Debbie's Guestbook

I developed a keloid scar after open heart valve replacement surgery.all is good except it developed a white spot (like a small cyst). It oozed out and is now back to its normal size. What was that?

Hello Debbie- You had surgery the following month after mine and I wanted to let you know that yes I am also having a few issues still with one tender area of the full sternotomy that I had on Aug. 20th. of last year. There is a 3 inch area with Keloid scar that is tender and has a tendency to itch a bit and is very tender as it is at the center portion of the breast area and any lifting work where I am lifting my arms or doing side to side motion seems to still aggravate it even though I have been good to do stretching, etc. My doctors say that the chest wall area being a very active area is one of the last places to heal up and for some the process takes a while longer than others and to be patient!

Coming up on my 2 year anniversary of my Aortic Heart replacement and my scar still itches and I still get some pain in my sternum. No burning pain like you described. Just itches now end then. The sternum pain is down low at the bottom of the ribs and it comes and goes also.

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See you originally went to Dr. Gillinov and actually were in operating room before surgery was called off........very unusual to say the least. Didn't they know the results of all tests before putting you under??? Just curious. Alan from Marietta, Ga here. I'm scheduled for isolated tricuspid valve repair (very rare from what I hear) with Dr. Gillinov on 12/11/14. Fortunately, I think it got caught (from my persistence I might add) before significant heart damage as I'm basically asymtomatic at this point. Looks like Cleveland has several tests lined up for me when I get up there. I've already had $40k worth of insurance costs on testing in Atlanta but assume they want to be extra sure before starting to cut. I'd go in tomorrow if they called and am very grateful to even have the chance to have this repaired as only 5-10 yrs ago, surgeons typically wouldn't do an isolated tricuspid repair unless the patient was symtomatic (ie: more heart damage). Think they've learned that's not the wise approach and are being more aggressive regarding tricuspid surgery. Hope your recovery starts to smooth out and you're back to normal soon. Best wishes.

Debbie, I awoke early this morning, and you came to mind. I started praying for you, and I hope this finds you much better. "Be of good courage, and He shall stengthen your heart, alll you that hope in the Lord" Ps 31:24

I am posting here because I can not log in. We are on the way to Chicago. Our local hospital wanted to admit me, we chose to go to Chicago. My lungs are in bad shape. They could not tell between pneumonia, fluid,infection. I needed a drainage tube and other test.I have been running temperature, deep couph, lots of drainage from my incicion, difficulty breathing, nausea etc. We should be in Chicago around 10:00pm. I am asking for your prayers, for healing and strength. Our 12year old has a big birthday this weekend... just wanted to be home.

Hi Debbie I was told drainage was normal or something to that effect, amount lessened at passing days but the medical staff did change the dressings and checked the site for infection (I guess) , however I had aortic valve replacement surgery and I just read your had repair, best to check with your surgeon and medical personnel. I guess the home nurse and physical therapist are sent to those with Medicare and secondary excellent government medical insurance, nice if everyone had the same privilege. Your procedure was two weeks ago and they should instruct you whether it needs to be reaccessed, my drainage was slightly over two weeks but it lessened gradually. Hope and pray you will be fine and your medical advisors will respond which I'm certain they will address the problem Best Wishes Geri

Hi Debbie I had drainage up to 2 weeks post op, I went to rehab hospital following 5 days in surgical hospital, so for 2 weeks following surgery did have drainage, since the on staff nurse and later at home nurse always checked the site. Please do contact your surgeon and I'm sure he will guide you and your Cardiologist , do you have a nurse visiting you at home after surgery, usually for two weeks if all goes well a nurse and physical therapist are sent on separate days to monitor the patient Best wishes and you have a beautiful family

Hi Debbie, I've been following your journey for quite a while. Happy to read things are going well. Getting home is one of the best parts of the recovery.

Thinking of you today, and praying for your recovery. "Being confident of this very thing, that He who hath begun a good work in you will perform it until the day of Jesus Christ" Philippians 1:6

Debbie, thanks for telling me about talking with the anesthesiologist. Can you be any more specific about what to mention? I'm so glad you are home. I know these days must be tough but I trust they will get better. Sue

Debbie, I used a regular plug-in heating pad like they sell in a pharmacy like Walgreens, CVS, Rite Aid. Nothing fancy, but I got one with a switch that turns it off automatically if I fell asleep. And nothing felt better. Once home, just move it with you as you change positions or locations. Hoe it helps! Ginger

Of course the men in your life are wonderful! Just like you Debbie and they love you! We are all sending well wishes for you to speed your recovery. Gabi x

Hi Sis, I am so glad you made it through surgery ok. I know the last few days have been rough but hang in there. I can always remember Dad telling me that. You have a great support staff back in Camden. Holly and I pray and our Church family pray for you daily. Just wanted to know that I love you and miss you!! Tell Phillip and Josh I said hello. Working late tonight.

Hi Debbie, I'm glad you are still hanging in there! You asked Ernie about a drop in blood pressure…….that happened to me on about day 5. I was being discharged from the hospital, and when I stood up to get in the wheel chair, I passed out. They kept me in the hospital for a few more days and lowered my metropolol and tried to get my meds balanced out. I didn't pass out anymore, but i did still get dizzy whenever I stood up. Part of that may have been due to anemia. Stay strong. There are a lot of ups and downs those first couple weeks, but you will gradually get better. Godspeed…..