Anastasia's Posts

Hello! I'm new here. I came across this community while researching my case and looking for some success stories. I have CHD - pulmonary stenosis. I had a balloon valvuloplasty when I was 4 years old and it was successful and fixed the stenosis. However, it looks like as a results of late stenosis fix (I believe these surgeries are now done to newborns), I developed tricuspid valve insufficiency. It was closely monitored in the last 8 years, I had 2 successful pregnancies, and last year my cardiologist recommended to plan a surgery to repair tricuspid valve as it is leaking a lot and obviously it will only get worse in the future. I got opinions from other cardiologists (Germany and Switzerland, I'm based in Dublin, Ireland), and everyone is aligned that I need a surgery but the timing is not clear. I don't have any symptoms despite severe TR and some suggested to keep monitoring, but some suggest to do a repair sooner in next 6-12 months and not to wait for symptoms to come. They suggest minimal invasive valve repair (cut from the side), and unfortunately new technologies like TAVI are not recommended for younger patients :( It is hard to find any data on isolated tricuspid valve repair and what is the success rate / long term outcomes for young patients. If anyone has any stories to share in TR treatment - happy to hear!