Hello everybody!Hope you’re doing well!My name is Miguel, and I suffer from congenital aortic insufficiency. A few months ago, my cardiologist ...Read more
Hello everybody!Hope you’re doing well!My name is Miguel, and I suffer from congenital aortic insufficiency. A few months ago, my cardiologist advised me to have surgery to replace the damaged valve. This operation may take place in a couple of months. I am currently 46 years old, and my main question is which type of valve to choose. My cardiologist recommended a mechanical valve, and I understand the underlying reasoning: mainly that I wouldn’t need hopefully another surgery down the line. The downside is the need for lifelong anticoagulation. I’m a healthy and athletic person, and I’m not sure how much being on blood thinners would limit me. Of course, I know I wouldn’t be able to play contact sports, but I worry that something like a fall while cycling or hiking could become much more complicated. Of course, I’ve also read about the risks that come with anticoagulants and the strict monitoring involved (weekly or monthly blood tests, depending on the case) to stay within the right therapeutic range. At first, I was leaning toward a biological valve, but after reading that these don’t last very long in younger patients and that I’d likely need another surgery in just a few years, I started having doubts. Especially since I’ve read that open-heart reoperations are more complex and riskier. I also don’t know whether a second surgery could be done via transcatheter (given my age and the duration of the disease chronic aortic insufficiency). I’d really appreciate hearing from anyone who has gone through this, especially if you had surgery before age 50. What kind of valve did you choose, and why? I’d like to know which kind of blood thinners exist. I read somewhere that there are “intelligent” blood thinners, so to speak, which don’t need a such strict monitoring. Do you have any news about it?Thank you so much in advance. Miguel
Dan Fouratt Miguel, Sorry you are here but welcome. I was older so I did not have a decision. However one bit o ... Read more
Dan Fouratt Miguel, Sorry you are here but welcome. I was older so I did not have a decision. However one bit of advice I received from one Doctor when researching options for a brain tumor is "all decisions are right, after you make it do not second guess yourself but focus on making the path your choose work out best". I found this advice very helpful. Good Luck on your Journey.
Marie Myers I wonder if the Ross Procedure would be a possibility for you? You may have to travel for it though, ... Read more
Marie Myers I wonder if the Ross Procedure would be a possibility for you? You may have to travel for it though, as it should only be done by very experienced surgeons who are well versed in that particular procedure.
John Cook At 53, I went through the same questions. I didn’t want to have a second open heart surgery before ... Read more
John Cook At 53, I went through the same questions. I didn’t want to have a second open heart surgery before I retire and I didn’t want to go on blood thinners because I don’t want to be a couple miles into a trail run, have an injury, & then be in a hazardous situation.
I made sure I got a referral to a surgeon who specializes in Ross procedures so I could if I was a good candidate for it. Thankfully, I was. With a Ross, my relocated pulmonary valve should last into my 70s. Then I can likely have a TVAR or two to get me into my 90s or 100s, should the rest of me last that long.
Miguel Tolosa Thank you Dan, Marie and John. I really appreciate your comments. Unfortunately, I guess that the Ros ... Read more
Miguel Tolosa Thank you Dan, Marie and John. I really appreciate your comments. Unfortunately, I guess that the Ross Procedure is not an option for me. My cardiologist told me that where I live in Spain and in the hospital where I'll be operated they do not perform this procedure. It seems it is a very complicated procedure and it is not so common in my country.
Fidel Martínez Ruiz Miguel, I agree to Dan's advice. Any valve either mechanical or biological can be O.K. in your case.... Read more
Fidel Martínez Ruiz Miguel, I agree to Dan's advice. Any valve either mechanical or biological can be O.K. in your case. My brother has a mechanical mitral (13 years ago) and myself a biological one. We are both well and making sports, my brother golf and myself hiking in the Pirineos. Regarding the procedure, surgeons try to repair as a first option and replace the valve as a second option. Best regards
Miguel Tolosa Mucha gracias, Fidel, por tu mensaje. Thank you for sharing your experience and your brother`s too. ... Read more
Miguel Tolosa Mucha gracias, Fidel, por tu mensaje. Thank you for sharing your experience and your brother`s too. Surgeons told me that repairing is not possible in my case and therefore I only have the option for valve replacement. In any case, as you Dan and you suggested, any option should be right. Best regards
Fidel Martínez Ruiz Hey, Miguel, regarding to the Ross and in general other procedure to choose, either option depend on... Read more
Fidel Martínez Ruiz Hey, Miguel, regarding to the Ross and in general other procedure to choose, either option depend on the surgical school and not on the quality of surgeons. Ross procedure need a donor corpse and sometimes, surgeons weight the advantages and drawbacks of each procedure for each patient and choose the best and in which they are skillfull. I have implanted a Edward Magna mitral valve (18 months ago). Nowadays, I notice from some posts here that there is a new model, named Edward Resilia with very good results and a very long life, despite being a biological valve. You can comment this to your surgeon. Keep us informed!
I made sure I got a referral to a surgeon who specializes in Ross procedures so I could if I was a good candidate for it. Thankfully, I was. With a Ross, my relocated pulmonary valve should last into my 70s. Then I can likely have a TVAR or two to get me into my 90s or 100s, should the rest of me last that long.