Hi Shari,
Great to hear from you! My friend has connected me with the pediatric cardiologist at Massachusetts General Hospital. I will take my son to an international ...Read more
Hi Shari,
Great to hear from you! My friend has connected me with the pediatric cardiologist at Massachusetts General Hospital. I will take my son to an international hospital in Shanghai for a thorough echocardiogram this Friday (finger crossed!), so that I can provide more information/clinical data to the specialist in US. US hospitals definitely offer much better service as compared to China, partly because we have a large population here and partly because great hospitals are only available in certain cities such as Shanghai and Beijing. I also bought several books from Amazon.com, written by American parents of children with CHD. I’m amazed again by the amount and availability of information from the US. You’re lucky being an American :-). The more I learn, the more confident I am in your swift recovery.
Also, good luck to your job applications.
Jennifer
Shari Rosenberg Hi Jennifer,
It sounds like you are on quite the journey, but looking for answers in all the right pl ... Read more
Shari Rosenberg Hi Jennifer,
It sounds like you are on quite the journey, but looking for answers in all the right places. Your posts here have made me a lot more appreciative of things I've taken for granted- a good reminder of things to be thankful for this Thanksgiving Day (you mentioned you studied in Boston so you might be familiar with Thanksgiving?!).
Thanks for the job application luck- I need it...
And please keep me posted. Good luck with your son. Sending thoughts your way!
Shari
Hi Shari,
Yes, we are connected by the “heart” despite the physical distance. It’s great to “feel great” as you are at a golden age of your life. ...Read more
Hi Shari,
Yes, we are connected by the “heart” despite the physical distance. It’s great to “feel great” as you are at a golden age of your life. And having gone through/the prospect of going into a surgery makes people think seriously about what is the most important thing in life. Washington DC is a nice city by the way.
My son is having an echocardiogram end of next January. The specialist thinks it’s too early to decide on open heart surgery versus balloon dilation because his trans-valvular gradient is 64 mmHg and he’s too young. Although the doctor we are seeing is the best in Shanghai and he thinks it will be a minor procedure, I’m thinking of seeking a second opinion by consulting with a pediatric cardiologist in US. Maybe I will visit the States in the near future. I missed the old days when I studied in Boston.
Best, Jennifer
Shari Rosenberg Hi Jennifer! Sorry it took me awhile to get back to you! That's a lot to be thinking about with wei ... Read more
Shari Rosenberg Hi Jennifer! Sorry it took me awhile to get back to you! That's a lot to be thinking about with weighing one procedure against another. I had two heart surgeries when I was a baby, but the technology was really different back then (I was born in 1987) so I'm sure things would be done really differently now. Good luck figuring things out, especially if you decide to get a second opinion. Please let me know if you have any specific questions for me (or anything else)- I'm not sure how helpful I could be because the medical system here is probably different than it is in China (and because I'm a lot older than your son!) but if you have any questions that I might be able to help with, please don't hesitate to let me know. You also might be interested in the Adult Congenital Heart Association site; I'm not sure how helpful it will be but it's always worth a look (achaheart.org). I just discovered it recently and it's pretty interesting-geared more towards adults, but at least it can give you a sense of what's out there.
Please let me know how things go- you can just keep posting to this site because I'm always alerted when there's a post here.
Shari
Hi Shari,
I am so happy to hear you are doing well. I am from Shanghai, China. My 8 months old son has vulmonary valve stenosis and is doing regular check-ups ...Read more
Hi Shari,
I am so happy to hear you are doing well. I am from Shanghai, China. My 8 months old son has vulmonary valve stenosis and is doing regular check-ups with the specialist in Shanghai. Reading your story means a lot to me. I pray for your excellent recovery!
Jennifer
Shari Rosenberg Hi Jennifer!
Thank you so much for writing on my wall and telling me about your son. That's amazing ... Read more
Shari Rosenberg Hi Jennifer!
Thank you so much for writing on my wall and telling me about your son. That's amazing that even though we are thousands of miles apart there is something that connects us. I will keep your son in my thoughts and I'm so glad my journals were helpful to you and gave you some peace of mind. Please feel free to let me know if you have any particular questions. Thanks so much for writing and praying for my recovery. I'm almost seven weeks out from surgery and I'm feeling great!
Shari
I\'m so glad to hear you are doing well. With your great upbeat attitude (along with the excellent doctors and staff at Children\'s) I have every confidence ...Read more
I\'m so glad to hear you are doing well. With your great upbeat attitude (along with the excellent doctors and staff at Children\'s) I have every confidence you will continue to have a swift recovery. Do you plan to return to the Seattle area eventually?
--Karen Holmes (high school friend of your mom)
Shari Rosenberg Hi Karen!! Thank you so much for your note and thanks for thinking of me! That was so sweet of you. ... Read more
Shari Rosenberg Hi Karen!! Thank you so much for your note and thanks for thinking of me! That was so sweet of you. Recovery is still going well- I went on my first run today and it was fantastic! A little slow-going, but it was just so nice to be moving. I loved Seattle soooo much and would love to be back there- but I'm not sure if that's where I'm going right now. I'm applying to jobs but am not sure where I'll end up. Thanks for checking in and I hope you're doing well!
Shari, you are sounding incredible. I hope we see you soon. Ask mom and dad about our bear hunts. Looking forward to a hike in your area with you joining us ...Read more
Shari, you are sounding incredible. I hope we see you soon. Ask mom and dad about our bear hunts. Looking forward to a hike in your area with you joining us old folks. love jan and scott
Hi Shari,
I\'m so happy to hear how well you are doing! I know you can\'t wait to get out on the trail and start climbing to higher peaks....You\'ve gone through ...Read more
Hi Shari,
I\'m so happy to hear how well you are doing! I know you can\'t wait to get out on the trail and start climbing to higher peaks....You\'ve gone through this with such a great attitude, one that I think we all can learn from.
See you soon,
Love,
Cousin Randy
Hi Shari, you sound so good. We are so glad your recovery is progressing well. Hope mom and dad\'s stories of last weekend don\'t get you laughing too much. ...Read more
Hi Shari, you sound so good. We are so glad your recovery is progressing well. Hope mom and dad\'s stories of last weekend don\'t get you laughing too much. Dad was my bear hunting partner and i will never forget. Looking forward to seeing you soon.love jan and scott
Shari,
What wonderful news that the valve is functioning the way it should! You are like the poster girl for the blessing of modern medicine combined with ...Read more
Shari,
What wonderful news that the valve is functioning the way it should! You are like the poster girl for the blessing of modern medicine combined with a strong character amd resillient attitude. As the saying goes, you will \"go from strength to strength\". A difficult journey still, but a happy outcome!
Love,
Cousin Nancy
Shari
So glad to hear what a fast come back you are making. Lou said she was so glad to visit with you while I was in CA.
Keep up the progress. You\'ll be ...Read more
Shari
So glad to hear what a fast come back you are making. Lou said she was so glad to visit with you while I was in CA.
Keep up the progress. You\'ll be runniing around the Temple (Mormon) before long.
Love to you and your fam
Barbara
Shari Rosenberg Thanks Barbara! It was great to see Lou and hear how everyone's been doing the last several years! ... Read more
Shari Rosenberg Thanks Barbara! It was great to see Lou and hear how everyone's been doing the last several years! Thanks for the recovery encouragement. Every day it gets easier and easier!
I am from: Kensington, Maryland
It sounds like you are on quite the journey, but looking for answers in all the right pl ... Read more
It sounds like you are on quite the journey, but looking for answers in all the right places. Your posts here have made me a lot more appreciative of things I've taken for granted- a good reminder of things to be thankful for this Thanksgiving Day (you mentioned you studied in Boston so you might be familiar with Thanksgiving?!).
Thanks for the job application luck- I need it...
And please keep me posted. Good luck with your son. Sending thoughts your way!
Shari