Joanne's Posts

Member Since: May 30, 2018

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Joanne Siedhoff posted an update
7 months ago (November 24, 2025)
12 years has gone by and here I am needing another aortic valve replacement. I was treated for Hodgkins lymphoma decades ago and have faced a multitude of health issues, thyroid, breast cancer, valve disease but am more than grateful and blessed to still be here to complain haha! When... Read more.
So sorry to hear your surgeon retired. Prayers for some good information on where to go next ! Hopefully one of our radiation-affected warriors will chime in.
have you tried cleveland clinic? just thinking they have assembled the broadest set of specialists?
Joanne - You have certainly been through a lot. You may want to try Dr. Joseph Lamelas. He's a high-volume valve surgeon in Florida. A call to his office should be sufficient to find out if he can handle your next surgery. Good luck! https://nchmd.org/dr-joseph-lamelas-md/
I am one with you on the radiation damage. I also had Hodgkins in 96 and 3 months of full mantle radiation, which has resulted with a new aortic valve 5 weeks ago, I don't know if the surgeon that did my aortic valve replacement is considered a expert in... Read more.

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