HI Sally! I am scheduled for a Ross Procedure on October 14th to repair my bicuspid aortic valve. Has anyone talked to you about that option? I am very ...Read more
HI Sally! I am scheduled for a Ross Procedure on October 14th to repair my bicuspid aortic valve. Has anyone talked to you about that option? I am very active and did not want to be on blood thinners so I did some research and found the Ross Procedure and started talking to my doctors about it several years ago. You are younger than me and look very healthy. It would be another big surgery but hopefully anything else in the future could be done with a catheter.
Sally! I just read your story and we are in the same boat! I also am 43 years old and scared to death of the mechanical valve and having to deal ...Read more
Sally! I just read your story and we are in the same boat! I also am 43 years old and scared to death of the mechanical valve and having to deal with warfarin, stroke and bleeding risk, and the potential for hearing the valve and it disrupting ability to relax/sleep.
I am meeting with some surgeons hopefully this week to learn more about options, and am also looking at TAVRs. Like you, I am worried about having ot revisit all of this in 10-15 years time. I have a 2 year old and a baby on the way so I have to think about what's best for everyone. I chose the porcine valve almost 15 years ago hoping that TAVRs would be the way to go this time around, and much progress has been made but its not the ultimate solution yet. My cardiologist does not believe I will be able to get a 2nd TAVRs so I would be looking at doing open hear again in 10-15 years anyhow.
I hope you the best in your journey and I will share (if ok with you) how it goes for me and what I learn
Hi Sal.ly. I have been on coumadin since 1988 for my mechanical St. Jude valve. I had my bicuspid aortic valve replaced at Johns Hopkins. ...Read more
Hi Sal.ly. I have been on coumadin since 1988 for my mechanical St. Jude valve. I had my bicuspid aortic valve replaced at Johns Hopkins. I am very active as well and have had no issues during that time frame. Yes, I do have to be cautious but I have not changed my life dramatically over time. I believe with the new mechanical valves you do not have to be on a heavy dose of blood thinners. Not having to worry about having my valve replaced in the future is reassuring. Just something to think about. Happy to answer any questions you may have.
Roberto Haddad Barry - that is really good to hear. I am essentially in the same boat as Sally, so I hope you don't mind me asking some questions.
How do you manage your diet with warfarin? is it hard to maintain the proper INR ?
Have you had any accidents or bleeding incidents that have caused complications? (i.e. falling, hitting hand, etc.) ... Read more
Roberto Haddad Barry - that is really good to hear. I am essentially in the same boat as Sally, so I hope you don't mind me asking some questions.
How do you manage your diet with warfarin? is it hard to maintain the proper INR ?
Have you had any accidents or bleeding incidents that have caused complications? (i.e. falling, hitting hand, etc.)
Do you hear your valve and does it bother you? Does it hamper your ability to relax, or lie down and sleep?
Barry Brasseaux Hi Roberto. I have not had any issues maintaining my INR. I have a portable INR check kit that take ... Read more
Barry Brasseaux Hi Roberto. I have not had any issues maintaining my INR. I have a portable INR check kit that takes a blood sample from my finger and I am able to easily adjust if needed but it usually remains fairly consistent. I do include dark leafy vegetables as part of my diet because it is healthy and I have slightly adjusted my Warfarin to accommodate. I have never had any bleeding complications but I don't go water skiing or snow skiing where it might be difficult to get help. I do actively run and ride my bike (carefully). I am very active. I do hear my valve but it is not loud. It is comforting to hear it and has just become part of my life. My wife sometimes says she can hear it. My heart surgeon at Hopkins said if he had a choice he would choose mechanical valve. It has never caused me issues with sleeping or trying to relax. All in all it has been a blessing. I will say it does not come with some concerns. When I had minor surgery I did have to come off the Warfarin and take a heparin bridge. It was only for a short period of time. I did cut my leg about a 2 inch cut last year and was able to slow the bleeding, get to the ER and have them stitch it up after waiting 3 hours. Warfarin is a serious drug to take but you can still live your life with making good decisions and being reasonably safe about your choices. I have taken my Warfarin the same time each night at 9p for the last 36 years. You have to be consistent with diet, taking it at the same time and no alcohol ( or very limited).
Roberto Haddad Thanks Barry that is very very comforting to hear, I appreciate your insight!