I cant believe it has been 365 days today that I have open heart surgery. I would NEVER have guessed that I would feel so good. As most of you know I had emergency repair of my Mitro Valve. It was pumping 100% the wrong way. There were oh so many complications that it is amazing Dr Kirshner and his team were able to save my life. I don't say that to be dramatic - I say that because I know it to be true.
I had to have a second surgery in September to replace the valve as fixing it just wasn't working. Now I really am 100% and my girls think I sound pretty cool when they hear me tick.
I went through it all - the mental game, the pain, the major depression, and frustrations. But in the end it was all worth it. I can breathe, I can work, I can make dinner for my kids, I do homework with them (ok just the little one), I watch them grow and become exactly what they strive for, and best of all I realize there is nothing I cant do!
Life is far from perfect - but the people that stayed by me are the people that carried me through my darkest days. My entire family, my friends, and the love of my life - I owe all my actions to you. Thank you for loving me through it all, crying at midnight with me, and always being right by my side.
Today I get to take care of my girls, make sure they are the best they can be, and best of all I get to kiss them every day and night. I still yell out to the bus to "Change the world" - and that they do :)
How much luckier can I be. I love you all - and here is to another 365 days of ticking :) xo
Hello All ~
I can’t thank everyone enough for all the kind emails, texts, and prayers the past few weeks. The kindness is overwhelming….
Things are going GREAT! I feel a little better every day and am focused on the long life I get to live. I am 2+ weeks post surgery and home! I am able to move around pretty good – and have no serious complaints at all. I really feel like they got it right this time and it is really fixed. It’s the best possible scenario – and time will heal the rest.
This has been an amazing journey and there is no possible way I could have ever made it without my family and friends – I truly understand what kindness and love looks and feels like. I can’t wait to live my life and be able to share what has been shown to me….. I am the luckiest girl in the world to be surrounded by the best people.
It appears to be GO TIME! Surgery is set for Friday morning, My team of doctors are going to replace the Mitral Valve with a Mechanical Valve. I probably know more about the human heart than I ever thought I would. I can't understand why they wont let me assist in my own sugery :)
So - now we wait and stay calm. I am focussed on the end goal - to be home with my girls and be healthy and happy again.
Its a Beautiful Day .............
Thank you all for your love and support - very very appreciated.
This is my first journal entry - and I am hoping to share my story with the people I love. I am 44 years old and had my heart - Mitro Valve repair in Jan 2012. Everything went very well - although the recovery was long. I was starting to feel better, I could breathe, and no chest pain!
In August I noticed I was out of breathe all the time and had this horrible cough every time I tried to talk. For those that know me - I talk allot :)
I went to see my doctors and after many tests they have determined that the repair has failed and it is actually casing the red cells in my blood to be destroyed.
I can’t believe it - but I have to have another open heart surgery to replace the valve this time. It is a very surreal feeling knowing I have to go through this again with my family. I am struggling with remembering the physical pain and the mental angst I went through - and can only pray it will be a little easier this time.
People tell me to find a reason to stay focussed - and I always picture my little Emily and Erin and I know that what keeps me fighting. They need their mama - and I need them.
So we trudge this road together - and trust.
Surgery is set for the week of the Sept 10th - I will write more this week.
Thank you all for your love and support - you know who you are - and I am so very blessed to have you.
Hug your kids a little tighter tonight - because we just never really know when our worlds will turn upside down XO