Hello everyone. My 22 year old son had the Ross Procedure on September 16th at Mount Sinai. The surgery went well and his recovery has been remarkably quick. ...Read more
Hello everyone. My 22 year old son had the Ross Procedure on September 16th at Mount Sinai. The surgery went well and his recovery has been remarkably quick. Oh to be young. He was instructed to take Naproxen Sodium (Aleve) 2x a day for six months. I know it is for the inflammation, but that seems so excessive and not to mention hard on the liver. He has been taking it just at night and not during the day. I am curious if by chance anyone who has had the Ross Procedure was instructed to do the same. Maybe it is standard protocol for all open heart procedures. We didn't think to ask his cardiologist's opinion when he had his first follow-up, but will be asking next week when he has another follow-up. Thanks-
Leslie
Andrew Dial Hi Leslie, thanks for sharing about your son. Im 33, and had my Ross about 5 months ago, and the 3 me ... Read more
Andrew Dial Hi Leslie, thanks for sharing about your son. Im 33, and had my Ross about 5 months ago, and the 3 medications I still take daily, are baby aspirin, Lisinopril , and Carvedilol.
Timothy Andre Hi Leslie, thanks for the update on Drake. I'm happy he is recovering quickly. As you know I had my ... Read more
Timothy Andre Hi Leslie, thanks for the update on Drake. I'm happy he is recovering quickly. As you know I had my surgery done at Mt. Sinai and I was never told to take Aleve. I did take Advil for maybe 6-8 weeks after surgery for inflammation. 6 months sounds a bit excessive, but I'm no doctor. Hopefully his cardiologist will help answer that for you two. May he continue to progress in his recovery. God bless you both
Kristian M. Hey Leslie, glad your son is doing well. I too had the Ross done in about 2 months and a half ago and ... Read more
Kristian M. Hey Leslie, glad your son is doing well. I too had the Ross done in about 2 months and a half ago and I was never told to take Aleve either. Just Tylenol for pain. Currently on baby aspirin and Metoprolol 25mg.
Hello my name is Leslie and my 22 year old son Drake is scheduled for the Ross Procedure on September 16th at Mount Sinai in New York. We live in a suburb of ...Read more
Hello my name is Leslie and my 22 year old son Drake is scheduled for the Ross Procedure on September 16th at Mount Sinai in New York. We live in a suburb of Kansas City, so that means we have to fly there. I think I am more nervous than he is because of all the unknowns. The thought of navigating that city terrifies me. Can anyone shed some light on what it is like at Mount Sinai? I have booked a hotel room at Courtyard by the Marriott (which is supposedly within walking distance to the hospital) for two weeks (cha- ching for sure). It is only going to be my son and myself. I was hoping I could stay with him in his hospital room. The doctor made it sound like I could possibly stay with him depending on how busy the floor is, but the coordinator said I couldn't. I don't know what to expect which makes me anxious. I know my son would prefer I be with him. After all he is only 22. I am hoping as it gets closer that I will get more information that will help put me at ease. I welcome any thoughts or advice. Thanks.
Neal Syverson Often times hotels near hospitals offer discounts to families of patients. Did you ask the hotel?
Neal Syverson Your son is an adult. He should be fine. When I was in the hospital my wife stayed in a hotel a bloc ... Read more
Neal Syverson Your son is an adult. He should be fine. When I was in the hospital my wife stayed in a hotel a block away. I felt a lot better knowing she spent the night in a comfortable hotel room. If she would have stayed in my room I would have been constantly been concerned of her comfort. That is something the patient should not have to worry about. Make sure you're son brings a phone with along charging cable and talk or text after hours. My wife and I did this frequently when I was not sleeping. It was like she was with me knowing she was only a few steps away.
Neal Syverson As far as the unknowns go don't dwell on the negative thoughts. Think about the outcome. Bring your ... Read more
Neal Syverson As far as the unknowns go don't dwell on the negative thoughts. Think about the outcome. Bring your concerns here. This is a very helpful community with a lot of experience. They can help you get through this. There are a number of people here who had the Ross procedure that could give you valuable insights.
Rita Savelis If your son would prefer you there, then stay there, especially if the doctor agrees. You can spend t ... Read more
Rita Savelis If your son would prefer you there, then stay there, especially if the doctor agrees. You can spend the day in the hospital in any case and be near him. I understand your anxiety which is completely normal. Breathe. One day at a time. You have already organised the trip and a hotel and that is already a lot. Now you just have to be there. Your experience, as the caretaker, is in many ways more difficult than your son's. Please talk to a therapist if you can to discuss all that you are going through. Information does help so try to inform yourself as much as you can. But be aware that your son's experience and your experience are singular and will be different from any one else's. Reading the book by Adam (who heads this site) might be helpful as he also had the Ross procedure. Take care.
Cathy Byrne I will be there mid July. I found a nice Airbnb.It has a kitchenette, and is an 8 min walk to the ho ... Read more
Cathy Byrne I will be there mid July. I found a nice Airbnb.It has a kitchenette, and is an 8 min walk to the hospital I thought the price was reasonable after checking hotels in the area which were much higher. Fingers crossed that it works out as well as I hope it does.
Thomas Brusstar I had a good surgical outcome after my open heart surgery. I can say I didn’t really want visitors ... Read more
Thomas Brusstar I had a good surgical outcome after my open heart surgery. I can say I didn’t really want visitors all the time because then I had to think about what they were seeing and doing. Find out when you can be helpful or basically have fun, maybe meal times. Like if breakfast doesn’t really show up until 9 and he wants to eat earlier or different, try to get in and bring food he wants. Or snacks/ treats/ desserts he wants to enjoy with you during the day or at dinner. I liked having my teen son visit and watch a favorite TV show, but I didn’t want him there all the time. It’s stressful for the patient to keep a guest entertained. He will just want to chill. Ask him what he wants you to bring and focus on running errands and shorter good visits. Just my perspective.
I am from: Overland Park, Kansas
Thanks-
Leslie