Hi Jeniver! Hope all is well with you. Just writing to let you know that it is finally time for my surgery. My surgery date is November 2nd. I will be having ...Read more
Hi Jeniver! Hope all is well with you. Just writing to let you know that it is finally time for my surgery. My surgery date is November 2nd. I will be having the Aortic Valve replaced with a bovine valve. Right now surgeon does not see any problems with my ascending aorta, but did say if it looked weak he would replace it as well and that would change the valve to porcine with porcine aorta. Nervous but hopeful that all goes well and that recovery is swift. I was not showing any symptoms just went in for 3 month visit and tests showed valve getting very narrow. Again hope all is good and wishing you and your family the very best! Leticia
Hi Jeniver, so glad you updated your journal. It is good to hear you are stable and keeping active. Keep in touch and e-mail me anytime. I know the emotional ...Read more
Hi Jeniver, so glad you updated your journal. It is good to hear you are stable and keeping active. Keep in touch and e-mail me anytime. I know the emotional roller coaster we ride some days. God is Big. I love your profile pic. Beautiful family. My email is leticia@eliterx.net.
Leticia
Leticia de la Rosa Creasey posted a note for Jeniver that says:
Hi Jeniver,
Just read your post on my journal. Not sure how to answer from my journal, so searched for your first name and found you. Thank you for writing ...Read more
Hi Jeniver,
Just read your post on my journal. Not sure how to answer from my journal, so searched for your first name and found you. Thank you for writing in my journal. It means a great deal to me to talk with others that share the condition. It is Sept. now and I hope you update your journal or e-mail me to let me know how you are doing. Leticia
Suzanne Horton posted a note for Jeniver that says:
Hey, Jen, I am so sorry to hear this news; you are very strong and fearless and I know will pull through this and look back and laugh once more. Thinking of ...Read more
Hey, Jen, I am so sorry to hear this news; you are very strong and fearless and I know will pull through this and look back and laugh once more. Thinking of you and your family...sending you big hugs..
Suzanne
Well - Jen - Here I am looking to friend you on fb - and I came across your story. I am blown away, to say the least. Your strength is awesome. Hugs coming ...Read more
Well - Jen - Here I am looking to friend you on fb - and I came across your story. I am blown away, to say the least. Your strength is awesome. Hugs coming your way. <3
Ann DeBonis
hI Jeniver, I like the name Anna. I named my valve Elsie. With my anuersym people acted like you might explode. I did feel like a walk time bomb. Now I tell ...Read more
hI Jeniver, I like the name Anna. I named my valve Elsie. With my anuersym people acted like you might explode. I did feel like a walk time bomb. Now I tell everyone that I have been defuzed. Dont worry about everything it will all work out. Really waiting is the worse part.Good luck
Mooing all over
Linda H and Elsie AVR 9/19/12
Jeniver Piatt hello linda and good riddance elsie!!
how can i look u up? looks like u just got ur surgery. i woul ... Read more
Jeniver Piatt hello linda and good riddance elsie!!
how can i look u up? looks like u just got ur surgery. i would love to read your story. i do not find many women with an "annie or an elsie" and not one that has that plus a bicuspid valve. thanx for your support. i will b trying to look you up to read your story. thus far i have had no luck.
Hey Jen,
Amazing blog page. You were always the most organized and efficient person I know :-)
If anyone can make this appear not scary.. it\'s you. Vallie ...Read more
Hey Jen,
Amazing blog page. You were always the most organized and efficient person I know :-)
If anyone can make this appear not scary.. it\'s you. Vallie and I love you and please let me know if you need anything.
<3 love, Allison and Vallentina
Hey Jen,
Thanks for the update. I\'ve been thinking of you, Adam and the kids. AND I will keep trying to find a time to get together. Please let me know if/when ...Read more
Hey Jen,
Thanks for the update. I\'ve been thinking of you, Adam and the kids. AND I will keep trying to find a time to get together. Please let me know if/when you need any help with anything.
God Speed.
Jen Sp
Hi Jeniver, So far that is good news. But what about the valve. I think that is what is going to do it. My anuersym is staying about the same at 4.5 also but ...Read more
Hi Jeniver, So far that is good news. But what about the valve. I think that is what is going to do it. My anuersym is staying about the same at 4.5 also but my valve has gone down from 1.1 to .9
So now things have changed for me. Maybe that is what will happen with you as well. Good luck when you see the doctor, that will be the answer to look for.
Getting there
LInda H
Jeniver,
You asked a great question - should you have a plan of action? ABSOLUTELY!!! Be involved in the process, educate yourself and ask question of your ...Read more
Jeniver,
You asked a great question - should you have a plan of action? ABSOLUTELY!!! Be involved in the process, educate yourself and ask question of your doctor/surgeon, and here. You\'ll be amazed at how much better you feel.
Chuck Holmgreen
AVR 3/20
Hi Jeniver, Wishing you good luck on your test. I like the word heart purgatory. I think that is very well put. I feel like a china doll on a shelf and cant ...Read more
Hi Jeniver, Wishing you good luck on your test. I like the word heart purgatory. I think that is very well put. I feel like a china doll on a shelf and cant do anything cause of stress. I just had a nucular stress test last week. Dont want to do that one again. I was going to do the tread mill but at the last minute they changed their mind and had me lying down. I would have never made it walking. Had the shakes from the start, put it up to nerves but I dont think it was completely that as I was already nuked and didnt know it. Yes I just wanted out of my body but it didnt last to long. 3-4 minutes feels like 3-4 hours though. Good luck to you. Let us know how it turns out.
For the long haul
Linda H
Hi Jen-
For me the waiting was the hardest part.
I started to not feel well on 12/31/11 and up thru 5/7 until I got diagnosis!
In between that told I had ...Read more
Hi Jen-
For me the waiting was the hardest part.
I started to not feel well on 12/31/11 and up thru 5/7 until I got diagnosis!
In between that told I had astma, bronchitis and pneumonia. The pneumonia I might have had though.
My mitral valve leak went from mild in Jan/Feb to severe in May! Once I knew this and knew the inevitable(OHS needed) we were anxious to book.
That doesn\'t take away with all the fears that go along with it, but for me I think the fear of what could happen if I did not get the surgery was more stressful.
They were able to reapir my valve and nearly 7 wks out I have a renewed sense of life, family and friends.
You are your own best advocate so consider how you are feeling health wise both physically and mentally and remember that your family needs you in good health.
Good luck with your continued journey and keep us posted.
Karen Campo
Hi Jen, I\'m glad for you that at least you have a little more time to get prepared for the surgery you know will be coming but yuck to the waiting game, that\'s ...Read more
Hi Jen, I\'m glad for you that at least you have a little more time to get prepared for the surgery you know will be coming but yuck to the waiting game, that\'s never fun but you do have a wonderful waiting partner in Linda H. (love ya Linda). Keep us updated on you and how you are doing, and I\'m glad it sounds like you\'ve found your guy for the procedure when the time comes.
Cindy Pastrano
Hi Jen, Welcome to the wait club. This is a special little area where we all wait until who know when. I am in the waiting game too. I just keep walking and ...Read more
Hi Jen, Welcome to the wait club. This is a special little area where we all wait until who know when. I am in the waiting game too. I just keep walking and walking as it does help. I like to listen to the sounds of the birds when I go out it is calming.
Good luck to you.
For the long haul
Linda H
Jeniver, what wonderful news!
Hopefully you\'ll get many worry free years before you need to come back here.
Don\'t forget about us poor slobs awaiting the ...Read more
Jeniver, what wonderful news!
Hopefully you\'ll get many worry free years before you need to come back here.
Don\'t forget about us poor slobs awaiting the ole slice and dice! Take care!
Nancy B
Hey Jen That sounds like a wonderful idea. You guys have lots of fun and say Hi to Mickey for me. Have a safe trip and get all of the answers and you will be ...Read more
Hey Jen That sounds like a wonderful idea. You guys have lots of fun and say Hi to Mickey for me. Have a safe trip and get all of the answers and you will be fine and shine. Good luck to you.
For the long haul
Linda H
Hey babes it\'s so amazing to read the stories of all those going through this with you & know you have this amazing support system. While we don\'t know exactly ...Read more
Hey babes it\'s so amazing to read the stories of all those going through this with you & know you have this amazing support system. While we don\'t know exactly what you are feeling right now, we will be here for you; whatever you need! Remember you are strong & you will find your new normal will soon be better than ever!!Love you tons! Chappy & Scott XOXO