Robert's Posts

Diagnosis: Aortic Regurgitation, Bicuspid Aortic Valve, Aortic Aneurysm

Member Since: July 9, 2019

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Robert Thompson posted an update
7 years ago (July 18, 2019)
Hello everyone, After my AVR surgery in 2012, I started experiencing more frequent ocular migraines and strange seemingly random woozy spells. I was really worried because I thought it was heart related. I told my PCP and cardiologist and they wrote it off as low blood sugar or lack of... Read more.
7 years ago (July 18, 2019)
Very helpful! Thank you! 🤯
7 years ago (July 21, 2019)
My AVR surgery was in 2016 and changed Tissue valve and ascending aorta along with removal of 2 blocks. Earlier i had the problem of dizziness but now perfect. Dizziness was not related to the heart.
Robert Thompson posted a photo
7 years ago (July 13, 2019)
Painting by a woman who has ocular migraines. Common occurrence after surgery.
👍 Meredith Bray, Mary Woods and reacted to this
7 years ago (July 13, 2019)
That's really good! Mine look like that, sparkling and glowing in the geometric shapes.
7 years ago (July 13, 2019)
Oh my, that's what I have seen, too! Not very often, thank goodness! ❤️
7 years ago (July 13, 2019)
Good representation of them. I've always had them but more since heart surgery.
7 years ago (July 13, 2019)
That's a good depiction of them!
7 years ago (July 14, 2019)
Excellent! Mine have blind spots, too.
7 years ago (July 14, 2019)
Exactly...I never had them before surgery...
7 years ago (July 14, 2019)
I get them as well. However, they usually pass in about 5 minutes. Interesting depiction and accurate.
7 years ago (July 16, 2019)
I had them several times a week before surgery. Now it's less than once a month. It would certainly be an interesting research project to find the link.
Robert Thompson posted an update
7 years ago (July 10, 2019)
Weird Symptoms Hello Everyone, I'm about 8 years out from my surgery (AVR St. Jude Mechanical valve and Aortic graft). I have very few complaints but, once in a great while, I run into some weird sensations that confuse me and my docs. Wondering if any mechanical valve vets have... Read more.
7 years ago (July 11, 2019)
I'm barely a VET in this, and have only been 7 months out since surgery, but I too had AVR with St. Jude Mechanical and aneurysm repair. I am not sure that I can answer much about 1 and 2 because I have pain still from the procedure, especially when... Read more.
7 years ago (July 11, 2019)
I agree with Sommer, 3&4 sound like occular migraine. Number 2 sounds like the weird very low level ache/sensation that I occasionally get where I had breast cancer surgery 9 years ago - I'm told it is a scar tissue/necrosis thing...best wishes as you continue to heal:)
7 years ago (July 13, 2019)
Thanks for the replies Sommer and Barbara. I have had ocular migraines all my life. They are exactly as you described them. A flashy aura that starts small and grow over time and is sometimes followed by a headache. I actually found an artist that draws ocular migraines into her... Read more.
6 years ago (March 18, 2020)
Robert, I am 16 months out from surgery and still experience migraines. Nearly daily. I have been seeing a neurologist and she said that for whatever reason my regular migraines have become a complex migraine. They literally mimic almost any type of migraine that is out there. One day I... Read more.
6 years ago (March 18, 2020)
Oh, and something that I just thought about as well on your 1 and 2 and can really help with pain for the headaches as well... My neuro sent me to a Physical Therapist to work on some of the tension from the migraines. He was actually a very big... Read more.

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