Hello All, it has been 6 years from my OHS with replacement of the Aortic and Mitral valves. I will be undergoing a second OHS on June 3 to replace those tissue valves with mechanical and have learned the tricuspid valve is now damaged due to the damaged tissue mistral valve!
Anyone have experience with three valve replacement? The goal is to try to repair the tricuspid but at 50/50 I’m not sure?
I will be having this surgery with Dr. Glower at Duke Medical.
Hope all are well!
All is going well and I am driving and doing what I can on my own! I feel great EXCEPT the itching! I have developed small, itchy bumps along my incision and it is driving me crazy!! I haven't tried to treat it because I do not want to do anything to hamper my healing:-)
Please let me know if you have experienced this and how you handled it!!
It is so hard for me to believe exactly what I was doing and where I was one week ago today! My family saw me for the first time at 11:30am and apparently it was not a pretty sight! Sometimes I feel what they had to go through mentally is close to what I went through physically! My family and friends have been so good to me with so much love and support!!!!
I am just so thankful my recovery is going smoothly and each day does get better! It does help tremendously to take a shower and dress as normal as possible! I finally put on real clothes today and even make up! I feel very close to normal:-)
Can anyone tell me tips to sleeping longer and better at night? Good thing, I am off strong pain meds and only take regular Tylenol as needed so no sleep aid in my meds!!!
I hope everyone is doing well with their recovery and wish the very best for those still anticipating their day!
I am now post-op day 3!!!!! I am starting to get stronger and stronger, the big news, it looks like a nice shower is in my near future:-). Refreshing!!
Now let me say, ice chips and water have NEVER tasted SO GOOD!!! To me the dry mouth was the worst part in the open heart recovery room!! Pain is tolerable and like others on here it was really the shoulder pain that created most my issues.
I will go for now because the breathing practice must continue! Thank you all so very much for well wishes and kindness!!
Oh one last thing, I am a walking farm! One little piggy valve and one little cow valve!!!
I have arrived at the hospital! Today is a heart cath which started at 6:45am! The doctor tried to use my wrist but I have horribly, uncooperative veins! So, threw the geoin they go! It supported what we already knew and that is I need an aortic valve replacement! Good to know since I am scheduled for tomorrow morning at 7am. I am now waiting for a chest X-ray, a TEE, and whatever they feel is necessary! It seems they are trying to decide what needs to be done with my mitral valve, repair or replace.
I am ready for tonight and the "help me sleep" aid:-)
All is going well it is just a game of hurry up and wait! I will post again of something really exciting happens!!
The decision has been made and will be finalized on Friday, May 10th! I will stay close to home which feels better to me with my surgeon and a tissue valve! The anticipation is getting old and I am ready to write about recovery!
I just want to say how I really appreciate this site! I have read so many entries and it just makes it all seem normal and doable. Thank you Adam for designing this and to all the members thank you for being able to share such personal thoughts and feelings in order to encourage and guide others!!!
Now, if anyone has any advice for what to take to the hospital, something you experience that caught you by surprise, or any other oh, you should know this please share!!!
Well, I was set to go through with surgery in Cleveland with Dr. Svensson, a mechanical St. Jude's valve and the coumadin that comes with it! I met with my local outstanding surgeon in regards to Dr. Svensson's recommendation and my surgeon feels a tissue valve is a better choice. See, I have relapsing polychondritis a rare auto immune disease that set me on this course. My concern is treatment of my disease after replacement. Coumadin will not allow me to treat my inflammation with ibuprofen and I am not ready to move to more severe drugs.
If anyone has this condition or similar conditions please weigh in with your experiences, I would greatly appreciate it!