About Me (In My Own Words)
I have lived with cardiomyopathy since 1998. Currently I am on my fourth ICD (CRT-D) and over the years have received 4 shocks.
In November 2021 an echo found "severe" tricuspid regurgitation. Since then I have had a heart cauterization, a transesophageal echo (TEE) and just last week had a two our regular echo. I am under consideration for the Triluminate valve repair trial. I think I will know my status by the end of May. Anyone here enrolled in the trial? update; none of the current U.S. tricuspid trials want me because I have two ICD leads that pass through my tricuspid valve. A chinese trial may be able to accommodate the leads but so far the trial is only in Europe. Time will tell.
Latest:
I am participating in a trial to study the Tric Bicaval Valve repair system. Since getting the new valves my tricuspid regurgitation has decreased and my energy has increased. University of Virginia medical center was terrific as was the surgical team
More Info About Me & My Heart
More About Me
-
I am from:
Winchester VA
-
My surgery date is:
May 28, 2025
-
I was diagnosed with:
Tricuspid Regurgitation
-
My surgery was:
Tricuspid Valve Repair
-
My surgeon is:
Dr. John Saxon
-
