Im pretty sure Emily, a fellow Aussie is the only one on this site who keeps in touch. Most members are American and so can share info like surgeons, hospitals and so on. Anyway I went recently for an update on my maze, patch heart surgery. My cardiologist explained that the patch used to repair the 2nd hole in my heart has opened in two small areas opposite to each other. There is a lot of debate regarding what to do. One option is keyhole surgery, another is nothing and the 3rd is another ohs. Since I had a stroke in recovery after my last OHS and Im 54 and with chronic diabetes, insulin controlled, my options are limited. However im now back on the monitor for 3 days to see how the palpitations behave. I expressed that Im not being brave but I will risk anything to be as healthy as possible. I have a beautiful 8 year old grand daughter, she has autism and is my love. I will do anything to be an active part in her life. However if treatment has me flailing in a corner, or worse, moving onto the next life, then Im prepared to accept that. Im not a perso who will accept simply doing nothing. Anyway next Tuesday I expect a phone call regarding the results of this monitor and we will go from there . I hope you are all well and in fabulous frames of mind. For those about to have surgery Im praying for you and those in recovery take it all one day at a time and dont forget ''this too shall pass'. Much love esp you Em hope you are staying safe. WA had awful fires but we chose not to evacuate and it came very close but thank God for the incredible fireys and ses. x
Hi heart friends so been a while since i posted seeing lots of new faces. So after a fairly drama free healthy few years post maze procedure to help manage a residual hole in the heart. 1st hole operated on when I was 3. Recently my pancreas basically stopped working and I now inject insulin 3 or 4 times a day. So diabetes is now under control. Then I began to experience very swollen abdomen, ankles, breathless and tired also intense palpitations. Saw my GP ended up having an echo which revealed that the patch on my heart has moved! I have a visit with my cardiovascular Dr in 3 weeks time. Has anyone had hole in heart repair (twice ) only to have this issue some years on. Thanks x
Hi how is everyone😗 Back on September 3rd I celebrated 3 years since my heart surgery to remedy a 2nd hole in the heart after a bit of an afib scare. Had a few non related heart events since such as parotid tumor pop up its benign but on watch. Also my diabetes type 2 is becoming harder to control and I have a thyroid issue which I take daily meds for.....yay! However nothing is actually stopping me from doing my gardening, crafts, painting or dog walks. I just have extra naps somedays lol. I would love to hear from Emily Rowley. Em your email isnt working and havent heard from you since you were in hospital in June. Hope you are ok look forward to hearing from you x. Best wishes and love to all heart patients , their surgeons and families, I may not know you but I pray for everyone on this site all the time.
So my beautiful Dolly loving the outdoor garden and play area we made just for her x
Update posted on...
June 8, 2019
Well this September 2nd will be 3 years since my surgery. I have been doing great....nice to be able to enjoy walking our dog,Ben he is 15 ish and fairly arthritic so he is even slower than me! Also playing in my garden and pottering round the house. The family has seen some tears with the loss of my Dad in law and my hubby needing to travel to and from New Zealand, alone, we can never afford to both go so it's been extra tough on my hubby. Not long after his Nanna also passed and now his beautiful sister is in the final stages of bone cancer,and we just can't afford another trip back but we get to see her beautiful face on Skype when she feels up to it. On a lighter note my gorgeous Grand daughter is 6 this year and is attending a lovely school, which she has grown to love. They cater for her special needs perfectly, having autism means she has particular needs but she is so awesome ,smart and has a wicked sense of humour😊 Health wise my diabetes is becoming harder to manage, but managing it I am! I also have a parotid tumor sitting by my jugular in my neck thanks to God its benign 😆 I've suffered with joint and chest pain but I have a bit of a habit of overdoing it.😑 anyway my attitude was and still is very positive. I'm grateful for my heart surgery it toughened me up even more, it also made me grateful for many things I took for granted before. I hope everyone with upcoming surgery has great success and fast healing. Xxx
My Darling Grand daughter Dolly the love of my life x
Update posted on...
November 2, 2016
Ok Im two months on from having a maze procedure and hole in heart repair. I have two questions if anyone can help?
1. My wound looks good and has healed BUT it feels kinda wierd sometimes like a heaviness inside ? It feels strange when I get up in the morning out of bed as if its moving! Anyone else had this?
2. Im going to stop taking Warfarin in Dec I was put on it because I had a stroke after surgery and as much as I cant wait to ditch the pills I made the mistake of googling this and found lots of terrible info ;( I feel good and have had no problems simce surgery but nowIm kinda scared to stop it !
Well its been 7 weeks and for me the 6 week point was the turning point. I finally felt like ME again not so weepy and sorry for myself hahahaha
The wound looks like its been on my chest for years its healed up well I saw my surgeon and promptly forgot every single question I had for him .....he IS Dr dreamy Im afraid so I get a bit swoony!!!
Anyway he was happy for me to stop the diuretics now (yay) and feels 3 months of warfarin then I can ditch the dreadful stuff (yeeha)
Everything I shared he said is totally normal and even the fact I CRIED on my way in to see him that day Hubby and I shook his hand and Thanked him profusely for what he did for me.
This week is a trip to the neuro to discuss the little stroke I had but other than that seems all is well and I felt so good I did 3 hours manning a tea stall at the garden gala our church held on Sunday
Was a good way to catch up with a lot of friends all at once and for them to see how well I was and thank them for their prayers
I have not forgotten this site and Emily hope you are doing ok ?
Its coming into summer we had a couple of warm days eeeek better try and find an air con !
One question has anyone noticed they have redness on their lower legs? I notice on my shins mostly like they are sun burned a bit? Will ask my GP on Friday.
Tale care I continue to pray for everyone on this page facing surgery and all in recovery.
Let me tell you its over before you know it and mentally the more you can do to find peace and calm prior is a huge help and will; get you through
Get yourself in a good place mentally and you got this ! xxx
Hi all so been home now almost 5 days and feeling ok but I do have a question. My wound seems to be healing beautifully and I saw my GP only yesterday and he was happy too. However last night and again tonight on laying down in bed the top of the wound starts weeping. Last night I woke up wet and sticky all round my neck and had to change pajama top and wipe up. There is no smell, no blood. no pus, no pain, so Im assuming its simply strain and when I lie down the leaning back causes the wound to split a little. All day I have no drama. Anyone else had this issue ? Happy for any advice but PLEASE be kind and non-scary as I live in a small country town few resources and not able to access medical help immediately. Praying for all of you facing surgery and all of us in recovery xx
This is my Ben and the reason I walk every day (we both love our walks!)
Update posted on...
August 25, 2016
Tomorrow is pre admin day I have absolutely turned a HUGE corner mentally. I am calm, composed and ready for this! Im not relishing getting up soooo early and we need to leave at 6 YAWN to get to the city on time. All I can think of is BEYOND surgery I have SO many things coming up and this being my focus I havent had time to devote to worry. I KNOW God has this for me and I am strong and tough and blessed beyond belief. What more can a girl want? Well maybe NO OHS hahahahaha ;) but hey this is part of my journey and it will pass like all the other surgeries and events in my life that have been not popular! Pray for all you guys every day x
.....and I feel quite resigned to being practical about this whole deal.I have my moments where I have a little cry in private. I worry about my hubby he isnt taking it well and he is worried and not good at dealing with his feelings at the best of times ! I find making plans for 'after surgery' is really helpful and keeps me positive. My 50th birthday is in January, my Mums 70th in Feb so lots of celebrations and Christmas not far away and my beautiful Grand daughter Willow is 3 on the 25th August. My youngest daughter is planning to marry on New Years eve as well so lots of distractions but happy ones xx I pray LOTS and I am praying for everyone on this site Im very grateful for this website :)
Emotionally I go from being a blubbering wreck to being a rock!
Its three weeks away and its seems unfair that just such a short time ago it was MONTHS and now its weeks to surgery.
'I wanted to plan more, I wanted to have a holiday or create some special memories to dwell on in recovery but either finances or timeframes just havent allowed it.
We did have a lovely lunch last Saturday to celebrate 25 years of marriage our silver!
We will soon celebrate my Grand daughters 3rd birthday she is the LOVE of our lives. As an autistic non verbal she's a very quiet, extraordinary child who amazes us constantly, I know she will be my thought as I close my eyes and have my surgery and when I open them again it will be to look for her.
I feel so MUCH.
I feel scared and teary, grateful and determined I have the guts of a lion one minute and collapse into a sobbing wreck the next! I over think and under prepare for everything!
I am eager to get this done and behind me and yet I have days where I reach for the phone to ring the cardiologist and say 'ah actually mate Ive changed my mind Im not doing it Thanks'. !
I take ENORMOUS comfort from all the stories I read here.
Im NOT having a valve replaced. I was going to, but after an MRI and angiogram it was decided to patch up the hole in my heart and have a maze procedure and oblation and the valve will last some more years. This should fix the AF and keep me going strong for years to come.
I pray for ALL the people on this site and esp when I see the upcoming surgeries I think of all of you and thank you for sharing your experiences.
Im wondergin about the lady also here in Australia who was scheduled for surgery a couple of months ago she was keen to get back to her dogs! Where are you been thinking of you but Im hopeless at remembering names and its probably just me but Im not able to trace back to previous messages I left ;(
well had 5 weeks of no phone and no internet eeeek! Anyway this is what happens when you move house which we also did :) I have missed this site lots ! Today I saw my surgeon and on the 2nd September I will have my heart op. Im having the hole repaired and the original hole re patched ...it is 46 years old so time to refresh it! I am also having a 'maze' and oblation. I feel like a bit of a phony because Im not now having the valve replaced the team have decided its not needed at this point. I have such mixed feelings now. One minute Im really at peace and have every confidence but the next Im planning my funeral please tell me this is normal? Till then Im going to get fitter lose more weight and get my chest as strong as I can in preparation.
All the best for the 10th Robert I will pray for you. I see you are in the UK I am English and had a hole in the heart op at Manchester childrens hospital when I was 3yrs old! Now I have another hole !!!
Confused! Am I a charlatan for being here on this site?
Journal posted on April 29, 2016
Well met on 27th with cardiologist Siang Ung and later in the day the 'heart electrcian' Ben King. Dr Ung announced that I DO NOT NEED the valve replaced now !!! WHAT THE????? This is a miracle....I say this because the ONE aspect of this whole deal that I was unhappy with was the valve replacement due to cow/pig being used (I do not eat meat) ....then after many prayers and friends in Lourdes praying I get this 'no valve ' news!!! However open heart will still be needed to repair the hole and oblation that is required. Then I met Dr King with lots of puzzled looks from him he (THANK YOU GOD) discovered ANOTHER PATIENTS NOTES AND RESULTS IN MY FILE? A big chunk of notes so another (nervous) what the ....moment! He had been thinking I was some kind of two heart rates freak. Mmmmmm ! anyway he vaguely mentioned a brain scan due to an episode I had last year of not making sense (despite that being a common thing I could not match words to the words coming out of my mouth) mini stroke??? Anyway he also threw the idea of going through the groin/wrist day procedure but the whole experience was confusing and slightly disturbing. Now I dont know what is going to happen there was considerable enlargement on the right side of the heart but I have to say Im in the dark now not sure what to expect.