Robert Stanko
Birthdate: 01 March 1974
Male
174cm tall
64kg weight
No known Allergies.
1. Aortic Valve Replacement for acute staphylococcal endocarditis ...Read more
Robert Stanko
Birthdate: 01 March 1974
Male
174cm tall
64kg weight
No known Allergies.
1. Aortic Valve Replacement for acute staphylococcal endocarditis with aortic root abcess - Aug 1990
-Re-do aortic valve replacement - Medtronic Hall 06/01/1993
-Ross procedure 02.03.2995 for severe aortic regurgitation
- Pulmonary autograft aortic valve replacement, homograft pulmonary valve replacement with implantation of permanent pacemaker (dual lead).
- Repair of aorta to pulmonary artery fistula 10.05.1995
- Replacement of infected pulmonary homograft 10.07.1995
- Re-do aortic valve replacement for severe aortic valve regurgitation St Jude 27mms 28.03.01 (Professor Farnsworth - St Vincent Hospital. Sydney Australia).
- Mild residual paravalvular aortic regurgitation
2. Mitral valve prolapse with moderate regurgitation
3. Mild pulmonary hypertension
4. Permanent pacemaker for post-operative heart block. Generator change 02.03.2010.
5. Paroxysmal atrial flutter - Cardioversion 27.07.07; 08.09.10; 03.08.11
6. Cholelithhiasis with cholecystectomy 27.05.2010.
7. Chronic haemolytic anaemia secondary to prosthetic valve.
8. Unsuccessful Ablation for AF 25.07.2012 (Royal Newcastle Hospital - Dr Barlow)
9. Implantation of biventricular pacemaker 01.11.2012 (Royal Newcastle Hospital)
10. 2 x Titanium plugs installed to block paravalvular leaks in artificial aortic valve 27.08.13 (Dr Tanous - Westmead Hospital. Sydney)
11. Successful ablation of Atrial Flutter 13.08.14 (Royal Newcastle Hospital - Dr Barlow)
12. Aug-Dec 2014. Daily multiple PVC's, bigeminy, trigeminy, occasional episodes of NSVT (< 10) post ablation.
13. 3 x Titanium plugs installed to block paravalvular leaks in artificial aortic valve 15.10.14 (Dr Tanous - Westmead Hospital. Sydney)
14. 2015 - Onset of anxiety with ongoing PVC's throughout the year.
15. 2015 December - Epigastric pain, fluid retention, ascites, CCF. Enlarged heart. Commenced Frusemide diuretic medications.
16 2016 January - To be updated.
Medications:
Warfarin Sodium tablets (anticoagulant), 4mg to 5mg once daily oral. Therapeutic INR level 2.5-3.5 (night)
Ramipril Tablets, 2.5mg oral. Once daily (night)
Carvedilol/Dilatrend Tablets, 25mg oral. Twice daily (morning and night)
Frusemide (Lasix) 20mg once daily (morning)
Alprazolam (Xanax) 0.5mg as and when required.
My Cardiologist
Dr Garry Warner
58 Cleary Street, Hamilton. New South Wales. 2303
Australia
Phone: +61 249 621811, 9am-6pm
Robert Stanko January 2016 - Currently feeling very weak and tired. Spoke to my cardiologist on 18th January. I was ... Read more
Robert Stanko January 2016 - Currently feeling very weak and tired. Spoke to my cardiologist on 18th January. I was advised that heart wall had weakened and although I am getting 100% blood oxygen levels I am finding it difficult to breath at times. Keeping the fluid off helps. I'm 174cm tall and down to approx. 64kg in weight.
We discussed that we may possibly need to investigate a Heart Transplant. In the meantime getting blood tests and Xrays and CT chest results back.
Rob.
Clare Auten Welcome to the site. You, and your heart, have been through a lot. Good luck with whatever comes next ... Read more
Clare Auten Welcome to the site. You, and your heart, have been through a lot. Good luck with whatever comes next.
Jim Kelly-Evans Wow! What a history/ Do you still have the St. Jude prosthesis? Is it bio or mechanical? What are par ... Read more
Jim Kelly-Evans Wow! What a history/ Do you still have the St. Jude prosthesis? Is it bio or mechanical? What are paravalvular leaks? Sending best wishes and hoping you feel better soon.
Robert, you are a heart warrior! You must be an incredibly strong person. Sending you warm thoughts o ... Read more
Robert, you are a heart warrior! You must be an incredibly strong person. Sending you warm thoughts of health during this difficult period. Keep us posted on your progress. You have a built in team of supporters here. Best wishes to you.
Cheryl Batzing Robert, wow! Please keep us updated on your situation. Thoughts & prayers coming your way now!
Wanda Mroz Oh my gosh... You are so young to have gone through so much. You are a strong person. I wish you al ... Read more
Wanda Mroz Oh my gosh... You are so young to have gone through so much. You are a strong person. I wish you all the best.... Prayers and healing thoughts being sent.
Kate Watson Wow you've been through so much. You are a just a year old than me. I hope you find some answers an ... Read more
Kate Watson Wow you've been through so much. You are a just a year old than me. I hope you find some answers and relief soon.
Sophia Ridley Gosh! I know of someone indirectly who has had his heart rebuilt (surgery involved international vide ... Read more
Sophia Ridley Gosh! I know of someone indirectly who has had his heart rebuilt (surgery involved international video conferencing as new techniques were used and case unique) and is now contemplating mountain climbing this summer and runs half marathons! I can find out more if you want, his surgery was done at The Brompton, London.
Robert Stanko Thankyou for your kind words and best wishes.
Jim, its a mechanical heart valve. Post op there were ... Read more
Robert Stanko Thankyou for your kind words and best wishes.
Jim, its a mechanical heart valve. Post op there were leaks around or through the sutures holding the valve in position. What surgeons (Dr Tanous) did to combat this at Westmead Hospital in Sydney, was to insert umbrella like plugs through the holes around the valve to close the leaks. This was done via transcatheter surgery. They pushed the plug through the holes and released them. Imagine a Star Wars Tie Fighter looking titanium wire plug with a stop on both ends once in place. The aim was then to have fibrous tissues grow over the plugs and seal the leaks. This has been successful. However its my other valves and other structural issues that are giving me grief right now.
Still waiting on the call about the CT test results of the lungs, but Im just taking it easy day by day at the moment.
Robert Stanko Well so far I have a mechanical aortic valve (several redos and 3 or 4 replacements between 1991-2001 ... Read more
Robert Stanko Well so far I have a mechanical aortic valve (several redos and 3 or 4 replacements between 1991-2001), moderate leak in my own prolapsed mitral valve, homographed tissue pulmonary valve (19 years and counting), and unfortunately one of my biventricular pacemaker wires is pushing against the septal leaflet of my tricuspid valve and causing a leak and fluid retention and lethargy. Got a problem with my red and white blood cell count now and platelets are very low. Been on warfarin now for 27 years. Been a bit of an issue when evasive surgeries were required like gall bladder removal and kidney stone blasting, but am now due for all 4 wisdom teeth to be removed before May due to endocarditis infection risk. Im 43 years young and they still havent found the cause of the abdominal pain. A gastroscopy showed just mild gastritis in my belly made a bit more tender due to AC treatment. Within next 2 months I also am up for a colonoscopy to check if the pain is coming from the other end. I better keep a list of everything this body has been through! Lol. A bone marrow sample from my pelvis was removed without anaesthetic and I am producing and regenerating plenty of new cells but my red cells are dieing off quickly. Still under investigation by haemotologist. Hopefully its not my own body attacking and killing my blood cells like an auto immune disorder. A Pacemaker wire is also playing up which is a bit worrying because I have complete heart block from the amount of scarring from all my previous surgeries and couple of ablations thus far. Getting some runs of NSVT also. 2016 was a very bad year for me. I hope now in 2017 there is some action that will make me feel better. Feeling tired daily and lethargic due to valves and cardiomyapathy (enlarged and weakened heart). Crossing fingers I dont need to go down the path of a cardiac transplant yet as Im at 30% Ejection Fraction. Just putting thoughts into words to look back and read one day when I am better. I have 3 children aged 7-15 that need their daddy as much as I need them. Everyday is a struggle breathing but the diuretics help every 2 or 3 days without dehydrating myself daily. I feel this year theres a change coming on. Hopefully all good. Keep well everybody and exercise daily.
I am from: Australia, Australia
We discussed that we may possibly need to investigate a Heart Transplant. In the meantime getting blood tests and Xrays and CT chest results back.
Rob.
Jim, its a mechanical heart valve. Post op there were ... Read more
Jim, its a mechanical heart valve. Post op there were leaks around or through the sutures holding the valve in position. What surgeons (Dr Tanous) did to combat this at Westmead Hospital in Sydney, was to insert umbrella like plugs through the holes around the valve to close the leaks. This was done via transcatheter surgery. They pushed the plug through the holes and released them. Imagine a Star Wars Tie Fighter looking titanium wire plug with a stop on both ends once in place. The aim was then to have fibrous tissues grow over the plugs and seal the leaks. This has been successful. However its my other valves and other structural issues that are giving me grief right now.
Still waiting on the call about the CT test results of the lungs, but Im just taking it easy day by day at the moment.