Guestbook of Robert Miller

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Robert Millergot a new guestbook post

1 day ago

Fidel Martínez Ruiz reacted to this

Markos Barrios posted a note for Robert that says:

Hi Robert, what injury did you had in your mitral valve? Mine is a Flail of the A3 segment due to a broken tendinous chord. I would love to know how does ...Read more

Hi Robert, what injury did you had in your mitral valve? Mine is a Flail of the A3 segment due to a broken tendinous chord. I would love to know how does the repair works for you, I have concerns about the output of a repair through the years to come, in other words does the repair is truly a long term solution or just an over advertised medical business ?. Thank for reading this.

Robert Miller I don't want to share too much medical history on a public forum. Unfortunately, the forum doesn't al ... Read more

Robert Miller I don't want to share too much medical history on a public forum. Unfortunately, the forum doesn't allow private messages. Having said that, my case is probably a bit extreme. In general, a repair of the chordae should last a lifetime. You might also have some breakage between leaflets which will require some stitching. But again, this should last for the rest of your life. Open heart surgery seems pretty scary as they cut your chest bone, collapse your lungs, stop your heart, etc. But it is a very safe procedure. You definitely want to have a repair first. Only if a repair doesn't work properly, then you should get a replacement. Also check if you are a candidate for minimal invasive surgery.

J Alexander Lassally A proper repair should last well in excess of 10-15 years, which is longer than a bio valve... A repa ... Read more

J Alexander Lassally A proper repair should last well in excess of 10-15 years, which is longer than a bio valve... A repair is always preferred first time, if possible. (Which is why you want a great technician for the repair)

Robert Miller @Adam can you look into allowing for private messages from legit forum members? I could share some mo ... Read more

Robert Miller @Adam can you look into allowing for private messages from legit forum members? I could share some more info with Alexander about my condition that might be helpful but I don't want to spread that into a public forum.

Fidel Martínez Ruiz In my surgery, the surgeon told me before that she tried to repair the mitral valve as a first optio... Read more

Fidel Martínez Ruiz In my surgery, the surgeon told me before that she tried to repair the mitral valve as a first option. But when I was awake at the first visit in the hospital, she told me that it had been impossible repairing for her, since the valve was too much calcified, in addition to have a broken cord and it wasn´t worth repairing. I couldn´t add anything on that reasoning and opted for believing it. She replaced me the valve and up to now, it looks that is working fine now.

Robert Millergot a new guestbook post

20 days ago

Fidel Martínez Ruiz posted a note for Robert that says:

Hi Robert , when you say Sierra Nevada you are refering to Sierra Nevada in US or in Spain?

Robert Miller Sorry, USA. Although I am originally from Europe, I didn't know there is also one in Spain...

Fidel Martínez Ruiz Thank you Robert. Yes there is a Sierra Nevada in the South, near the town Granada and near also Gibr ... Read more

Fidel Martínez Ruiz Thank you Robert. Yes there is a Sierra Nevada in the South, near the town Granada and near also Gibraltar, on the southern most point of Europe. The highest pic is the Mulhacen, 11.500 feet high and there is a sky station there.

Robert Miller Good to know. We were just in Portugal not too long ago. Maybe next time we will go to Gibraltar. I h ... Read more

Robert Miller Good to know. We were just in Portugal not too long ago. Maybe next time we will go to Gibraltar. I heard Granada is also pretty nice. In Spain, I only made it to L’Hospitalet de Llobregat next to Barcelona a couple of times. We rented a house literarily at a big beach. Didn't even have to cross a road.

Fidel Martínez Ruiz Sure you will like Granada and Andalousia in general, but if you come better in April, May or June... Read more

Fidel Martínez Ruiz Sure you will like Granada and Andalousia in general, but if you come better in April, May or June or september, not in the summer because there are too many people then

Fidel Martínez Ruiz When you are coming, let me know and if you want I´ll send you a sightseeing program.

Robert Millergot a new guestbook post

232 days ago

Richard Munson posted a note for Robert that says:

Driving around in my car with shadow in the back seat would be great except. Not sure i could trust him even strapped down plus angora rugs are frowned on at ...Read more

Driving around in my car with shadow in the back seat would be great except. Not sure i could trust him even strapped down plus angora rugs are frowned on at car shows. And dog nails on my new interior gets me queasy. Add to that the heat. I just had my truck interior detailed. The ball of hair they took out was incredible. Size of a beach ball. They wanted to see what kind of dog could generate so much hair.

Robert Miller I am not sure what an "angora rug" is but we have some seat covers for our sedan. For the SUV our dog ... Read more

Robert Miller I am not sure what an "angora rug" is but we have some seat covers for our sedan. For the SUV our dog is just in the trunk space. Maybe you could just take the "angora rug" out and throw it under your car while at the car show. That way, nobody sees the cover. Or just ignore what the other folks think... But my worry would be that the dog jumps out of that convertible... I never roll down our windows to the point where our dog could jump out, not that he really looks out of the window that much.

Richard Munson The angora rug i refer to is dog hair. Shadow is a highly active and powerful , 3 year old , 62 poun ... Read more

Richard Munson The angora rug i refer to is dog hair. Shadow is a highly active and powerful , 3 year old , 62 pound siberian husky and sadly the other folks that care are car show judges. He gets plenty of car time in our pickup truck and he is always strapped in for safety.

Robert Millergot a new guestbook post

239 days ago

Ruth joy posted a note for Robert that says:

Hi Robert ,
I am glad that it made a big difference .

Have been on 2.5 mg for over four years and no problems taking it .
Have a good day today

Robert Miller I travelled overseas to celebrate my mom's birthday. Her birthday is on Tuesday but the restaurant we ... Read more

Robert Miller I travelled overseas to celebrate my mom's birthday. Her birthday is on Tuesday but the restaurant we wanted to go to is closed on Tuesdays so we went today. Hence, yes, I had a good day... Thanks!

Robert Millergot a new guestbook post

243 days ago

Ruth joy posted a note for Robert that says:

Hi Robert ,
Is it ? due to the heat / high humidity ? Xxx

Robert Millergot a new guestbook post

272 days ago

Robert Miller, Deena Z and 1 other reacted to this

Richard Munson posted a note for Robert that says:

The good news is that after seeing your picture , you can go to the vets for future checkups.

Adam Pick Hi Robert, Thanks for posting about that picture issue. So you know, our programming team is looking... Read more

Adam Pick Hi Robert, Thanks for posting about that picture issue. So you know, our programming team is looking into this. Again, thanks!

Robert Millergot a new guestbook post

355 days ago

Kimberly Eisenhut, Sonya Adams reacted to this

Richard Munson posted a note for Robert that says:

Regarding dogs: they are not for everyone of course, like anything. Cats may be the pet of choice. My wife comes from a cat family which i never held against ...Read more

Regarding dogs: they are not for everyone of course, like anything. Cats may be the pet of choice. My wife comes from a cat family which i never held against her. Lol. My son has 2 cats. It appears they are more user friendly. There is a bernese poodle mix in our training class. Nice dog. In my case, had dogs my entire life but upon returning home from hvs, cassie was my rock. She would nudge me when it was treadmill time but on other occasions just lay with me. She was therapy. She sensed my situation. Its why her picture on my bed my first day home is on my story. Of course when she died 2 years later , i was crushed and went thru a similar scenario as you. Wife, no more dogs. Thankfully she compromised with smaller and shadow is the result.

Robert Millergot a new guestbook post

358 days ago

Richard Munson posted a note for Robert that says:

My doctors all like my list now. It moves things along and solves the “ i wish i had asked” question i used to have as i drove home. Any doctor that glances ...Read more

My doctors all like my list now. It moves things along and solves the “ i wish i had asked” question i used to have as i drove home. Any doctor that glances at his watch while i am there gets a boot in the backside. My dad used to address his doctor as yes sir, no sir. Those days are history in my world.

Robert Millergot a new guestbook post

377 days ago

Michael Ponzio posted a note for Robert that says:

Yeah good catch. That was definitely the wrong thread.

Fidel Martínez Ruiz 😉

Fidel Martínez Ruiz Sometimes deviations appeared as frayed thread, but open new interesting topics🤣

Robert Millergot a new guestbook post

484 days ago

Richard Munson posted a note for Robert that says:

Wow, Switzerland. I never would have guessed. Your name gives no clue. Maybe von trapp but not miller. I hear its beautiful there.

Robert Miller I cheated a bit. Miller isn't my real last name. I don't want insurance companies, etc. making a prof ... Read more

Robert Miller I cheated a bit. Miller isn't my real last name. I don't want insurance companies, etc. making a profile of me based on my posts here and then negatively impact/punish/exclude/etc our children because their dad had a couple of heart surgeries. But the insurance companies, etc probably find out based on IP addresses, cookies, etc.

It's quite nice in Switzerland but California is pretty good, too. Everyone on my side of the family is back in Switzerland so we go and visit them for a couple of weeks right after Christmas. There should still be a few Christmas markets.

Richard Munson I think i might pick Switzerland over California.

J Alexander Lassally Robert ~ several years in CH here !!

Ana Brusso Richard, really the von trapp 🤣😂

Robert Miller @J Alexander Lasselly where did you come from? Any particular reason you moved to CH? I am from centr ... Read more

Robert Miller @J Alexander Lasselly where did you come from? Any particular reason you moved to CH? I am from central CH and my grandparents are from the "pre-alps" where I spend most of my school vacations helping on the farm.

Richard Munson Yes, the von trapps are legendary swiss. They discovered the hills are alive with the sound of music. ... Read more

Richard Munson Yes, the von trapps are legendary swiss. They discovered the hills are alive with the sound of music. And julie andrews is still ticking at 89. God love her.

Richard Munson Ok, what are the pre alps?

Robert Miller @richard Munson, pre alps is in an area before the alps (obviously). Entlebuch for instance is consid ... Read more

Robert Miller @richard Munson, pre alps is in an area before the alps (obviously). Entlebuch for instance is considered pre-alps. It's a UNESCO area. When my grandma got older, she didn't want to move and instead look out the living room window to see Jungfrau, Eiger and Moench.

Richard Munson One of my favorite movies is the eiger sanction.

J Alexander Lassally Hi Robert - We lived in Geneve and Basel... I was in Denmark for work (pharmaceuticals) and then move ... Read more

J Alexander Lassally Hi Robert - We lived in Geneve and Basel... I was in Denmark for work (pharmaceuticals) and then moved down. Got a C permit eventually ! Loved it very much. Still have stuff in storage in Basel !! Central Schweiz is so nice.

Robert Miller @J Alexander Lasselly If you are into pharmaceutical, Basel is the place to be. Roche, Ciba/Sandoz/No ... Read more

Robert Miller @J Alexander Lasselly If you are into pharmaceutical, Basel is the place to be. Roche, Ciba/Sandoz/Novartis, etc. And ETH isn't too far away and a good place for research. It's actually where I studied. I am glad you like it there.
@Richard Munson, I didn't watch that movie. I need to look that up. But it seems to take place at Eiger starting from the "Kleine Scheidegg" where I went skiing and hiking.

Robert Millergot a new guestbook post

527 days ago

Lori Risboskin posted a note for Robert that says:

Hi Robert, Thank you for your quick response. I didn’t find the spirometer helpful, and it is very possible I wasn’t using it properly. I have better ...Read more

Hi Robert, Thank you for your quick response. I didn’t find the spirometer helpful, and it is very possible I wasn’t using it properly. I have better results with belly breathing. My inhalation and exhalation are much better using that method. I am very concerned with my breathing issue and wasn’t getting very far with my cardiac team. I have moved on to a pulmonologist and have an appointment scheduled for 11/6. I wish it was sooner and plan on calling daily for a status update on any cancellations they might receive. I already went to a local ER for the breathing issue and they admitted me the same day. After 4 days, I have to say they did not do much, and had very little experience with treating radiation patients. Fingers crossed the pulmonologist has a resolution, and nothing happens in the meantime.

Robert Miller I am sorry you are going through this. I wish I could give more advice but I have not experienced thi ... Read more

Robert Miller I am sorry you are going through this. I wish I could give more advice but I have not experienced this so I am not quite sure what to say. I think getting an appointment with a pulmonologist is probably the best thing to do. I would also address it to the surgeon and the cardiologist (again).

Robert Millergot a new guestbook post

554 days ago

Richard Munson posted a note for Robert that says:

You asked a couple of questions i might be able to answer. The little sticky tabs are attached to your skin for an ekg and also during surgery when asleep. ...Read more

You asked a couple of questions i might be able to answer. The little sticky tabs are attached to your skin for an ekg and also during surgery when asleep. Because i was snoozing during my colonoscopy i was hooked up to what i assume to be heart monitors. In this case it was 6. Chest,arms,legs. They then attach wires to the stickies that in turn are connected to bedside equipment. An ekg is usually only 3. For my cataract surgery, also asleep, it was only 3. Back a few years ago during a routine colonoscopy and prior to my ohs, those monitors detected an afib incident which i never knew i had. It resulted in a follow on examination and my mitral valve prolapse was discovered. I was totally asymptomatic. The allergy i have developed later in life to the glue i suspect is not life threatening but makes life very uncomfortable as they turn into bright red, itchy welts in the shape of little squares and can take well over a month to go away after much cortisone cream applications. In one case on my inner arm, a faint outline of it still exists. Long answer, sorry.

Robert Millergot a new guestbook post

563 days ago

Rose Madura reacted to this

Richard Munson posted a note for Robert that says:

Omg, my first thought was middle finger also on that picture. Dirty minds think alike.

Robert Millergot a new guestbook post

599 days ago

Lisa Silverman posted a note for Robert that says:

Robert thank you for your feedback it is really helpful. I read your story and am certainly inspired by your strength and courage! Were your surgeries all OHS? ...Read more

Robert thank you for your feedback it is really helpful. I read your story and am certainly inspired by your strength and courage! Were your surgeries all OHS?

Robert Miller Thanks for the feedback. I appreciate it. Yes, both were OHS. The incision on the chest was at the sa ... Read more

Robert Miller Thanks for the feedback. I appreciate it. Yes, both were OHS. The incision on the chest was at the same place as before, i.e. only one scar. For some reason the big drainage tube was done about 1" away from the last one. Hence, I have two 1" scars. Not that I care.

Robert Millergot a new guestbook post

910 days ago

Ann Smith posted a note for Robert that says:

Hi Robert, Do you have any advise on how to prepare after the few weeks of surgery?

Robert Millergot a new guestbook post

966 days ago

J Alexander Lassally posted a note for Robert that says:

Hi Robert - Thank you - Did you have a Mitral Valve with Woo at Stanford then along the way?

Was this a thoracotomy?
Appreciate your comments! J Alex

Robert Miller I met with Dr. Woo but trying to stay politically correct, it was very disappointing. My BIL (a surge ... Read more

Robert Miller I met with Dr. Woo but trying to stay politically correct, it was very disappointing. My BIL (a surgeon) talked to him as well and he told me later on that he was glad I didn't chose Dr. Woo. On the positive side, his assistant was very nice and very knowledgeable.

J Alexander Lassally Robert - Totally agree! His assistant was lovely. So did you fail a thoracotomy one time - and need r ... Read more

J Alexander Lassally Robert - Totally agree! His assistant was lovely. So did you fail a thoracotomy one time - and need reoperation? I am still confused? Appreciate your comments / insight.

Robert Millergot a new guestbook post

969 days ago

Jill Porter posted a note for Robert that says:

Hi! Thanks for responding to my post. You said you had Afib as well. What was your Afib experience after your surgery? Are you medicated for it at all?

Robert Millergot a new guestbook post

985 days ago

Lilly Black posted a note for Robert that says:

Hi, Robert.

I've been a member of this site for several years. Diagnosed with BAV. My problem is with my aorta but I'm good now. I had it replaced in ...Read more

Hi, Robert.

I've been a member of this site for several years. Diagnosed with BAV. My problem is with my aorta but I'm good now. I had it replaced in 2014, and never felt better. However, my husband has MVP (mitral valve prolapse). He was diagnosed at 42 years old. He is now 75 and lately he's been noticing a second heart beat. Doesn't seem to be irregular like afib but who knows, I'm no doctor.

When did you notice you had a problem with your Mitral Valve? Did you have symptoms? How did they fix it?

My husband is seeking a cardiologist, and I'm sure he'll learn about his condition then. But my questions are out curiosity. I've learned so much on this site.

Thank you

Robert Millergot a new guestbook post

996 days ago

Jennifer Gannon posted a note for Robert that says:

Thank you for the advice. I actually got a good vibe from the entire office, nurse, and the doctor. They spent the time with me to answer all questions even ...Read more

Thank you for the advice. I actually got a good vibe from the entire office, nurse, and the doctor. They spent the time with me to answer all questions even when they had explained it already. I luck out with having teens at home who are planning to be there for me.

Researched the prior question suggestions. Not sure how to prepare for after. Have amazing friends and family keeping me thinking positive.

Robert Millergot a new guestbook post

1119 days ago

Tadeo Bolinas posted a note for Robert that says:

Thanks sir Robert! Your advise means alot. God bless you!.

Robert Millergot a new guestbook post

1164 days ago

Brady Busch reacted to this

Patty Parrish posted a note for Robert that says:

Robert, thank you for your comments especially related to walking. I am only 3 days post surgery walking 1500 steps per day in hospital with tubes still ...Read more

Robert, thank you for your comments especially related to walking. I am only 3 days post surgery walking 1500 steps per day in hospital with tubes still attached. Prior to surgery I walked 12400 steps per day and I love stairs so I'm hoping my progress will be similar to yours.

Richard Munson Just take it slow and steady. Walking is the best exercise.

Greg Lewis " don't be a fool. take it cool. " ..lol..but seriously, if you go at it too hard, and hurt something ... Read more

Greg Lewis " don't be a fool. take it cool. " ..lol..but seriously, if you go at it too hard, and hurt something, you will be put back months, possibly. It's not a race. Good luck!

Patty Parrish 5 days post surgery and the only reason I am still in the hospital is my chest tube hasn't stopped dr ... Read more

Patty Parrish 5 days post surgery and the only reason I am still in the hospital is my chest tube hasn't stopped draining. I walk a mile at a time around the hospital about 3 times a day. I swear it doesn't tire or stress me at all.

Greg Lewis That's great! It just sounds like a lot, this early, but if it works for you, that's good. Walking is ... Read more

Greg Lewis That's great! It just sounds like a lot, this early, but if it works for you, that's good. Walking is what they say to do. I am sure the doctors know, so just be careful.

Robert Millergot a new guestbook post

1217 days ago

Ruth joy posted a note for Robert that says:

Hi Robert ,
I am now over two years post ohs .
I go to the Phebotomy dept. At my local hospital to have my I N R checked , I go 6 weekly now .
It ...Read more

Hi Robert ,
I am now over two years post ohs .
I go to the Phebotomy dept. At my local hospital to have my I N R checked , I go 6 weekly now .
It doesn ‘t cost me anything . I ‘m only there a for about 5-10 mins at the most and the staff are all very lovely .

Robert Miller Maybe I was just unlucky but when I had to get blood drawn at the hospital it toke between 15 - 45 mi ... Read more

Robert Miller Maybe I was just unlucky but when I had to get blood drawn at the hospital it toke between 15 - 45 minutes wait. At a local place it took also half an hour. That doesn't include travel time, miles and gas. With an at-home test it would take me 2 minutes and cost me about $6 for a test assuming the insurance doesn't cover it (not counting the device). That's why I am surprised not more people are using it. But I appreciate the feedback. Maybe I need to rethink this.

Robert Millergot a new guestbook post

1245 days ago

Ruth joy posted a note for Robert that says:

Hi Robert ,
Welcome

Robert Millergot a new guestbook post

1248 days ago

Susan Lynn posted a note for Robert that says:

Welcome, Robert!

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