12 years has gone by and here I am needing another aortic valve replacement. I was treated for Hodgkins lymphoma decades ago and have faced a multitude of health ...Read more
12 years has gone by and here I am needing another aortic valve replacement. I was treated for Hodgkins lymphoma decades ago and have faced a multitude of health issues, thyroid, breast cancer, valve disease but am more than grateful and blessed to still be here to complain haha! When I posted here 12 years ago Dr. Castro reached out to me via telephone and calmed my fears in making the decision to have a minimally invasive aortic/mitral replacement vs cracking my radiated chest. Granted it wasn't easy but have done wonderfully until now. I have now been faced with finding a new doctor/hospital that specializes in radiation damage cardio disease. I am in the Orlando area and unfortunately the doctor that was featured on this site, Dr. Accola has retired. I am willing to travel out of state if necessary. I am hoping someone in this community has been in a similar situation and can recommend a doctor, hospital, surgery performed TAVR vs SAVR and their outcomes. I would be lying in saying I am not frightened.
Marie Myers So sorry to hear your surgeon retired. Prayers for some good information on where to go next ! Hopef ... Read more
Marie Myers So sorry to hear your surgeon retired. Prayers for some good information on where to go next ! Hopefully one of our radiation-affected warriors will chime in.
susan harris have you tried cleveland clinic? just thinking they have assembled the broadest set of specialists? ... Read more
susan harris have you tried cleveland clinic? just thinking they have assembled the broadest set of specialists?
Susan Lynn Joanne - You have certainly been through a lot. You may want to try Dr. Joseph Lamelas. He's a high- ... Read more
Susan Lynn Joanne - You have certainly been through a lot. You may want to try Dr. Joseph Lamelas. He's a high-volume valve surgeon in Florida. A call to his office should be sufficient to find out if he can handle your next surgery. Good luck!
Dr. Joseph Lamelas is internationally renowned for pioneering minimally invasive valve surgery and developing the innovative Miami Method technique. This
Eric Hanson I am one with you on the radiation damage. I also had Hodgkins in 96 and 3 months of full mantle rad ... Read more
Eric Hanson I am one with you on the radiation damage. I also had Hodgkins in 96 and 3 months of full mantle radiation, which has resulted with a new aortic valve 5 weeks ago, I don't know if the surgeon that did my aortic valve replacement is considered a expert in radiation damage, but he has taught me more about it in the last month that I have had anyone else in 30 years and has a fantastic bedside manner and ability to talk with you and not at you. Dr. Curtis Hunter at St. Marks hospital in Utah.
I am from: Mount Dora, FL
https://nchmd.org/dr-joseph-lamelas-md/