Guestbook of Carson Hodges

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Carson Hodgesgot a new guestbook post

3489 days ago

Lilly Black posted a note for Carson that says:

Hi, Jamie, and Carson. I read your story and my heart goes out to you both! I also have a son, who is 35 in April, but doesn't have my heart condition. I ...Read more

Hi, Jamie, and Carson. I read your story and my heart goes out to you both! I also have a son, who is 35 in April, but doesn't have my heart condition. I am amazed that kids also experience heart valve conditions. Please read my story. I didn't know I had a BAV until an aneurysm was discovered in my aorta. I had symptoms all my life, but at 55 I was not doing well, and I knew something was wrong. I had 2 open heart surgeries. I have been doing very well! I also try to maintain all aspects of my health by eating well, exercising etc. If you ever have any questions, feel free to reach out to me. I wish you both the best. Please note, that most people do well after surgery! so keep that in mind. Take one day at a time, and know that people are here on this site to support you. Take care.

Carson Hodges Hi Lilly! It is so nice to hear from you! I read your story and whew, you have sure been through a lo ... Read more

Carson Hodges Hi Lilly! It is so nice to hear from you! I read your story and whew, you have sure been through a lot! I wish you well on all that comes your way! I just keep praying my little guy doesn't have any changes for a long long time. I can't imagine having to watch him go through surgery/recovery. I am just trying to stay positive and try not to think about it too much. Look forward to keeping in touch and following you on your journey as well:)
-Jamie

Sophia Ridley Hi Jamie and Carson, I have a genetic condition called EDS hypermobility which affected my mitral val ... Read more

Sophia Ridley Hi Jamie and Carson, I have a genetic condition called EDS hypermobility which affected my mitral valve causing prolapse. I found out my valve had a slight leak by chance as a teenager and was never monitored, the EDS was only diagnosed last year. Usually it remains mild but mine didn't and it was repaired in November. I'm 42. You may not need to do anything for a while yet. I was never great at sport but I did a 3 mth sailing trip after univ and did offshore yacht racing before having kids (!). I've been travelling and done all the things 20s and 30s do. Hopefully Carson will not need any treatment for a long while and enjoy a normal childhood and into adult life. Good that he'll be monitored.

My younger daughter has hypermobility (what led me to my diagnosis) and my elder is showing signs; I'm concerned that they actually have EDS too and so now and again I'm putting my ear to them to check. I'm still toying with the idea of getting them checked by a cardiologist privately. On learning of my op, her consultant said they would do an (NHS funded) echo at 18 unless she's breathless in meantime as the heart's still developing. Murmurs can be innocent ones at this age, she's 4 soon. I've been trying to be very positive with them about my op, just in case.

Lilly Black Jamie, I hear you! Let's hope little Carson never needs any surgery. But if he does, know that techno ... Read more

Lilly Black Jamie, I hear you! Let's hope little Carson never needs any surgery. But if he does, know that technology is positively progressing. I surpassed my Aunt's age, when she passed away at 61. I will be 65 this year, and I feel really good. I have at least 15 - 17 more years on this valve. My very best wishes go out to you and Carson! :)