I’m new here. I came across this community while researching my case and looking for some success stories.
I have CHD - pulmonary stenosis. I had a balloon valvuloplasty when I was 4 years old and it was successful and fixed the stenosis. However, it looks like as a results of late stenosis fix (I believe these surgeries are now done to newborns), I developed tricuspid valve insufficiency.
It was closely monitored in the last 8 years, I had 2 successful pregnancies, and last year my cardiologist recommended to plan a surgery to repair tricuspid valve as it is leaking a lot and obviously it will only get worse in the future.
I got opinions from other cardiologists (Germany and Switzerland, I’m based in Dublin, Ireland), and everyone is aligned that I need a surgery but the timing is not clear. I don’t have any symptoms despite severe TR and some suggested to keep monitoring, but some suggest to do a repair sooner in next 6-12 months and not to wait for symptoms to come.
They suggest minimal invasive valve repair (cut from the side), and unfortunately new technologies like TAVI are not recommended for younger patients :(
It is hard to find any data on isolated tricuspid valve repair and what is the success rate / long term outcomes for young patients.
If anyone has any stories to share in TR treatment - happy to hear!
Sue Maize Welcome to the HVS community Anastasia! There is great support here and a wealth of experience. I had ... Read more
Sue Maize Welcome to the HVS community Anastasia! There is great support here and a wealth of experience. I had a severely leaking TV last year…it had progressed quite quickly from mild in March to severe in June—initially I was scheduled for an aortic valve replacement, but the leaky valve was picked up soon after. A repair is much better than a replacement so I would press for sooner rather than later. PS. Ireland is like a second home to me! Slan for now! 💚
susan harris do research and pick a few surgeons. many non this site get 3-4 opinions. see who you feel comfortabl ... Read more
susan harris do research and pick a few surgeons. many non this site get 3-4 opinions. see who you feel comfortable with. they all specialize in different things do they may tell you different approaches. not bad or good-what fits w you? ask them the pros cons benefits and risks. you can do this!
Mary Willett Welcome Anastasia!!! I too have had pulmonary vavluplasty 30 years ago at age 25. I also had a bicu ... Read more
Mary Willett Welcome Anastasia!!! I too have had pulmonary vavluplasty 30 years ago at age 25. I also had a bicuspid aorta and had an enlargement of the aortic toot and the valve replaced last week. No tricuspid issues.
Anastasia B Thanks everyone for warm comments! The plan is indeed to keep talking to various surgeons and pick th ... Read more
Anastasia B Thanks everyone for warm comments! The plan is indeed to keep talking to various surgeons and pick the most optimal plan. I’m leaning towards the operation sooner than later
Dan Fouratt Anastasia, welcome to the club. In my journey I had a friend/consultant. he saw me for over 15 year ... Read more
Dan Fouratt Anastasia, welcome to the club. In my journey I had a friend/consultant. he saw me for over 15 years however could not practice where I lived. My local doctors called is severe stenosis, he did not agree. however he said it will be in a few years and if you are ready go forward. I was in as good of shape as I have been in years so I went forward. I too had no symptoms and had the mini. Long winded way of saying do it when it is good for you as long as you have that choice.
I am from: Dublin, Ireland , Ireland
I’m new here. I came across this community while researching my case and looking for some success stories.
I have CHD - pulmonary stenosis. ...Read more
I’m new here. I came across this community while researching my case and looking for some success stories.
I have CHD - pulmonary stenosis. I had a balloon valvuloplasty when I was 4 years old and it was successful and fixed the stenosis. However, it looks like as a results of late stenosis fix (I believe these surgeries are now done to newborns), I developed tricuspid valve insufficiency.
It was closely monitored in the last 8 years, I had 2 successful pregnancies, and last year my cardiologist recommended to plan a surgery to repair tricuspid valve as it is leaking a lot and obviously it will only get worse in the future.
I got opinions from other cardiologists (Germany and Switzerland, I’m based in Dublin, Ireland), and everyone is aligned that I need a surgery but the timing is not clear. I don’t have any symptoms despite severe TR and some suggested to keep monitoring, but some suggest to do a repair sooner in next 6-12 months and not to wait for symptoms to come.
They suggest minimal invasive valve repair (cut from the side), and unfortunately new technologies like TAVI are not recommended for younger patients :(
It is hard to find any data on isolated tricuspid valve repair and what is the success rate / long term outcomes for young patients.
If anyone has any stories to share in TR treatment - happy to hear!
PS. Ireland is like a second home to me! Slan for now! 💚