Judy posted a note for Sheila that says:
Hi Sheila ... congrats ! looks like you are coming up to your 3 year anniversary soon enough. I will be having AVR in less than 2 weeks, and I just started to read your journal. already I identify. Have to smile when I read that you were hiking on the PCT while you waited. I am a PCT "fan" ... not done it, just read every book on it! thanks for sharing ... I am off to finish reading your journal. Hugs,
Thanks so much for your well wishes for surgery. I am ready!
That would be great to meet in SD in September! How much fun to meet a true success story!...Hey, just thought...that will be me too! yea!
I do already have that week off.....I definitely plan on going to the hospital...and some quiet reflection sitting outside the window I believe was my ICU room.... I also plan on sending my thanks to the ICU staff and my surgeon......just a time for being humble and thankful.
Congrats on your 1 yr anniversary! I will have my AVR on 7/17/12, & I am looking forward to the massage therapy provided @ CC!!! How wonderful you can help heart patients with your "magic hands" and be able to truly relate to them! What a great opportunity to pay if forward.
Diggin the cookies! It is almost lunch time here....now I am hungry! :):)
Thanks for sharing,
Hey Sheila...It's Mari. Sorry it has been awhile since you emailed me. I read your blog about how you are now massaging HVR patients. That is awesome!! I certainly could have used that during recovery. Yes, our one year anniversary has come. What an amazing marker in our lives. Have you already gotten together with other patients from our blog site? I hope not. I just finished my work as a teacher and got back from vacation with my family. Now summer can begin. I am actually trying to figure out what my next steps will be. A year of healing and a year of change.
I just had my heart rate checked yesterday as I went to the doctor for something simple . Anyway, resting HR was 72. I couldn't believe it! No wonder I feel so good. I started running again and feel great! I got busy there for awhile but am now back into it.
Anyway, Sheila...look forward to talking with you
Follow Your Heart
I am thrilled not only for your job. but that more patients will get a massage instead of a pain pill. My friend came in and massaged my back and neck and for two days I had NO PAIN. It is go good that the doctors are finally getting it.
I had very little pain meds b/c I had massages, mind jouneys and oils to pull me through.
Thanks for sharing
Just read your journal, what an inspiring story, I'm scheduled for AVR on June 11th, it good to hear that it does get better, how's the blood thinners, I will too have to take it, so I'm a little concerned about that. Take care and keep posting for us pre -surgery folks.
Sheila. Thx for your neat post. If you recall ( tho I doubt it). You were the very first person I had gotten in touch with last fall - before my procedure 2-9-12. Mainly due to the same reason. I enjoyed your posts
Guess fun people find fun people seems that way. For some reason you were doing something ( don't recall exactly what ) & we didn't get to connect.
All is good tho !
I have one more perm to do for chuck h. Them ill " retire". LOL.
I'm 5 weeks out & feeling great. It's been a trip !
Thx for YOUR positive spin on it all as well.
Do stay in touch
Best to you. Nanc. 2-9-12. AVR. . D O N E ST LOUIS
Sheila, thanks for posting. I go on on Feb 2 for AVR since I have had a regurg for 10+ years. I never get tired of hearing how the waiting is the hardest part. But, I guess I must be stupid or something as no matter how much I read it, I still can't get it into my thick skull. I am still stressing big time some of the time. Maybe I never will get it. But, in the end, I suspect I will be the guy telling everyone they were right, waiting is far worse. So why have I stop stressing.....
Hi Sheila, I am Linda, aortic valve replacement and dilated aorta repair in the near future. I don't have a date yet, hopefully going to Cleveland Clinic to Dr. Marc Gillinov. I have spent the last few minutes reading your journal and I have to say I think you are going to be my hero! I am really stressing, waiting is driving me nuts. Not that I WANT surgery, but I'm tired of it being an issue. I've known for years of the stenosis, has progressed from mild to severe over the years, but if I have any symptoms they are subtle and vague. My husband passed away 2 years ago and I am just thankful that the Lord answered my prayer that my valve would hold out for me to take care of him. Then we discovered the dilated aorta, they seem to run in my family. So it seems it is now time for surgery. I am glad that you seem to have recovered very quickly and back to "normal". Thanks for sharing in your journal.
Hi Sheila. I do most of my hiking in the San Gabriels. A lot of trail runs up there too. And now that winter is coming on, I'm wanting to put some mountain miles on my new back-country skis too. Was much nicer though before the Station Fire. Now its a bit more of a drive to get up into the unburned parts. Have a Merry & Happy -- DVB
Hi Sheila! Happy upcoming holidays. You know your story about hiking is so true. I went for a run with my buds a couple of weeks ago and they turned around before I was ready. So I just kept on going for a 7 miler. Keep the beat -- DVB
Hi from fla keys. Where we are relaxing. Much needed. And yes - Every time I go to sign up it just will not allow me to. Strange
Anyway had a nice conversation with the dr's nurse & some of my anxiety is going away Feb 9 will come soon enuf & I'm hoping for a speedy - uneventful recovery. Again thanks & have a great thanks ging. We all have so much to be thankful for nancy
It will last for 5 to 6 days then go away, then come back in two or three weeks. This current episode I was doing 200 pushups and 75 pull ups and running during my lunch break for the three days before the pain started so that could of really irritated some internam core muscles.
Shelia, It sounds like you are doing really well! Did the pain in your ribs go away for good? I'm thinking my pain might be from overexursion. Apparently it takes 6 months to a year for the body to heal completely.
Meant to ask you too, Sheila. Did u have mini - or full stern ? Also. Do u have any way I can email Adam pick to get signed up on this journal. I'm pretty savvy on this stuff but it keeps telling me I'm over limit when I try to sign up -- even if I don't put anything on it It doesn't like me ! And I'm not paranoid ! Lol. Nanc
Hi Sheila. Loved your upbeat message. Scheduled for avr feb 2012 & am excited too. For whatever reason this journal is not allowing me register. I keep getting weird message. It allows to to write. So ive been giving my email to those I wish to hear from. As I've got a few years on you - age wise im still motivated be renewing all the things I love to do & now tire me out. Thanks for Sharing. If u care to answer back. Im at
Nancy@telephonedoctor.com. With thanks & a great holiday season. You've earned ot !!
Sheila...enjoyed reading your latest entry. I am 4 weeks post AVR and starting to get back into the routine...driving, work, etc. I am looking forward to getting back to my runs and bike rides. Thanks for bringing me another smile.
Sheila!!!!! So glad you're doing well!!!!! We HAVE to get together next summer. You asked a while ago for my email. It's firstname.lastname@example.org. It would be so incredible to have as many of us get together as possible. OMG!!!!!!! :)
I'm sorry it has taken me so long to write back. Life got busy! I visited my hospital this past week....was in for INR check and decided to drop in to visit my nurses and for hug time. Gosh, lots of memories flooded me!
Ok, must get to grocery store, a band concert and Puss N Boots movie with my 7 year old!
Sheila, was your pain really severe? mine was and I could barely walk at times. All I could do is sit up in bed and not move. If I would get up to use the bathroom, all this pain would come shooting into my back, shoulders and chest.
Unlike you though, I have no real pain on my right side from the incisions. My surgeon explained to me that organs don't have nerves, therefore do not have feeling. So if I'm having pain which feels like my lungs, it could be my lungs hitting against some thing else that's inflamed like a muscle.