Anastaisia, I also have severe 4+ TR, but I have been having symptoms for a while now. I am looking at transcatheter and possible minimally invasive with... Read more
Anastaisia, I also have severe 4+ TR, but I have been having symptoms for a while now. I am looking at transcatheter and possible minimally invasive with Northwestern in Chicago. I have also been through 8 years of monitoring and find it very difficult to find much information on outcomes and numbers. My Surgeon and cardiologist say this is due to there not being many recent studies as they are all more than 5 years old, it is hard to quantify. The good news is that there are now more options for us and the outcomes keep getting better. I am having some extra difficulty because of my nickel allergy and there is nickel alloy in many of the devices, so I will be going for something called patch testing on June 24th to find out if I can have the surgery they are reccomending is best for my posterior leaflet that is the main culprit. I would ask questions and don't be shy about asking anything when it comes to advocating for yourself and your care from your cardiologist. I would love to try my best to answer any questions you may have if I have the answers. Timing TR is tricky and it can be isolating to be a TR patient for sure, so please feel free to reach out any time. We are all here for you
Anastasia B Thank you for reply! All the best with your procedure, I hope transcatheter will work for you, I hear ... Read more
Anastasia B Thank you for reply! All the best with your procedure, I hope transcatheter will work for you, I heard great things about this new option .
Kimberly Eisenhut I am not sure I can get it yet, but have to wait until my patch testing is complete. A lot of "ifs" r ... Read more
Kimberly Eisenhut I am not sure I can get it yet, but have to wait until my patch testing is complete. A lot of "ifs" right now, which is hard to handle most days. How are you doing?
Anastasia B I hope you will get clarity soon on your next steps! I’m planning another trip to Germany to anothe ... Read more
Anastasia B I hope you will get clarity soon on your next steps! I’m planning another trip to Germany to another clinic. Basically looking for the most experienced surgeon in tricuspid valves repair.
I am from: Dublin, Ireland , Ireland
I also have severe 4+ TR, but I have been having symptoms for a while now. I am looking at transcatheter and possible minimally invasive with... Read more