I'm 22 years old. I was born with tetrology of fallot which is four main defects to the heart. I was also born with pulmonary atresia which means I had no pulmonary valve.
-I was blue when I was born and had my first heart surgery at 2 weeks old. This surgery was called a BT shunt.
-1st open heart surgery at 1 year old - full repair of ToF
-2nd OHS at 3 years old to replace pulmonary valve
-3rd OHS at 11 years old to replace pulmonary valve
-One lung collapsed
-4th OHS at 12 years old to patch the right pulmonary artery
-Cardiac catheterization at 13 years old to place balloon in right pulmonary artery
-Cardiac catheterization at 21 years old for stent, however condition too severe they decided to wait and do surgery
-5th OHS at 22 years old to replace pulmonary valve