Maggi Turner posted a note for M that says:
Hi M - not sure whether you are still looking at this wonderful web site, but I have just found your journal. I am scheduled for surgery on 10th January with Mr. Clinton Lloyd at Derriford. My thoughts are exactly as yours were pre-op and I know the days, weeks, months, years after are not going to be easy. All I want at the moment is to get it over and done with and start living again, thank you M for sharing your journey - so reassuring.
Maggi
M Ratchford Hi Maggi - yes this is great web site dont know i would have got through it without it. Mr Clinton Lloyd is tip top, trained in south africa. I am someone ... Read more
M Ratchford Hi Maggi - yes this is great web site dont know i would have got through it without it. Mr Clinton Lloyd is tip top, trained in south africa. I am someone who needs to know the detail so I checked up on him and the hospital. he has done many of these operations. made him and his team laugh because i had a spreadsheet with details as to how i came to my decision about asking for a mechanical valve. i fully intend to live as long or longer than my mum (she was 97) and i had researched everything about warfarin. I bought myself a coaguchek and have to buy the testing strips as my gp dosnt agree with me monitoring myself LOL. but it gives me confidence and i guess some control back. wanted to put on this site that it actually took me a long time to get over the surgery. at my annual check at local hospital the heart specialist said, actually we lie it takes at least a year if not two to get back to normal. some tips, surgery is piece of cake no pain after but odd sensations, prickly where the nerves in scar area playing up. had issues with heart medication, so please please make a nuisance of yourself if you think something isnt right. couldnt get out of Derriford quick enough, hated the bubble wrap beds you have to sleep in. one thing i would change is to have a private room after surgery as i found it impossible to sleep in the ward, far too noisy. they cost £100 a night i believe but it would be well worth it if you are only in there a few days. this surgery is all about being positive on the outcome and also being a bit bolshi in taking back control to get out of there asap LOL. when you get home, terrified again as you are no longer around nurses. i would sleep and cat nap for couple of weeks after as had to sit propped up to sleep because of the surgery scar. had to watch lot of black and white films in the early hours. NHS nurse came to visit to check i had support at home (husband) and as we have couple of nurses living in the road felt i wasnt completely alone. that is a scary time as you think you will be back to normal quickly but you feel a bit helpless. the anaesthetic did funny things to my mind. had some incredible dreams about fleuro coloured penguins dancing in a merrygoround. Not sure what they give you but think its pretty powerful stuff. that took a while to get out of my system. best bit is that first shower back at home. but you are wobbly so everything must be in slow motion. and the of course theres the wonderful feeling that you have survived and it can only get better. do go to the NHS rehab which they offer around six weeks post surgery. it is well worth it and although you may know some stuff, its good to meet people in your area going through the same thing and of course nurses run the rehab so you can ask questions. for some reason women often dont take advantage of this rehab perhaps because mine took place in a local gym. its just so good to have someone give you tips on what you can do. For example, dont bother with taking your pulse when exercising, if you can talk or sing at the same time as walking/excercising you're ok. if you cant stop for a minute. dont know what kind of valve you are going for but if you do have to go on warfarin, there is a great facebook group for people who have had heart surgery and are on warfarin. once again its people in the same boat giving advice. do let me know how you get on. you have a great surgeon with lots of experience. oh yes get yourself some headphones and mini radio as its so noisy in hospital (private room you can have a tv).its hard to concentrate on reading books. you will need some kind of soft bra as our boobs get in the way of the scar. also nightdress with no buttons on the front as they can irritate also. take care and i will be thinking of you. mary xxx
Maggi Turner Hi Mary - Happy New Year - thank you so much for your detailed reply. I do appreciate you taking the time and have taken on board the tips you give. We have ... Read more
Maggi Turner Hi Mary - Happy New Year - thank you so much for your detailed reply. I do appreciate you taking the time and have taken on board the tips you give. We have gone down the road of asking about a private room, and were told this could be requested, but not guaranteed depending on private patients. Which ward were you on and what was it like? I have to report to Clearbrook and think I go back to that one.
This is all happening for me at a very stressful time - last January my youngest son died very suddenly from cardiac arrest he was 42 - if my operation is, as scheduled, on the 10th January I will be in hospital for the first anniversary which obviously is going to be a very emotional time and I would much rather be in my own room. James' father died 30 yeas ago in a very similar way so over the years a double whammy for me although I happily remarried a few years later. Mr Lloyd and his team know the situation and he has said that if all goes well I could be back home by the 15th the day James died, but that does seem very quick.
On a positive note it was James' death that made me go to my GP after a couple of light headed instances and he confirmed a murmur. This was in
July and following tests I was diagnosed with severe stenosis. I am now noticing the breathlessness and realise I have had it for years, but thought it was 'normal' . I must be very naive!!
Do you still see a cardiologist at Derriford and who is he/she? Where in
Cornwall are you? We are in Devon in Tavistock right on the Cornish border - just wondered how close we were.
Thank you again Mary for such a reassuring post. 2016 was a bad year for us and I just hope 2017 will give me back some of my life that wants to get on and do things. My other son always says - life is not a rehearsal you've got to get on and do what you want to do - how true. So pleased I found this site - nothing similar in the uk.
Maggi xx
On March 17, 2015...
Virginia (Ginger) French posted a note for M that says:
Dearest M,
I just wanted to take a minute to let you know I am thinking of you even when I am not posting. I am so grateful for the members of the heart family who were particularly active around the pre- and post-op times of our surgeries. I picture your cottage and imagine that garden of yours will be tempting you to spend time there again as the weather warms. Know that you are loved and important, even to this one person in the middle of the US Heartland AKA Oz! Many hugs and wishes for all good things! Ginger
Terrie Syvertsen posted a note for M that says:
Hello M across the pond. Thinking of you and hope all is well in the New Year for
you and that you have made it to that wedding in the Fiji Islands! If you get some time drop us a line here at the HVS site or my home address(email). Miss hearing updates from you! Take care! Terrie Syvertsen(California!)
Peter Duplin Hi it's sandra peters friend and I thanked him for finding this wonderful site.i had this surgery 12 years ago and I've completely forgotten the pain that ... Read more
Peter Duplin Hi it's sandra peters friend and I thanked him for finding this wonderful site.i had this surgery 12 years ago and I've completely forgotten the pain that goes with it ,I felt so good from breathing again the fatigue was gone and my skin was pink again.for all you wonderful people that are having it it gives you back 15years of your life
On October 24, 2014...
Terrie Syvertsen posted a note for M that says:
Hello M from across the Pond! Terri here from across the Pond and the Delta, and the San Joaquin River, and the East Bay, chuckle! Been thinking about you and wondering what you have been up to and how recovery is progressing. I am just getting into the rehab part seriously as I have been working with a sternum that is telling me to be better to it! I think of you often. Have to let Hunter out! Love, Terrie, Kat and Hunter
Virginia (Ginger) French posted a note for M that says:
M,
What a delight to see a post from you! You have been missed, dear soul, and it sounds like you are doing just fine! I am about a week behind you and have an appointment this coming weeks to finally get my hair attended to also! But I won't be walking there! Too far and too hot, I would be wet when I arrived! Then it would look like a typical Kansas bad hair day if I walked back in the heat and the wind.
I start cardiac rehab on Friday, and am interested to see what is in store there. I am still having a heck of a time with my vertigo. The metoprolol lowering my blood pressure from normal to below normal is, I think, what is adding to the brain injury vertigo. This was the number one thing I was looking for improvement on after surgery, but it will have to wait!
We have a reclining indoor bicycle - bought so I could get some exercise after the head/brain injury occurred. It has thousands of miles on it by now, but I am planning to put some time in on it through the winter.
We finally are getting a few nice days, and I am hoping we will get a little but of cool fall. Often it seems to go straight from summer to winter here, missing one of my favorite seasons. But the predictions for the next week look favorable for maybe even some walking outside, which would be great! (Some rain this week, but I am always glad to see it.)
Take care of yourself and so glad to hear from you. I like your thought of adding stairs. My vertigo does not really like them, but it is great exercise.
Terrie Syvertsen posted a note for M that says:
Hello "M" from across the Pond! So good to see a post from you this morning!
You sound like you are doing well and the fact you are trying to make up some new form of exercise for yourself to do is encouraging! I can't believe you are 6 weeks post op already! Isn't that lovely? Wobbly days pretty much behind many of us I hope! I have just spent considerable amount of time dreaming up a SONG to your comment of "The Itchy Prickly Scar" that might go with "The Itsy Bitsy Spider" which I would think you sing to your little ones in the UK TOO! Might go something like this and I can imagine Ginger singing this to "Autumn" while on the floor playing!
"The Itchy Prickly Scar ran up on Grandma's chest, Down on Grandma's belly her pillow to her chest. Up came the sneeze and Grandmas face turned white and the Itchy Prickly Scar really needs to go "Good Night"!. OOOH that was by far too polite!
A series of sneezes just hit me as I was typing and luckily I had my little pillow. Hunter still runs from the room whenever I pick up the pillow because I am fun to watch as different new sounds emanate from my lips each and every time a sneeze appears before I get the pillow into position. He runs for the back door and lifts his paws to the door howling to be let out. I have been making these sounds unconsciously entertaining the neighborhood.
It is amazing how itchy this little spot can get, isn't it. And it seemed worse with the staples I had removed there 5 days ago. Instead of the skin quieting down it left little tufts of skin standing up dry and itchier than hell! They said don't put anything on it but I have placed a warm clean wet cloth on the area once at night for the last few nights and it is much better. This itchy place is a sorry place to be but by God Girlfriend we are on the other side and YEAH for all of us at this place! You are right too. Thank God and the Universe for all of the skilled surgeons, their teams, nurses, ICU, window washers, everyone involved in getting us through our surgeries and back home again! Oh Yeah, we are a thankful bunch. How are things with your beautiful cottage garden? Are you able to rest after walks with some music or a good book? So glad you posted and are doing so well. By Christmas we will all be in far "Happier Places" as with each new day we find ourselves more healed! Take care now. Love Terrie across the Pond and happily walking around her park"!
Virginia (Ginger) French Love the Song - Titled by M then lyrics by Terrie. Autumn will not understand yet, but anytime I sing to her, which is often, is a big event. She started ... Read more
Virginia (Ginger) French Love the Song - Titled by M then lyrics by Terrie. Autumn will not understand yet, but anytime I sing to her, which is often, is a big event. She started walking this past week and turns one on the 24th, so we are having a blast watching her antics.
She has a large plastic red Fire Truck (Daddy is a firefighter) and there are handles on both ends. Yesterday my daughter sent a video of Autumn going back and forth in their main living area with the fire truck. She gets on one end and runs to the other side of the room, smashing the fire truck into the wall. Then she pulls it out enough to get on the other side and runs and smashes again. I told my daughter that Autumn is relentless! Jim and I just laughed and laughed watching it! Such energy!
As for the scar, as Terrie mentioned, a number of us have been using warm wet compresses up to a few times a day to soften the scar and calm the itch. I started doing it after my cancer surgery, and Eleanor mentioned that she has been doing the same thing. You might give it a try for some relief. The other thing I put up a small post on is making a protective pad for the incision site with gauze pad and light tape. I have been sleeping better since I started that, and find I am much less likely to have it distract me all day long.
All the best with many hugs
Ginger
Terrie Syvertsen Hello Ginger and "M" from across the pond. Funny thing we are talking about the itchy part of the incision as I used the warm compress yesterday and by the ... Read more
Terrie Syvertsen Hello Ginger and "M" from across the pond. Funny thing we are talking about the itchy part of the incision as I used the warm compress yesterday and by the end of my walk in the park yesterday afternoon(second time out) parts of the scar had slipped off and had become almost smooth! Think a lot changed for me when the staples came out! Yeah! My scar is actually starting to really fade away which is grand! I am glad we have had great weather and have been able to wear light cotton clothes which do not rub terribly. And my God the breathing just keeps getting better and better! Keep on Healing! Terrie
On August 28, 2014...
Terrie Syvertsen posted a note for M that says:
Sitting here, imagining the beautiful lady sitting by her cottage gate, neighborhood cat there for a visit as she tussles her newly washed mop of hair and tries to get it to behave! Yes, "M". Terrie here from across the pond in Manteca, ca. USA
I read your beautifully described trip to Porthleven and Cornish tea and was pulled into the vision of you eating your scones with strawberry jam and clotted cream complete with girlfriends all laughing and smiling for you, their friend who has come through so much and who is day by day, sunlight to starlight coming back to them.
I am touched by the ability I now have to reach into the dreams and hearts of others who are making their own way through this tough and long journey we share together. How the kindness of others, concern and open hearts can open up from one Country to another, one person to another, one world where I am as important to you here in Manteca as Popeye is to you even when we live so far apart in distance. How close we are able to touch one another's lives giving for a split moment or years to come a sense of well being, of an Earth Family where we can all put aside the differences for a day to reach out and touch each others and move on with our lives knowing we are the richer for it. I send you love and healing energy my heart sister and her loving husband across the pond tonight. When you wander into your cottage garden this evening, perhaps there will be a swirling mist about you, hold onto each other, sip your tea and know I am with you in spirit. BE Well Lady "M". Love, Terrie
Eleanor R posted a note for M that says:
I hope you are doing well, and enjoy some time outside. Your cottage garden looks so inviting, much tidier than the garden beds in my front yard which got a bit out of hand this year without my attention. I am now heading into week 7 and I am walking outside now, and especially on flat surfaces. Yesterday I drove to the grocery store, and purposefully went up and down each aisle, just for the exercise. I don't take naps, never did, but I notice when I sit down to read, if the article is at all boring, my eyes will close! I don't sleep, but I enjoy the "time out". Continue to take time out for yourself, and to heal well. Best wishes to you, Eleanor
M Ratchford Than you Eleanor - feeling so much better this week. think i had the four week blues early and now feel i have much more energy. visited one of the National ... Read more
M Ratchford Than you Eleanor - feeling so much better this week. think i had the four week blues early and now feel i have much more energy. visited one of the National Trust gardens yesterday and was thrilled that i could walk around without feeling breathless. last time pre op we visited the same garden, i was in real trouble walking uphill. now planning round the world trip for 2015 as we have been invited to a wedding in Fiji ! isnt life precious. love m
On August 15, 2014...
Rebecca McGrath posted a note for M that says:
Hi
I'm back and posting, writing etc. it's so good to hear you are on the other side and recovering well! I spent two weeks in hospital and got out last week and slowly starting to get used to things. I totally agree with you - this is slow progress! I can't believe how slow it is! Like you, I didn't really think about recovery and I'm surprised at how slow it is to build strength. When I read your post it's so like me. I'm taking afternoon naps, sleep in blocks and have nerve and chest feelings. People keep reminding me 'you've had a really big operation' but it's hard to understand this and get used to the lack of energy and slow movements! I'm managing some walks but I don't walk very far in the 10 minutes!
Anyway I'm really glad you're doing ok
Xxxx
Geri Frank posted a note for M that says:
Hi M from across the Pond
I am in 4th week post op, spent 5 days in hospital recovering, then 6 days to rehab hospital, 3rd and 4th week home, I am recovering well but it is a slow patient process which they stressed at the rehab hospital; I walked this morning for 30 minutes BUT ON FLAT SURFACE, the nurse and physical therapist discourage walking uphill or inclines at this time, my area is also hilly though a small hill near my home so take it slowly and stop and rest before proceeding, probably they would prefer you walk in your cottage on a flat surface,
I'm sure the recovery and healing will result eventually in a wonderful new valve pumping blood freely to all systems
best wishes
Eleanor posted a note for M that says:
Mary, you are healing and making progress. Probably you do not see it, but I'll bet your husband does. My daughter told me she could see improvement every morning when I got up, by the way I moved, better balance than the day before, more resolute and on top of things. I am just two weeks ahead of you, it was a month yesterday that I had surgery, and I don't run up stairs either, but I do remember being told by the nurses at the hospital and the visiting nurse, to go up sideways, facing the handrail, and hold on with both hands, taking one step at the time. Today I just go up, no hands, no side contortions, and best of all no shortness of breath. Once the surgery is over, as our minds heal too, we tend to "forgot" that we have been though major OHS. Good to not constantly remember it, but what amazing bodies and minds we have that can allow that to happen, and for us to recover. Like you, I take smaller walks around the block, and in larger stores when my daughter takes me out to walk someplace different and flat. Like you, the streets near my home have hills. I have a lovely large park across the street, but lots of ups and downs there, so I'm not attempting too much of that. Keep healing, and enjoy (if you can) this down time of being more slow than you will be in a few weeks. Best wishes,
You will get better. I only felt better after 6 weeks, probably between 7&8. I do feel better the last, 3rd, month. I just made a post. Be patient & let your body do its job.
Meredith Bray posted a note for M that says:
You're only 2 weeks past surgery? At that point I could only do a few laps around my little block without being exhausted! I was still taking naps during the day. It still took me an hour to shower from start to finish! It's a long row, even at 22 weeks I still need a nap sometimes. I didn't sleep all through the night for several week (and still have trouble sometimes) AND MY SCAR ITCHES LIKE CRAZY, enough to wake me up!
Clare Auten posted a note for M that says:
I am walking miles now but it is 7 months post op. I think at 3 weeks my adventures included a couple hundred feet to the mailbox and to the end of the street to get the kids on the bus. The first time I did that, I had to come home and rest before I did anything else. Your energy will come back in time. Hills are still hard for me. Good luck!
Lynn Quast posted a note for M that says:
Hey take it easy lady !:) I'm a control freak myself and it was really hard to accept help.. Especially with showers and washing hair.. Ugh!! But I didn't do it alone for at least 2-3 weeks! The blurry vision is probably from the steroids they give us . My vision got worse and my eye doctor says it's common after this kind of surgery . It's been 4months for me and sometimes when I'm really tired I still get black spots in my eyes and some dizziness. Cardiologist can't find a reason and says just keep watch on it . Again, please take it slow, the recovery for most people is harder and longer than they think. It's not a race:) best wishes!!!
Thomas Campbell posted a note for M that says:
I had daily visual auras after my surgery. Mine were black and white mostly starting as a spot then expanding to the outer range of my vision field. Lasting about 30 minutes, it reminded me of the migraines I would have except no headache. Although I never got an explanation, I associate it with the medications.
Meredith Bray posted a note for M that says:
One week after my surgery I was still in my recliner most of the day, I took over an hour to shower and get dressed. I couldn't sit at my desk for more than a few moments. Other than taking short walks, I was in my chair watching tv (but couldn't really follow along) or napping. You're doing fine!
Glad to hear your surgery went well & you establish your INR. Post surgery, I was surprised by insomnia, which still bothers me ( but not too bad) now 12 weeks later. Take as much rest as your body needs. I only felt better 7-8 weeks after surgery. Is your eyesight still blurry?
Terrie posted a note for M that says:
"M"
It may be a California left over from the sixties response but...."Whatever She's having, I'm having!
Wow! such a descriptive narrative on "Coming back" from surgery. You Put Ginger's "OZ" in the backround and bring to mind Alice in Wonderland!!!
But I believe that you will be hearing from people quite soon who have shared similar events and symptoms as you describe. Think it to be said it is part of the body ridding itself of the anesthesia and or drugs of your time in hospital but don't know. I am hoping that people respond as they usually do to you so that the "Controller" part of you is once again a happy camper!
As for forgetting what or which room you are in I also think that will come back to you Lady! Mind yourself though when heading for the bathroom and are sitting with your bum in the kitchen sink.....Not a good sign!!!!!
I am so glad you are at home1 In recovery sounds so good to me. It will get better now that you are home. Be patient with yourself and keep us updated when you feel up to it so we can keep up with your progress.
Have you been able to sit in your beautiful garden yet? What a wonderful space to have to go home to.
I bet the "Kids" of yours are happy you are home. Are you going to get a chance to see any of them anytime soon? That would be nice for you.
Take it easy and be patient with yourself. The weeks will go by and pretty soon I will be reading: 1 yr. anniversary date of my surgery and I "own the world"!!
Have to go let Hunter out! Love to you!
Missed your posts and lots of people are going to want to read about your surgery as things continue to come back to you that you think will help all of us pre-op people I am sure! So glad you are home and happy for your husband as well as this had to be a pretty rough wait for him also!
Love, Terrie and Hunter who is on three legs............
Terrie posted a note for M that says:
Hello "M" Just a quick note to say I am thinking of you and hoping the recovery is going well.
Know you said you probably won't post until you get home so here is to a good healthy recovery and back home for you! Say hello to your husband and thank him for taking good care of his lovely bride! Later my heart sister!
wow just read your journal cancelling :( cant believe it. That would do my head in. So glad all went well with surgery and you or on the road to recovery.
all the best to you
Meredith Bray posted a note for M that says:
YAY! Isn't it great on the other side! Keep breathing, and resting your head, and walking, and resting, and breathing. Stand tall to alleviate back pain!
Eleanor posted a note for M that says:
Wow, only day 3 post surgery and you are typing already. I could not use my arms so well the first week, felt like a robot with elbows at my waist, to avoid engaging my chest. I hope you continue to heal rapidly and fully. Best wishes.
Terrie posted a note for M that says:
Good Day to you all over the Pond!
Been waiting to see your post and so glad to read you are on the road recovering. Many of us will be feeling a lot better knowing you didn't get bumped again!!!! Hope your recovery runs smoothly and you are able to get your numbers balanced so that you get to go home to your beautiful cottage!
Thanks for the post and hope to hear again soon of your progress "M"! Bet your husband and kids are very happy for you too! Take care. Love, Terrie
Terrie posted a note for M that says:
Hello "M" and Husband!
Just a note to say Hello and that I am thinking of her-Hope all is well. Sending continued prayers and lover your way.
Terrie posted a note for M that says:
"M"
Thinking of you this morning and hoping that your surgery is going on as planned today.
Sending love, hugs and prayers.
Love, Terrie
eleanor.rebollar@gmail.com posted a note for M that says:
Good luck to you on your surgery. You will be in my thoughts for a successful recovery, so you can quickly get back to that charming cottage. Best wishes. I am 16 days post surgery and so much better.
M Ratchford Thank you Mia am sure you are through surgery and well on your way to good health again. check out ginger's global ice cream marathon am sure she would love you to join us. love m
On July 28, 2014...
Terrie posted a note for M that says:
Hello M. Terrie here from across the Pond!
Just heard from Ginger that she will be going in for her Cath tomorrow and I think she posted in her journal.
So glad that Jim and Elizebeth are there with her. She sounds very upbeat and ready for this.
I hope you are doing well and that you and your husband are feeling confident and happy to move forward too. I know that Ginger thought it a good omen that the two of you share the same day of surgery and that she is planning a "Skype Ice Cream Extravaganza in the future after everyone is into their recovery!
Sending prayers and love to you both.
Terrie posted a note for M that says:
Hi there "M"
On for the 31st? So is Ginger so far. Just received an email that Ginger sent saying that she, Jim and her daughter Elizabeth are all together in Cleveland and she is working on paperwork, having a nice dinner out with old friends and said her trip to Cleveland went well.
So there will be continued Prayers and Goodwill for all in Heartland all over the World! Hope this finds you well. Thinking of you. Love, Terrie
Mary (Mia) posted a note for M that says:
M,
Thank you so much for the well wishes this week. I agree this site that Adam created has created a heart family of brothers and sisters. My surgery is the 29th, along with Mitchell, Ginger's the 31st, and yours the 31st.
By this time next week we will all be finished with our surgeries, and on our way to a healthier heart.
You are in my prayers along with all of our other heart brothers and sisters that are preparing for surgery or healing from surgery.
Please continue to post in your journal. I will have a family member post for me until I am back on!
Try to focus on the positive as I am trying really hard to do that. I had a crying moment last night. Sure that is the first of many.
Sleep well, God bless you, hugs from your heart sister.
Terrie posted a note for M that says:
Good morning "M"
That is good news! The 31st! That puts you and Ginger going in on the same day! I think that will be a comfort to both of you, yes?
Glad you are not as apprehensive about the surgery since you have had a near run through of the 'event".
I am looking forward to reading that you have left for the hospital again and will continue to pray for you between now and then as I have begun doing anyway! It is just a part of a special time of meditation and inspirational moments fitting into place for all of our heart community. The right and comforting thing to do and a time I look forward to. I am looking forward to both your and Ginger's recovery time. And knowing you are back home recovering. Thinking also of Rebecca today and Gigi from Monday's surgery date. So many of you out there with hearts being mended. Thank you God & Blessings to this Universe that keeps on spinning as we fight to keep on ticking!
Have a lovely day today my heart Sister!
I will be thinking of you as I continue to putter in my garden before the heat!
(Still pulling weeds in the backyard and hoping it won't get too bad before I come home for my recovery one day soon. Love to you-It won't be long now...
Terrie posted a note for M that says:
Good night over the pond people!
Oh my God I just named you the "Pond People"! Can you tell I am tired!
Thought of you off and on all day hoping the stress level is a bit lower(although I don't see how it could be!)
Maybe we will all hear about Eleanors surgery soon as it is a good example of how soon it can be from surgery to off on recovery trail!
Deep breath. Going to bed saying prayers that you hear of a new date soon. Take care! Love, Terrie
M Ratchford Hi Terrie telephoned surgeons secretary yesterday and she said i am first on his list for 31 surgery. just have to wait for letter to confirm this but fortunately ... Read more
M Ratchford Hi Terrie telephoned surgeons secretary yesterday and she said i am first on his list for 31 surgery. just have to wait for letter to confirm this but fortunately the NHS has certain guidelines when surgery is cancelled. have written in yor guestbook today too but have rambled on a bit. i paint a bit (my dad painted and mum) and will get seriously back into it one day. i also write a bit, patchwork (well i live in a cottage so its almost mandatory LOL) and jigsaws. was saving my favourite jigsaw for my recovery but decided to start it yesterday. there is something very soothing about doing jigsaws. its very hot in cornwall at the moment which makes me feel worse know you had some very hot weather recently too. it seems to make breathlessness worse and then cant sleep at night. i feel there is so much love and care out there and i too say a little prayer for each person i know on this blog and especially for when i know they are having their surgery. take care not long now love mary
On July 20, 2014...
Rebecca posted a note for M that says:
Hi M
I'm so sorry your surgery was cancelled that's the bad side of the NHS! I had a long chat with my cardiologist yesterday and she talked me through how and why surgeries get cancelled as she is preparing me for this possibility when I go in on Tuesday. Like you, she said it can be right up to Wednesday morning. It's awful but I guess we must share the excellent services and give to those who need it more even if it is hard for us. I hope you are at home enjoying some of this sunshine and heat which is oh so rare for us in the UK!
Hoping you get news of a date very soon
Xxx
M Ratchford hi rebecca - yes and i fully understood why. the hospital had a virus outbreak that week too so hospital staff was down and wards closed so lot of pressure ... Read more
M Ratchford hi rebecca - yes and i fully understood why. the hospital had a virus outbreak that week too so hospital staff was down and wards closed so lot of pressure for the cardiac staff. and if someone comes in with a heart attack and needs urgent heart surgery thats just the way it goes after all it could be my child or husband. but now i know the process up to getting the sedative it dosnt seem half as scary. the staff are absolutely wonderful so caring and of course lots of humour in such a stressful working environment. also learned what not to bring as took far too much. basically first three days all you have access to his your wash bag and everything else is locked away until you get back to cardiac ward. thank you yes did get to wear my flip flops for the pre surgery shower. love to you and lots of positive stuff over the internet to you going northwards from the west m xxx
On July 19, 2014...
Ginger posted a note for M that says:
M,
What a total bummer! It is one thing to get to the ice cream shoppe and find they have run out of your favorite flavor, but moving the surgery on the morning of when you have prepared mentally is the pits.
I am glad to hear, however, that your surgeon is so great. It sounds like he may well be worth the wait!
There is an old saying that good things come to those who wait, and that means you have good things coming! Just think of all the prayers already sent to God on your behalf. He certainly knows what is going on at all times, but has been prepped for your surgery with all of this prayer.
Losing weight is not helpful if it is because you are stressed. Please remember that there is a fairly large and always growing Heart Family who will continue to cover you in prayer. May that bring you some peace.
The information I have also says that in the case of an emergency surgery may not be on the designated date. So it can happen to almost anyone.
Praying for comfort and calm you have never known!
M Ratchford Hi ginger i think i was so stressed because i am someone who likes to know every detail so i can plan for every eventuality, i just hadnt planned for that ... Read more
M Ratchford Hi ginger i think i was so stressed because i am someone who likes to know every detail so i can plan for every eventuality, i just hadnt planned for that experiences. i fully understood why and of course urgent surgery has to take precedence over anything else. one thing i found was the staff were incredibly caring and efficient despite working in difficult circumstances as several wards had been closed that week and a lot of staff away sick. positive thing is i know the whole process ithout actually having the surgery so far less stressed than i was. went out to dinner with friends last night and so much more together today. I think the weight loss was not eating or drinking for such a long time. i had no appetite and then i was fasting. so good tip if you hae somewhere special to go and cant fit into your favourite dress, just stop eating for 48 hours LOL. hope all is well with you and looking forward for your reboot not long now. lots of love m
On July 19, 2014...
Julia Hsu posted a note for M that says:
M,
I am so sorry that your surgery is pushed back again. I can't imagine how hard it must be for you emotionally. Hang in there. Hope it will be your turn soon.
M Ratchford Thank you Julia - it was stressfull but i know the person who took my place needed urgent surgery. surgery arranged for next week 31 july so i think there are ... Read more
M Ratchford Thank you Julia - it was stressfull but i know the person who took my place needed urgent surgery. surgery arranged for next week 31 july so i think there are a few of us will be recovering around the same time so will be comparing notes. take care
On July 19, 2014...
Terrie posted a note for M that says:
"M" Oh My God, Oh My God, Oh My God! "Are you kidding me"?
You have lost weight BUT do you have any hair left????????
I am so sorry you are having to continue the wait! At the rate you are going you and I might be going in at the same time! Do they have any estimated timeline for your now? I can only imagine your frustration level.
I hope this won't undue all of the great attitude and confidence you have built up in getting this over with because you still need to "take care of you"!!!!!!
Really sorry "M" but you know and don't want to hear I am sure that "things happen for a reason". When you figure out the "reason" do let us know, will you. I will be thinking of you as will our community of people who are sitting here shaking their heads with me at this news!
email me if you want to chat!(tsyvertsen1@sbcglobal.net)
Love and hugs to you both!
Meredith Bray posted a note for M that says:
Seriously? My eyes are ROLLING! It's got to be so frustrating to be ready to just do it, and then not be able to. I guess it's not time yet, or someone else's emergency trumps yours. Whatever. I hope you can have a nice meal or tow today!
I'm heading out in my kayak on the Gulf of Mexico this morning. The sun just came up, the sky is brilliant purple, and it's a new day.
M Ratchford Thank you for your comment Meredith. very jealous i love kayacking in Turkey but havent been able to go there this year. Am back home until next week when my ... Read more
M Ratchford Thank you for your comment Meredith. very jealous i love kayacking in Turkey but havent been able to go there this year. Am back home until next week when my surgery has been rescheduled and i will be first. the experience gave me the opportunity to meet all the staff and know the layout of the ward and what actually happens so its actually taken some of the stress away. just want to get it done now and get back to health so i too can climb moutains and go kayacking - have never been on a horse but you never know. love to you and than you for your comment on my guestbook. take care m
On July 18, 2014...
Terrie posted a note for M that says:
Know you are off in recovery(or pray so) so I am headed off to bed at 10:08 p.m. here in California thinking of you and your husband and sending out the last prayer on my lips!
Love and gentle hugs! Terrie
Ginger (in the Land of Oz) posted a note for M that says:
M,
Have been praying for you fervently! What a bummer to deal with a postponement, but it is good that the hospital took precautions to prevent further spread to patients of unexpected illnesses.
I will go to bed tonight picturing you out in the lovely back garden of your cottage, and praying that you return there soon and in a strong healing phase.
Rebecca posted a note for M that says:
Thinking of you tonight and hope all went the very best it could. Looking forward to hearing from you very soon.
Xxx
Terrie posted a note for M that says:
Yeah! Good news to hear today especially wish you could see me grinning my happiness at hearing it is a go for you since I just got back from having my tooth pulled at the dentist.
It is a lopsided grin but all yours kiddo!
Biscuit and chocolate, sounds almost as comforting as ice cream!
When this is over a few of us will have an email ice cream a thon together, promise!
You take care my Heart Sister and know all will be well and you will be one of the lucky and blessed ones who can say, NO MORE WAITING!
Hope you will keep us posted when you are up to it and take good care of yourself. Happy and smooth recovery my friend from across the Pond!
Terrie posted a note for M that says:
Good morning Sister-"M"
Thinking of you. Still on for the 18th?
Hoping all goes well and you get in tomorrow! Love to you and your husband-Positive thoughts and prayers coming your way.....
Terrie posted a note for M that says:
"M" Sorry to hear about the delay but it is good you weren't entering the hospital with a known stomach virus. The last thing you want! I feel for you, we all do as this wait is crazy. The worst part. I hope the walking at your nursery helped calm things down. It would do it for me as well. I have re-marked my calendar for the 18th. so as
to be with you in spirit, sending prayers
Tomorrow is my last "dental" episode which should give me time to heal in time for pre-op dental check. I am getting anxious again and having to do a lot of "talking down" to myself.
Would love to be across the pond having a nice pot of tea and admiring your cottage garden with you and discussing the best ways to recovery and become the happy healthy Women we will be again soon. That goes for all of us at the community. Now imagine hundred or more heart brothers and sisters sipping tea in your beautiful garden and making new plans because IT IS OVER!!!!!! I hope you have a restful day (somehow) and realize I am thinking of you and want you to be finding that inner strength we know you have to let these next days go by so you are ready for the days ahead that count so much to that better future we are counting on.
I saw the Dr. yesterday(primary physician) who took me aside in the doorway and touched my shoulder saying "Terrie- the next time I see you you will be feeling so much better, breathing good deep breaths with color to your face and full of that wonderful energy you once had! It is almost over, this wait. Good luck with your surgery"
It was kind and I looked at him and realized that I was in fact such a different person when he first met me just a year ago and it hit me how much this "Stenosis" has robbed me(All of us) of and how different the new valves will make our lives better) Please focus on this with all your heart dear Lady. You are going to be wonderful....I am excited for us all.
Take care and remember you have my email address so you or your husband can reach Gary and I if there is anything we can do.
Remember one of my goals is to make it over the Pond and visit you in your Garden!
Love, Terrie
Rebecca posted a note for M that says:
Take care and best of luck for Thursday now. I'll be thinking of you and sending you lots of special wishes to hope you wake up not remembering much and feeling like you're on the road to recovery. Stay strong
Rebecca xxxx
geri posted a note for M that says:
Hi M from across the Pond,
sorry your surgery was delayed, I found out last Friday that my surgery scheduled for tomorrow was rescheduled for Monday 21st of July, of course plane schedules of family were effected, maybe numerically the 21st is a better day.
most upsetting is I cannot take regular excedrin for migraines 1/2 tablet for a week prior to surgery, only sumicriptan, somehow I will survive the wait,
good luck and best wishes
Geri
Terrie posted a note for M that says:
Hello "M" So your surgery is now July 17th? Sorry for the delay but like you said it means someone needed it more than you did. Great attitude and I get the stress factor but....You need to reel it in for "your" day! I hope the time goes by fast so you find yourself headed out the door and on your way.
Will be ending great energy and prayers for your day. Do you have any idea what time it is scheduled for?
I hate this waiting now too. I have over37 days to go! Do you realize by the time I go in you will be home sipping a cup of tea looking out over your cottage garden???Sounds so good doesn't it? Did you end up renting a chair or did you figure out a good way to rest? I am buying a wedge this weekend.
I hope your husband will keep us updated on you so we know how you are doing.
Take care my heart friend and this will soon be in the past! I'm counting on getting in great shape with you during recovery as is Ginger and the rest!
Take care and let me know(I gave you my email(July 13th.)if there is anything I can do!
Terrie posted a note for M that says:
Greetings to you "Over the Pond"!
Terrie here. Just sitting here at the computer thinking about you and wondering how you are doing. I suppose you are getting things all together and ready(more than ready) for surgery.
I am glad that you had a chance to talk with family and that you have been getting such good advice from people online. Ready with prayers and positive energy for Eleanor for her surgery tomorrow, eh?!!! It seems like surgery is on the horizon for a lot of us here on site.
I am going to give the wonderful Universe all the sweet energy one can give to float out there and keep all of the hearts safe, families and friends will join and that enormous energy of love, understanding,prayers and Peace will get you/us through what lies ahead.
Key word there my new heart friends. AHEAD!
When it comes down to it, it is so important we believe that we have all agreed to move forward with our lives and with our beautiful "ticking" hearts in much better shape than before.
And M you will be climbing mountains one day in the future and taking photos of your climb to show your heart sisters over the Pond your gains in strength and stamina that are going to surprise even YOU! I am giving you my home email address if you want to get to me direct "M". (tsyvertsen1@sbcglobal.net)
Know how special and important you are to this earth and the people who love you. And let them help you get that pot of tea, open the refrigerator and put things away, shrink their/your laundry as it will be just one more of many stories to tell that have added so much to your very precious lives.(This goes to Eleanor as well as yourself and all those "taking the next steps".
When you close your eyes tonight, all of the heart people out there wherever you may be, dream of the better, healthier you that awaits the world in a very short amount of time and that all of us here in the "community" have your "Hearts"! In our prayers.
Love to all today and I can't wait to do a carving of your little cottage!
Your Friend and Heart Sister
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Maggi
This is all happening for me at a very stressful time - last January my youngest son died very suddenly from cardiac arrest he was 42 - if my operation is, as scheduled, on the 10th January I will be in hospital for the first anniversary which obviously is going to be a very emotional time and I would much rather be in my own room. James' father died 30 yeas ago in a very similar way so over the years a double whammy for me although I happily remarried a few years later. Mr Lloyd and his team know the situation and he has said that if all goes well I could be back home by the 15th the day James died, but that does seem very quick.
On a positive note it was James' death that made me go to my GP after a couple of light headed instances and he confirmed a murmur. This was in
July and following tests I was diagnosed with severe stenosis. I am now noticing the breathlessness and realise I have had it for years, but thought it was 'normal' . I must be very naive!!
Do you still see a cardiologist at Derriford and who is he/she? Where in
Cornwall are you? We are in Devon in Tavistock right on the Cornish border - just wondered how close we were.
Thank you again Mary for such a reassuring post. 2016 was a bad year for us and I just hope 2017 will give me back some of my life that wants to get on and do things. My other son always says - life is not a rehearsal you've got to get on and do what you want to do - how true. So pleased I found this site - nothing similar in the uk.
Maggi xx