Stacey's Posts

Had my virtual visit with Dr. Gorodeski from the heart failure clinic at Cleveland Clinic. Since nobody has thoroughly investigated why I am having shortness of breath with exercise and doing normal every day activities and because you can't go by some of the testing that has been done we have start from scratch when we go up to Cleveland Clinic. They are starting with the basic tests such chest x-ray, resting echo, ekg, lung function tests and a Metabolic stress test. Dr. Gorodeski said that he would also be willing to do a heart catherization and a transesphogael echo as well. We are just waiting to hear from them about when I can get in for testing and meeting with Dr. Gorodeski. I also have to have my pacemaker checked out as well. I thought that things would run faster with getting me up to Cleveland Clinic and unfortunately its been hurry up and wait.

We sent my records up to Cleveland Clinic for a surgical review back at the end of August. Since not enough testing was done for a surgeon to recommend at valve repair or replacement we are going to be having a virtual appointment with one of their heart failure cardiologists on Monday, October 2nd at 8:00 am. We opted to do the virtual appointment because it was suppose get us up to Cleveland Clinic for testing and meeting a cardiologist sooner. Otherwise I had to wait until the end of October for appointment for testing and meeting a cardiologist face to face. We don't really know what the problem is. Just that I keep having shortness of breath and I can't exercise and I can't function to do normal everyday things and I am having shortness of breath off and on while sitting and pressure in the chest that comes and goes and constant chest pain. Back when I was able to exercise I also had fatigue. With not getting the help that I need . My mom and I have totally lost trust in the medical profession. I am extremely nervous about the virtual appointment with Cleveland Clinic. I am not going to get excited about going to Cleveland Clinic until I hear from a doctor that we are going to find out what is causing your symptoms and come up with a treatment plan that works for me.