Gabbie's Posts

So I got a call from my cardiologist last night and he told me he doesn't want me to have the surgery. He found that I'm having "hazing" in my lymphatic vessels in my chest area and abdomen. He said hazing is abnormal lymphatic vessels, but apparently, after talking to 12 other doctors and my surgeon, they all came to the conclusion that the surgery is too high a risk. If my surgeon were to accidentally hit/cut a lymph vessel, I would start leaking fluid that would either 1.) kill me or 2.) cause me to constantly leak fluid and I would be in the hospital for 3+ months due to needing the fluid constantly drained. I was born with Noonan's Syndrome and apparently this "hazing" is common in about 30% of people with Noonan's. I just don't understand why this wasn't thought of before even scheduling my surgery? My cardiologist apologized profusely (of course) saying he didn't notice it before. I can't really process what I'm feeling since I don't even know what exactly is wrong. I'm angry because I mentally prepared myself for this (I had known this surgery was going to happen since last May), I had time put off of work and I was ready to go. Now with just a week left he tells me "Whoops!". I can't be that angry, considering he saved my life but I'm just confused, worried and feel completely stuck. I had planned my whole year around this surgery and now everything is uprooted and all over the place. I have an appointment on Thursday at 2pm to talk to him and figure out what exactly is wrong and what the next step is... I will keep updating on here. This site has been helpful and I enjoy the community on here. Anyway thank you for reading I know it was a novel!