About Me (In My Own Words)
I had a pulmonary valve replacement at age 4 and a second one now at age 37. How it lasted that long is beyond me. I didn't actually know the valves weren't permanent until I started with a new cardiologist at age 30. Which was also when I was properly diagnosed with Noonans Syndrome. It was in my medical file since birth but no one bothered to tell me until I asked my cardiologist about carrying a pregnancy with my heart condition. Anyway, my second valve replacement was also done by open heart surgery ( another surprise since my cardiologist said it would be through an artery. When I was contacted by the surgeon he said it would have to be open heart surgery.) It has been three months since my surgery. The recovery has been a Rollercoaster ride. Lots of pain and depression. With good days in between. I'm hoping when I see my cardiologist next week he can take me off some of these pills as I have all the " rare" side effects of all of them. Most of my side effects aren't even considered to be related according to the pharmacist and heart nurse I spoke to. Considering they showed up immedietly after starting them and haven't subsided I'm going to say that they need to update their side effect list. Anyway, I am alive and moving around quite well. I'll probably have to go back to work soon which will take some time to get used to again but the social aspect will be good for me.
More Info About Me & My Heart
More About Me
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I am from:
Newdale, Canada
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My surgery date is:
January 25, 2023
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I was diagnosed with:
Pulmonary Stenosis
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My surgery was:
Pulmonary Valve Replacement
