Eleanor's Journal

Good morning I am finally home from the hospital basically I was in the hospital for 31 days and still on bed rest at home for another month I wish I could write on here and say wow my valve replacement went Flawless but it did not. I guess in essence I could say the valve replacement was okay however the surgeon nicked my artery as he was pulling out the catheter after replacing my aorta valve and four emergency surgeries later within 2 weeks 31 days in the hospital six blood transfusions two emergency nights that I never want to relive again but praise God I'm here but I got to tell you this was no walk in the park. 

Hey guys I had my surgery May 1st and everything with the heart was fine except that a complication they nicked an artery in my groin please tell me if you guys ever had to have a second surgery to repair the artery because that's what I'm facing with today absolutely not a happy camper but I'm trying to be positive

Monday is almost here May 1st I'm having the TAVR method of an aortic valve replacement. Would love to know what are some of the things I need to be careful of when I get home.

Good morning everyone I'm 5 days away from my TAVR surgery. I would love to hear from anyone who's had the TAVR method of replacing the aorta valve. I want to hear how you felt as soon as you woke up from what I'm reading how you wake up is very different for a lot of people and I would love to know why please please write me let me know I have 5 days to read everybody's story and experience.

Ok do far so good my replacement is going to be May 1st. I decided on having the tavern method for my aorta valve replacement. I would love to hear from those of you who have had it and what I can expect after surgery

What's on my mind is the third setback since I'm on my aortic stenosis journey. It was a setback yet again due to an abscess I had in my mouth and never knew about it. This time my surgery date is May 1st and I don't believe they'll be any more delays. I haven't really had any symptoms up until recently walking seems to be a little bit of a problem stairs are a huge problem but before that I didn't even know I had a heart condition. I do have a question for all my friends out there can anybody tell me how they felt after their aortic valve replacement with the TAVR method?

Hi guys just wanted to drop a line or sixteen lol. My date is for March 6, 2023 for a Aorta valve replacement. I received a letter from my insurance company that my surgery has been denied due to my ins comp thinking I really don't need it. Imagine that!!!!!! I was so upset because I finally accepted the fact that I was going to have the surgery. I have filed an appeal a fast appeal. My ins company seems to believe this will be a fast decision and I will be able to keep my date. Please keep me on your prayers.

Hi everyone just want to keep everybody updated I finally got a date for my aortic valve replacement it's going to be March 6th.

I am excited finally that at least I have a date. They all decided on the less evasive method the tavr method I see that there's a webinar for this method which I plan on watching Tuesday night at 6:00 p.m.

I just wanted to say hi to everyone I haven't been around much very busy with everything going on I hope everybody's in the best of health.

Hey guys good morning it's been a few days with the holidays that I haven't written here in my journal I just want to say good morning hope everybody had a healthy relaxing Christmas. I meet with my team sometime this month for the valve replacement day and method of surgery

Hey guys good morning I'm feeling a little apprehensive but looking forward to getting it done at least a test will be able to show the doctor and myself what method we could go by . I know I have a lot of prayer warriors out there and I'm just asking for Monday morning about 7:00 7:30 if you can just think of me just ever so slightly and wish good luck and I'll write when I come back from the hospital love you guys

Hi guys I had good news today was my appointment with my cardiologist for my up and coming cardiac catheterization. The good news is we decided that we're going to go through the wrist and I don't have to lay down for 4 hours that's generally only done he said when they go through the groin. I'm so happy because all the things I was worried about he took care of today so wish me luck for Monday at 7:30 in the morning all prayers welcomed

Hi guys well I am going for my CATH on Monday. Can everyone share their time they had to be laying down for after the cardiac catheterization? Please and thank you

I decided to kind of redo my first post it was very short and to the point. I have been going to a Cardiologist for a while now due to having a lot of palpitations which I always thought and the doctor thought as well that they were always due to my anxiety and menopause. However , 6 months ago I found out that I have hardening of my aortic valve . In last 3 months it must have went from mild to severe by the way that totally kills me how we can have stenosis of the aorta valve and it be between mild and severe anyway I was floored by that because I have absolutely zero symptoms. Correction, I do have a little chest pain when aggravated so I'm not exactly symptomless. I don't know which operation or procedure I'm going to have whether it be the tavern method the old fashioned break the ribs method or the chest wall method I'm not sure which of the three I'm going to be well suited for I guess that's why we're doing a cardiac catheterization and a CAT scan. I hope they allow me to sit up or at least have my head in an upright position after the cardiac catherization due to extremely bad vertigo the last time I had an MRI it kicked me into a 3 week about with my vertigo and I don't want this again because I can't afford to have dizziness because I won't know whether it's from my heart or it's from the vertigo I know I've said a lot I apologize I'm really looking forward to hearing from all of you thank you for listening.