovery is going well.

Sharon Behlgot a new guestbook post

653 days ago

J Alexander Lassally posted a note for Sharon that says:

Hi there! How are you doing? I read your updates and see that ICU has been ongoing. Hope you are making progress and feeling stronger daily. I know, it ...Read more

Hi there! How are you doing? I read your updates and see that ICU has been ongoing. Hope you are making progress and feeling stronger daily. I know, it is a strange continuum, right?!

Thinking of you in NYC!

Sharon Behlgot a new guestbook post

657 days ago

Susan Minehardt posted a note for Sharon that says:

Best wishes, Sharon regarding upcoming surgery. My re-repair was in March with Dr. Adams at Mount Sinai. You are in great hands. ❤️

Sharon Behlgot a new guestbook post

657 days ago

Kimberly Eisenhut reacted to this

David Rasmusson posted a note for Sharon that says:

Hope all goes well with your surgery today.

Sharon Behlgot a new guestbook post

658 days ago

Kimberly Eisenhut reacted to this

Ruth joy posted a note for Sharon that says:

Hi Sharon ,
Wishing you good luck for your surgery .

Grace Mason Thinking of you Sharon! You are in good hands. Sending prayers to you and your team tomorrow 🙏🏼 ... Read more

Grace Mason Thinking of you Sharon! You are in good hands. Sending prayers to you and your team tomorrow 🙏🏼❤️

Sharon Behlgot a new guestbook post

658 days ago

Pamela Gregory, Kimberly Eisenhut reacted to this

Melinda Donahue posted a note for Sharon that says:

Good luck Sharon. Thinking of you !

Pamela Gregory Good luck tomorrow Sharon. Sending out positive thoughts and prayers!

Susan Lynn We're cheering for you, Sharon!

Ana Brusso Praying for your successful surgery tomorrow. God bless you

Sharon Behlgot a new guestbook post

658 days ago

Kimberly Eisenhut reacted to this

Valerie Allen posted a note for Sharon that says:

Sending you best wishes for tomorrow. It will be good to get that fixed once and for all. 🙏❤️

Sharon Behl Thank you, Valerie.

Sharon Behlgot a new guestbook post

659 days ago

Larry Peterson posted a note for Sharon that says:

Hi Sharon - thinking about you as we both start this adventure on the 30th. Be strong and I look forward to reading about your progress in a few days!

Sharon Behlgot a new guestbook post

660 days ago

Deena Z, Grace Mason , Kimberly Eisenhut reacted to this

Valerie Allen posted a note for Sharon that says:

Hi Sharon, thinking of you! Are you in NYC yet? I just love it at Christmas time. 💕

Sharon Behl Yes, it's lovely and lively! (I'm wearing a mask all other times)

Valerie Allen Great picture! !

Ana Brusso There is no place like New York City for Christmas. The decorations are amazing and it’s very livel ... Read more

Ana Brusso There is no place like New York City for Christmas. The decorations are amazing and it’s very lively. Sharon, will lift you up in prayer for a successful surgery. God bless you

Sharon Behlgot a new guestbook post

665 days ago

Dominick Amatulli posted a note for Sharon that says:

Can’t think of a better way to use your pre-surgical time than visiting family and enjoying NY. Island Parker’s are tough so I know you will do well. ...Read more

Can’t think of a better way to use your pre-surgical time than visiting family and enjoying NY. Island Parker’s are tough so I know you will do well. Best of luck on the 30th. Happy Thanksgiving.

Sharon Behl Thank you Dominick, Happy Thanksgiving to you and your family,too!

Sharon Behlgot a new guestbook post

667 days ago

Ruth joy posted a note for Sharon that says:

Sharon , that is a gorgeous song

Sharon Behlgot a new guestbook post

667 days ago

Rose Madura reacted to this

Deena Z posted a note for Sharon that says:

Almost there, Sharon. I also had my MV repaired at Mt. Sinai by Dr. Adams and team. He is AMAZING. He literally was picking calcium off my MV ring in... Read more

Almost there, Sharon. I also had my MV repaired at Mt. Sinai by Dr. Adams and team. He is AMAZING. He literally was picking calcium off my MV ring in order to do the repair. The ICU is fairly new and state-of-the-art. Godspeed.

Sharon Behl So reassuring, thank you Deena!

Grace Mason Deena is the best!❤️ Such great tips and knowledge.

Sharon Behlgot a new guestbook post

715 days ago

Ruth joy posted a note for Sharon that says:

Hi Sharon ,
Post op I couldn ‘t tolerate the feel or the idea of wearing a bra - so I didn ‘t for a few months and it felt great ! My wound had healed ...Read more

Hi Sharon ,
Post op I couldn ‘t tolerate the feel or the idea of wearing a bra - so I didn ‘t for a few months and it felt great ! My wound had healed well but i hated the feel of a bra over my chest post op.
I wore loose t - shirts in a shade of blue that really cheered me up and just added layers and / or a scarf . It was Autumn - Winter as I recovered and covid times so nobody cared how I looked when I was out and about .
The main things that made me feel like me , was getting a bit of make up on - mascara , bit of lipstick , my earrings and then I felt like me !

Pamela Gregory Hi Sharon, I did exactly what Ruth did- no bra for a few months just comfortable tops easy to get on... Read more

Pamela Gregory Hi Sharon, I did exactly what Ruth did- no bra for a few months just comfortable tops easy to get on and usually a cardigan because I was really hot and cold all the time! Sweater on and off constantly!!!

Rose Madura The hospital gave me a surgical bra which I wore if going out somewhere or if someone was stopping b... Read more

Rose Madura The hospital gave me a surgical bra which I wore if going out somewhere or if someone was stopping by but for a few months it was big soft Tshirts and no bra!

Sharon Behl Thanks women! I'm packing this week for the trip to Mount Sinai Hospital and taking your clothing ti ... Read more

Sharon Behl Thanks women! I'm packing this week for the trip to Mount Sinai Hospital and taking your clothing tips to "heart!"