Guestbook of Jill Mullikin

My Guestbook

Jill Mullikingot a new guestbook post

941 days ago

Ruth joy posted a note for Jill that says:

Hi Jill,
Congratulations to Sebastian on his fifth anniversary

This must feel like a huge milestone to all of your family . Enjoy your celebrations and feel... Read more

Hi Jill,
Congratulations to Sebastian on his fifth anniversary

This must feel like a huge milestone to all of your family . Enjoy your celebrations and feel proud of yourselves . You have all done great

Jill Mullikingot a new guestbook post

1318 days ago

Mohammed Abdulrahman posted a note for Jill that says:

Hi Jill

Congratulations. I need to ask you some questions. I have aortic bicuspid valve with severe regurgitation and dilated left ventricle chamber

Jill Mullikingot a new guestbook post

1318 days ago

Jill Mullikin reacted to this

Ruth joy posted a note for Jill that says:

Sebastian ,
Congratulations on your fourth anniversary

Jill Mullikin Hi Mohammed. I’d be happy to answer whatever I can. Ask away.

Mohammed Abdulrahman I have had aortic bicuspid valve. The doctors told me that you should do the surgery. So, which surge ... Read more

Mohammed Abdulrahman I have had aortic bicuspid valve. The doctors told me that you should do the surgery. So, which surgery process gives guarantee, repairing or replacing the aortic valve?. Which hospital Sebastian did his surgery?. I am from Iraq , so how can i come to do necessary tests?.

Jill Mullikingot a new guestbook post

2420 days ago

Deepak khanka posted a note for Jill that says:

Hi Jill , all the best to Sebastian . May I ask what is his E fraction?

Jill Mullikin Hi Deepak. His cardiologist listed it as 50.

Jill Mullikingot a new guestbook post

2632 days ago

Rich Krakowski posted a note for Jill that says:

Hi Jill. One of your updates caught my eye and wanted to see if i could get a question directly to you?

Jill Mullikin Sure. You can ask here or email me at tapgirl93@hotmail.com

Jill Mullikingot a new guestbook post

2738 days ago

Jill Mullikin reacted to this

Fay Kozas posted a note for Jill that says:

Happy Birthday, Sebastian! And many, many more!

Jill Mullikingot a new guestbook post

2747 days ago

Fay Kozas posted a note for Jill that says:

Hi Jill, I am so very sorry to hear about the passing of the nurse practitioner. I do not know her personally but I was truly touched nonetheless. I am certain ...Read more

Hi Jill, I am so very sorry to hear about the passing of the nurse practitioner. I do not know her personally but I was truly touched nonetheless. I am certain that she not only saved Sebastian's life, but many more lives. She left her mark in this world. May her memory be eternal. And, I am so happy that Sebastian is doing so well. He is truly a heart warrior. It is not easy to go through what he did. May he continue to heal both physically and emotionally. Keep us posted.

Jill Mullikin Thank you for your kind words. She is a great loss to our community. I will be forever grateful tha ... Read more

Jill Mullikin Thank you for your kind words. She is a great loss to our community. I will be forever grateful that our paths crossed when they did!

Jill Mullikingot a new guestbook post

2774 days ago

Rob Sparling posted a note for Jill that says:

At this point can we assume Sebastian has pooped? The world is waiting to learn. 😜 Sebastian, get your sh*t together. Literally!

Jill Mullikin 💩. I now fully understand the poop emoji! Post coming next!

Jill Mullikingot a new guestbook post

2775 days ago

Liz Gephart reacted to this

Larry Fuller posted a note for Jill that says:

Hi Jill- 3 years after my aortic valve replacement I have a suggestion. Get Sebastian a teddy bear. $10 at Walmart.make it light colored so it looks like ...Read more

Hi Jill- 3 years after my aortic valve replacement I have a suggestion. Get Sebastian a teddy bear. $10 at Walmart.make it light colored so it looks like -Ted from the movie . It will allow him to hug it and sleep on his side. Childish ?who cares? Easier to hug than a pillow and will help when he sneezes too. 3 years later I can’t quite get rid of mine .. At 66 Larry Fuller Watch the movie with Sebastian and the bear if you’ve not seen it- but no laughing!

Jill Mullikin Thank you for the tip!

Jill Mullikingot a new guestbook post

2776 days ago

Joey Hardee, Meredith Bray, Jennifer John reacted to this

Artie Rubin posted a note for Jill that says:

Hi Jill, I don't know if anyone else thought of this. But when you say Sebastian has had depression for years . . . is it possible that his malfunctioning ...Read more

Hi Jill, I don't know if anyone else thought of this. But when you say Sebastian has had depression for years . . . is it possible that his malfunctioning heart has been causing the depression? You know, when our body feels afflicted, our mood goes right with it. Anyway, I had OHS (the full cut) at the age of 70 and it was a wonderful experience overall. So if Sebastian ever wants to chat about it, feel free to point him to me. And I promise to be a very good listener, without rushing in with "my" solution. Best to both of you, Artie Rubin

Jill Mullikin I have wondered about the link to the depression as well! We shall see but if you have no energy and ... Read more

Jill Mullikin I have wondered about the link to the depression as well! We shall see but if you have no energy and feel like crud all the time it would absolutely affect your mood!! Thank you for your friendship!

Valerie Altman I may need Sebastian's words of encouragement before my journey is through...😎

Jill Mullikingot a new guestbook post

2776 days ago

Mary Nair posted a note for Jill that says:

Hi Jill I just read about your son Sebastian I went through the same in 2016 August 15th. My son had bicuspid Aortic valve My prayers for a speedy recovery ...Read more

Hi Jill I just read about your son Sebastian I went through the same in 2016 August 15th. My son had bicuspid Aortic valve My prayers for a speedy recovery of Sebastian and for you to be brave in every way of his recovery Tell him every day will be a better day. Please encourage him for deep breathing and use the incentive spirometer often. My prayers again Jill as I know how you feel. With love and prayers

Jill Mullikin Thank you!

Jill Mullikingot a new guestbook post

2776 days ago

Carole Harvey posted a note for Jill that says:

Hello Jill I'm very pleased to hear Sebastion is feeling better, you have all had a rough few days. More positive thoughts coming your way.

Jill Mullikingot a new guestbook post

2779 days ago

Carole Harvey posted a note for Jill that says:

Thinking of you all , especially the young man himself. Sending positive thoughts your way from England.

Jill Mullikin ❤️

Valerie Altman I find myself c checking for updates on Sebastian hope all is going as well as possible

Jill Mullikingot a new guestbook post

2779 days ago

Nancy Luth posted a note for Jill that says:

Jill, Thinking if you and Sebastian tonight and sending up a prayer to the heavens for Sebastian and his surgical team tomorrow. Looking forward to his first ...Read more

Jill, Thinking if you and Sebastian tonight and sending up a prayer to the heavens for Sebastian and his surgical team tomorrow. Looking forward to his first post op report!

Jill Mullikin Thank you!

Jill Mullikingot a new guestbook post

2779 days ago

Valerie Altman posted a note for Jill that says:

Prayers your way for ALL of you tomorrow! I have the same conditions and will be meeting my surgeon this month. So.... Sebastian is my role model and I know ...Read more

Prayers your way for ALL of you tomorrow! I have the same conditions and will be meeting my surgeon this month. So.... Sebastian is my role model and I know how he feels so then I'm gonna need a cheerleader and he's gonna be like.... dude if I can do it u can!

Rob Sparling Me Too! I have been busy all day but thinking about Sebastian on and off today! I will be looking f ... Read more

Rob Sparling Me Too! I have been busy all day but thinking about Sebastian on and off today! I will be looking for his support on Sept 26th! ❤️💪

Jill Mullikin 😘 He has had many well wishers from this site and I know it has helped me immensely. The first su ... Read more

Jill Mullikin 😘 He has had many well wishers from this site and I know it has helped me immensely. The first surgeon I had contacted referred us here and called last week to check on Bash too. It’s such a small world and hard to believe that a few short months ago I had never even heard of a bicuspid valve. I’ll post updates tomorrow!!

Jill Mullikingot a new guestbook post

2780 days ago

Muhammad Riyaz posted a note for Jill that says:

Hi Jill: Sorry to hear about Sebastian. I pray and hope, that he will listen to you as this is the best for him. I had bicuspid valve, went through the ...Read more

Hi Jill: Sorry to hear about Sebastian. I pray and hope, that he will listen to you as this is the best for him. I had bicuspid valve, went through the surgery, and my doctor advised me to check the same for my children. Both my sons are doctors, and they do not heed on my words, hence I can understand your situation fully. Hope, you will become successful to convince the best option for him.

Jill Mullikin Thank you. He is scheduled for repair surgery tomorrow. Here’s hoping he’ll be back to a normal ... Read more

Jill Mullikin Thank you. He is scheduled for repair surgery tomorrow. Here’s hoping he’ll be back to a normal 19 year old in no time!!

Jill Mullikingot a new guestbook post

2783 days ago

Rob Sparling posted a note for Jill that says:

How is Sebastian doing? Cold still an issue? Does he have a new surgery date which is specific?

Jill Mullikin Hi Rob. He’s back having an angiogram right now and then we head up to talk to the surgeon again a ... Read more

Jill Mullikin Hi Rob. He’s back having an angiogram right now and then we head up to talk to the surgeon again and will know more then.

Jill Mullikin Our new date is Monday Sep, 17.

Rob Sparling Clarity is good! Remind him we are here for him (and you!).

Jill Mullikingot a new guestbook post

2784 days ago

Bill Gillam posted a note for Jill that says:

Best wishes on your surgery, Jill. Have a speedy recovery!

Jill Mullikingot a new guestbook post

2786 days ago

Sue Tom posted a note for Jill that says:

Sending best wishes to Sebastion for a successful surgery and a smooth recovery. Jill, you rock as a mother!

Louanna Miller Praying for Sebastian as he has his surgery. Praying for a successful surgery and recovery.

MARIE PICUN Prayers for successful surgery and speedy recovery

Sending prayers your way for a successful surgery and smooth recovery. I know you are strong like you ... Read more

Sending prayers your way for a successful surgery and smooth recovery. I know you are strong like your mother Sebastian and will be home and enjoying life before you know it.

Jill Mullikingot a new guestbook post

2788 days ago

Carole Harvey posted a note for Jill that says:

Hi Jill Will be thinking of you and your family as you set out on your journey to the hospital. Every good wish coming to Sebastion from England for his ...Read more

Hi Jill Will be thinking of you and your family as you set out on your journey to the hospital. Every good wish coming to Sebastion from England for his surgery on Thursday and for his recovery.

Rob Sparling Sebastian, you’ve got this, buddy! Your mom is paving the road for you! Step on that gas pedal, r ... Read more

Rob Sparling Sebastian, you’ve got this, buddy! Your mom is paving the road for you! Step on that gas pedal, roll down the windows, push open the sunroof and pump up the radio on this incredible journey! You are almost there!

Jill, you are a mom. Which is saying that you are a hero, angel and warrior all wrapped up in one! ❤️ You are doing the right thing and making good decisions! Don’t stop!

Jennifer McInerney Sebastian and family - greetings and well wishes from Canada. Hope everything goes well and you have ... Read more

Jennifer McInerney Sebastian and family - greetings and well wishes from Canada. Hope everything goes well and you have a speedy recovery.

Jill Mullikin Thank you!

Jill Mullikingot a new guestbook post

2794 days ago

Rob Sparling reacted to this

Jill, search for Cathleen DeWitt's journal. She is a woman who had her aortic valve replaced at a young age. Her last replacement valve was done by TAVR. It ...Read more

Jill, search for Cathleen DeWitt's journal. She is a woman who had her aortic valve replaced at a young age. Her last replacement valve was done by TAVR. It is an inspiring journal. She was 19 when she received her first valve. Best regards, Karen Warren

Jill Mullikin Thank you!

Jill Mullikingot a new guestbook post

2794 days ago

Judy Goldberg posted a note for Jill that says:

Jill, I know just what you’re going through. My 28 year old son had to have his aortic valve replaced, (tissue valve), aortic aneurism fixed, aortic root ...Read more

Jill, I know just what you’re going through. My 28 year old son had to have his aortic valve replaced, (tissue valve), aortic aneurism fixed, aortic root rebuilt, and a repair to the mitral valve. After he found out that he needed surgery, he spiraled into depression and sever anxiety. He was terrified. We went up to the Cleveland Clinic for surgery from Atlanta. The surgery went well, but unfortunately he developed pericarditis about 2 months after his surgery. We’ve been back and forth to Dr. Klein in Cleveland; he’s a pericardial specialist. It’s been a major struggle for him, and he has once again fallen into a deep depression. He refuses to go back to the doctor right now, and is not getting help for the Depression. I feel so helpless, but pray that he’ll come out of it soon; and that we’ll find a way to solve this chronic, intractable, pericarditis.

Jill Mullikin Hi Judy! I’m sorry to hear you are going through the same thing but I literally have tears in my e ... Read more

Jill Mullikin Hi Judy! I’m sorry to hear you are going through the same thing but I literally have tears in my eyes to know that someone really “gets me” for lack of a better way to describe it. We leave next Sunday for Pennsylvania and surgery is scheduled for the 13th. If you don’t mind I’d love to stay in touch with you.

Jill Mullikingot a new guestbook post

2811 days ago

Carole Harvey posted a note for Jill that says:

Hi Jill , although my son is older than Sebastion , he has the same condition and needs surgery . also possibly a root repair which came as a total surprise. ...Read more

Hi Jill , although my son is older than Sebastion , he has the same condition and needs surgery . also possibly a root repair which came as a total surprise. I know what it's like to be a mum and worried sick about a precious son. I wonder if Sebastion would be encouraged by the story of Xavier Coleman who also had to have surgery for this condition , but afterwards now plays for the New York Jets! Sending you and your son kind thoughts.

Jill Mullikin Thank you! It does help to not feel alone!

Jill Mullikingot a new guestbook post

2821 days ago

Jill Mullikin reacted to this

Adam Pick posted a note for Jill that says:

Jill, Loved you last photo and message! Thanks for sharing!

Jill Mullikingot a new guestbook post

2821 days ago

Louanna Miller posted a note for Jill that says:

Jill, I just read about your son. I am wondering if you considered Northwestern Medicine in Chicago? They have a highly reputable cardiac institute and perform ...Read more

Jill, I just read about your son. I am wondering if you considered Northwestern Medicine in Chicago? They have a highly reputable cardiac institute and perform highly specialized valve repair and replacements, some minimally invasive. Their website is very thorough in explaining all that they offer. You can also call a number on the link for a second opinion and send information to them. I did this and will be seen later this week. Just wanted to share this with you. My best to you and your son.

Jill Mullikin I hadn’t investigated Northwestern but I will look into it!

Diane T Six months ago I had mitral valve repair done by Dr. Patrick McCarthy at Northwestern. I can't say en ... Read more

Diane T Six months ago I had mitral valve repair done by Dr. Patrick McCarthy at Northwestern. I can't say enough good things about him and his team, including the nursing staff on the cardiac floors. If you have any questions, please feel free to reach out to me directly :-)