Good evening, friends, Last Monday, November 17th, I underwent the aortic valve replacement surgery that had been scheduled for several months. In the end, ...Read more
Good evening, friends, Last Monday, November 17th, I underwent the aortic valve replacement surgery that had been scheduled for several months. In the end, for different reasons, I opted for the mechanical valve (Corcym Bicarbon Slimline), taking into account my age (46) and the fact that the Ross procedure is not performed at my hospital. Everything went well. After two days in intensive care, I was moved to a regular ward, and three days later (Saturday, November 22nd) I was discharged and returned home.
Everything was perfect; I felt very well and was able to take short walks without any problems. However, on Sunday night, I had a very strong coughing fit that was extremely painful for my sternum and left me semi-conscious. During that time, I kept asking the same questions over and over. I didn’t know whether I had been operated on or not, what valve had been implanted, etc. I decided to see a doctor, and they told me it could be due to a vasovagal nerve activation triggered by the pain.
They ran some tests and confirmed that everything was in order: the valve was still working properly and my heart in general as well. Over the next few hours I began to recover my memories, although some are still vague and I feel quite dazed. Cognitively, I don’t feel 100%. It’s also true that I haven’t been able to sleep well at night. And sometimes I feel dizzy.
Despite everything, I make an effort to go for my daily walk. Has anyone experienced something similar? I’d appreciate any comments or any piece of advice. Thank you very much in advance.
J Alexander Lassally Gosh sounds scary. Some folks on here have experience with the nerve condition. I will say this - ... Read more
J Alexander Lassally Gosh sounds scary. Some folks on here have experience with the nerve condition. I will say this - the anount of anesthesia product we go through is enormous for open heart surgery - and your body is processing this for some time... The nervous system has to recover after all of the bypass treatments. This could impact things, too.
Miguel Tolosa Thanks, J Alexander, for answeing. I feel much better right now. I guess this is or could be a plausi ... Read more
Miguel Tolosa Thanks, J Alexander, for answeing. I feel much better right now. I guess this is or could be a plausible reaction witihin the overall recovering process. Best.
Fidel Martínez Ruiz I didn´t feel anything like your symptom, I think it happens in occassions as fellows say on here. ... Read more
Fidel Martínez Ruiz I didn´t feel anything like your symptom, I think it happens in occassions as fellows say on here. I think that mechanical valve is a good choice given you are young. I have a nearby example with my brother who wears one and it works very well with the necessary care of taking anticoagulant, very important. Keeping in touch!
John Cook Coughing really sucks for a long time. I’m glad they didn’t find anything of concerns.
I have no memory of the first 1.5 - 2 days after surgery. I’m assuming it was a combo of the anesthesia & pain meds.
It sounds like you could have postperfusion syndrome, aka pump head. It’s usually a short term side effect of being on the cardio-pulmonary bypass machine. ... Read more
John Cook Coughing really sucks for a long time. I’m glad they didn’t find anything of concerns.
I have no memory of the first 1.5 - 2 days after surgery. I’m assuming it was a combo of the anesthesia & pain meds.
It sounds like you could have postperfusion syndrome, aka pump head. It’s usually a short term side effect of being on the cardio-pulmonary bypass machine.
I also had a lot of post-surgical dizziness, mainly when standing up. It was a combination of the surgery and getting used to my resting blood pressure being in the 100s instead of the 130s.
Eric Hanson I just had my aortic valve replaced 5 weeks ago, sounds like even though you had that bad experience, ... Read more
Eric Hanson I just had my aortic valve replaced 5 weeks ago, sounds like even though you had that bad experience, you have an awesome attitude about it and trying to learn and deal with the effects. I haven't had to deal with any experience like that with the memories. As for coughing and pain, of course I have had that and kind of wished i was unconscious for it. , so no personal insight to share, but just to let you know there are a lot of people to stand with you and help.
Miguel Tolosa Thank you very much, friends, for all your comments. I really appreciate it. I am feeling good now an ... Read more
Miguel Tolosa Thank you very much, friends, for all your comments. I really appreciate it. I am feeling good now and everything seems to be under control. I am still quite tired though. In any case, everyday I try to walk for 15-20 minutes at a slow pace. My blood pressure is lower than before the surgical procedure (100-70) and my heartbeat is higher 90-100 bpm. I guess my heart and body are adapting to their new condition. best regards, Miguel
Hello everybody!Hope you’re doing well!My name is Miguel, and I suffer from congenital aortic insufficiency. A few months ago, my cardiologist ...Read more
Hello everybody!Hope you’re doing well!My name is Miguel, and I suffer from congenital aortic insufficiency. A few months ago, my cardiologist advised me to have surgery to replace the damaged valve. This operation may take place in a couple of months. I am currently 46 years old, and my main question is which type of valve to choose. My cardiologist recommended a mechanical valve, and I understand the underlying reasoning: mainly that I wouldn’t need hopefully another surgery down the line. The downside is the need for lifelong anticoagulation. I’m a healthy and athletic person, and I’m not sure how much being on blood thinners would limit me. Of course, I know I wouldn’t be able to play contact sports, but I worry that something like a fall while cycling or hiking could become much more complicated. Of course, I’ve also read about the risks that come with anticoagulants and the strict monitoring involved (weekly or monthly blood tests, depending on the case) to stay within the right therapeutic range. At first, I was leaning toward a biological valve, but after reading that these don’t last very long in younger patients and that I’d likely need another surgery in just a few years, I started having doubts. Especially since I’ve read that open-heart reoperations are more complex and riskier. I also don’t know whether a second surgery could be done via transcatheter (given my age and the duration of the disease chronic aortic insufficiency). I’d really appreciate hearing from anyone who has gone through this, especially if you had surgery before age 50. What kind of valve did you choose, and why? I’d like to know which kind of blood thinners exist. I read somewhere that there are “intelligent” blood thinners, so to speak, which don’t need a such strict monitoring. Do you have any news about it?Thank you so much in advance. Miguel
Dan Fouratt Miguel, Sorry you are here but welcome. I was older so I did not have a decision. However one bit o ... Read more
Dan Fouratt Miguel, Sorry you are here but welcome. I was older so I did not have a decision. However one bit of advice I received from one Doctor when researching options for a brain tumor is "all decisions are right, after you make it do not second guess yourself but focus on making the path your choose work out best". I found this advice very helpful. Good Luck on your Journey.
Marie Myers I wonder if the Ross Procedure would be a possibility for you? You may have to travel for it though, ... Read more
Marie Myers I wonder if the Ross Procedure would be a possibility for you? You may have to travel for it though, as it should only be done by very experienced surgeons who are well versed in that particular procedure.
John Cook At 53, I went through the same questions. I didn’t want to have a second open heart surgery before ... Read more
John Cook At 53, I went through the same questions. I didn’t want to have a second open heart surgery before I retire and I didn’t want to go on blood thinners because I don’t want to be a couple miles into a trail run, have an injury, & then be in a hazardous situation.
I made sure I got a referral to a surgeon who specializes in Ross procedures so I could if I was a good candidate for it. Thankfully, I was. With a Ross, my relocated pulmonary valve should last into my 70s. Then I can likely have a TVAR or two to get me into my 90s or 100s, should the rest of me last that long.
Miguel Tolosa Thank you Dan, Marie and John. I really appreciate your comments. Unfortunately, I guess that the Ros ... Read more
Miguel Tolosa Thank you Dan, Marie and John. I really appreciate your comments. Unfortunately, I guess that the Ross Procedure is not an option for me. My cardiologist told me that where I live in Spain and in the hospital where I'll be operated they do not perform this procedure. It seems it is a very complicated procedure and it is not so common in my country.
Fidel Martínez Ruiz Miguel, I agree to Dan's advice. Any valve either mechanical or biological can be O.K. in your case.... Read more
Fidel Martínez Ruiz Miguel, I agree to Dan's advice. Any valve either mechanical or biological can be O.K. in your case. My brother has a mechanical mitral (13 years ago) and myself a biological one. We are both well and making sports, my brother golf and myself hiking in the Pirineos. Regarding the procedure, surgeons try to repair as a first option and replace the valve as a second option. Best regards
Miguel Tolosa Mucha gracias, Fidel, por tu mensaje. Thank you for sharing your experience and your brother`s too. ... Read more
Miguel Tolosa Mucha gracias, Fidel, por tu mensaje. Thank you for sharing your experience and your brother`s too. Surgeons told me that repairing is not possible in my case and therefore I only have the option for valve replacement. In any case, as you Dan and you suggested, any option should be right. Best regards
Fidel Martínez Ruiz Hey, Miguel, regarding to the Ross and in general other procedure to choose, either option depend on... Read more
Fidel Martínez Ruiz Hey, Miguel, regarding to the Ross and in general other procedure to choose, either option depend on the surgical school and not on the quality of surgeons. Ross procedure need a donor corpse and sometimes, surgeons weight the advantages and drawbacks of each procedure for each patient and choose the best and in which they are skillfull. I have implanted a Edward Magna mitral valve (18 months ago). Nowadays, I notice from some posts here that there is a new model, named Edward Resilia with very good results and a very long life, despite being a biological valve. You can comment this to your surgeon. Keep us informed!
Dan Fouratt Miguel, Not sure of the rules in Spain but I asked for the Edward Resilia valve. My doctor said he w ... Read more
Dan Fouratt Miguel, Not sure of the rules in Spain but I asked for the Edward Resilia valve. My doctor said he was going to use that valve. So if you go bio valve try requesting this one. Good Luck on your journey
Miguel Tolosa Thank you Fidel and Dan for letting me know about this new and very promising valve. I'll talk about ... Read more
Miguel Tolosa Thank you Fidel and Dan for letting me know about this new and very promising valve. I'll talk about it with my surgeon. I'll let you know! Thanks a million again!
Last Monday, November 17th, I underwent the aortic valve replacement surgery that had been scheduled for several months. In the end, ...Read more
Last Monday, November 17th, I underwent the aortic valve replacement surgery that had been scheduled for several months. In the end, for different reasons, I opted for the mechanical valve (Corcym Bicarbon Slimline), taking into account my age (46) and the fact that the Ross procedure is not performed at my hospital. Everything went well. After two days in intensive care, I was moved to a regular ward, and three days later (Saturday, November 22nd) I was discharged and returned home. Everything was perfect; I felt very well and was able to take short walks without any problems. However, on Sunday night, I had a very strong coughing fit that was extremely painful for my sternum and left me semi-conscious. During that time, I kept asking the same questions over and over. I didn’t know whether I had been operated on or not, what valve had been implanted, etc. I decided to see a doctor, and they told me it could be due to a vasovagal nerve activation triggered by the pain. They ran some tests and confirmed that everything was in order: the valve was still working properly and my heart in general as well. Over the next few hours I began to recover my memories, although some are still vague and I feel quite dazed. Cognitively, I don’t feel 100%. It’s also true that I haven’t been able to sleep well at night. And sometimes I feel dizzy. Despite everything, I make an effort to go for my daily walk. Has anyone experienced something similar? I’d appreciate any comments or any piece of advice. Thank you very much in advance.
I will say this - ... Read more
I will say this - the anount of anesthesia product we go through is enormous for open heart surgery - and your body is processing this for some time... The nervous system has to recover after all of the bypass treatments. This could impact things, too.
I have no memory of the first 1.5 - 2 days after surgery. I’m assuming it was a combo of the anesthesia & pain meds.
It sounds like you could have postperfusion syndrome, aka pump head. It’s usually a short term side effect of being on the cardio-pulmonary bypass machine.
... Read more
I have no memory of the first 1.5 - 2 days after surgery. I’m assuming it was a combo of the anesthesia & pain meds.
It sounds like you could have postperfusion syndrome, aka pump head. It’s usually a short term side effect of being on the cardio-pulmonary bypass machine.
I also had a lot of post-surgical dizziness, mainly when standing up. It was a combination of the surgery and getting used to my resting blood pressure being in the 100s instead of the 130s.
best regards,
Miguel
The higher heart rate after surgery is normal. It took mine ... Read more
The higher heart rate after surgery is normal. It took mine two months to get back to where it was at rest.