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Diagnosis: Aortic Stenosis, Bicuspid Aortic Valve, Mitral Regurgitation

Member Since: April 20, 2015

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Julie McDonald-Lundgren got a guestbook from C L

9 years ago (January 3, 2017)

Hi Julie, I saw your smiling selfie picture. You look great! I'm asking for my daughter, who was just diagnosed at 17, moderate to severe aortic regurgitation. Did you see a pediatric cardiologist and change to adult cardi, at what age? Thanks

Cathleen Weed

I saw this and wanted to let you know my experience. I was followed by my pediatric cardiologist (who had known me since age 6) all the way through my first 2 OHS (age 19 and 22). I was given a choice at Cedars Sinai of being on the adult... Read more.

C L

OMG Cathleen, Thank you so much for this advice! I was so consumed with the current, and didnt think about her transition in the very near future. I want to just follow one cardi b/c I'm already confused as the pediatric cardi want her to go on ACE but I... Read more.

Cathleen Weed

You are doing the right thing for sure. It's good to get lots of advice and to not jump on the meds too quickly if possible. :) Lots of big decisions!!

C L

Cathleen, I'm so grateful for all of your advice. You are a true warrior (a very pretty one), and extremely kind and generous of you to share your story and experience to guide others! I will be taking my daughter to a God sent cardi in NYC that sees patients... Read more.

Cathleen Weed

Hi :) You are so kind to say those nice things, thank you :). I'm happy to help! We are all in the same boat, we may as well row together! I'm glad you found a great cardiologist for your daughter. The right care and plan mean everything. I like... Read more.

Julie McDonald-Lundgren

So sorry I didn't see this until now. I did not have a pediatric cardiologist as I was diagnosed at age 16. I had echocardiograms every year. That was really the only thing I did. I had a bicuspid aorta so circumstances were different.

Julie McDonald-Lundgren got a guestbook from Jim Cummings

10 years ago (October 3, 2015)

Julie, I'm also back to riding horses and feel that life is normal again after an aortic value replacement in March. The biggest change that I've notice is my difficulty getting on horses over 15.3 hands high. Just don't have the leg strength, timing or co-ordination to put myself in... Read more.

Julie McDonald-Lundgren

I use a step to get on my horses, it's better for me and better for the horses. I have had a set back and haven't been riding again, yet. Glad to hear about others that have had valve replacement that like to ride!

Julie McDonald-Lundgren got a guestbook from Barrett Burris

10 years ago (September 24, 2015)

Hi Julie. I am a horse lover also from Magnolia, Tx (Houston). Surgery not scheduled yet but will be soon. I was diagnosed w bicuspid aortic valve and ascending aortic aneurysm. How long after your surgery before you road again? I trail ride, nothing competitive. Am fairly active now. Thank... Read more.

Julie McDonald-Lundgren

It was 3 months. But now I have had a bit of a set back...I ended up going into the ER on Sunday with chest pains, I have pericarditis and they sent me home with medicines...however, it was not getting better - the other night I had server pain, hot/cold... Read more.

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