Regarding post-operative clothing: Check with your surgeon or their nurse. I woke up from surgery with a surgical bra. It had a velcro closure in the front ...Read more
Regarding post-operative clothing: Check with your surgeon or their nurse. I woke up from surgery with a surgical bra. It had a velcro closure in the front and the back, and the straps were also velcro-adjustable. I was in hospital for 5 days, and all I needed to wear was the surgical bra, the hospital gown, and I had under-shorts I brought from home. I was never in any discomfort from clothing. You'll definitely want to wear the gown because of the tubes and IV lines and accouterments going in and out of your body. Once I got home I wore button-up pajama tops. I found I was more comfortable wearing a snug tank top in lieu of a bra. I did need help putting it on for the first two weeks. I was able to wear my usual undergarments for short spans of time after about a week. I also appreciated elastic-waist pants/shorts the first few weeks. but don't spend a lot of money on a special wardrobe, you won't need accommodations for very long!
Emily Rowley Diana, all the time I was in Hospital I wore their Hospital Gown (as you can see in my photos)+compre ... Read more
Emily Rowley Diana, all the time I was in Hospital I wore their Hospital Gown (as you can see in my photos)+compression stockings+their disposable undies 24/7. I packed a whole suitcase too lol. I only wore my own clothes going to & from the Hospital. Day 5-6 they said I could wear my own clothes+PJ's if I wanted but it was easier wearing gown+I was constantly bleeding out everywhere... Day 3 the Nurses encouraged me to wear my Cardiac Bra (esp if top heavy) for support & reduce stretching. Although this was at a Private Hospital, whereas my 1st was at a large Public Hospital that didn't want patients to use up all their gowns. When I got home I wear front button up PJ's (must have because it's very hard to place anything else on without pain+struggle), plain cotton tops, and try to wear my compression pants. Also soft flat shoes you can easily slip on+slippers will come your new best friend.
It all depends on what you feel comfortable in 😊👕👟
Diane Brown Sorry I didn't respond earlier, but I followed both your advice! Turned out my Dr. Wanted me to arriv ... Read more
Diane Brown Sorry I didn't respond earlier, but I followed both your advice! Turned out my Dr. Wanted me to arrive with front closure bras o e size smaller than normal. They were a little pricey but great. Hospital gowns for sure and cotton open front pjs for many weeks at home. My Dr. says no arms over head for 6 weeks, so I didn't. Had some hideous combos wearing street clothes! Hope you're both doing well. I'm doing great! Love your emojis. 👙
Terrie Syvertsen posted a note for Diane that says:
Diane. I am sorry for the loss of your husband and can clearly understand why
your heart and mind might be considering the option of not going through with ...Read more
Diane. I am sorry for the loss of your husband and can clearly understand why
your heart and mind might be considering the option of not going through with your surgery. People who have their heart valves needing mending are all faced(especially the closer it gets to surgery)with the choice of not going through with it and we(they) haven't had such a loss as yourself. I should like to think that deep within your grieving for your husband something of that love you shared together and your shared life experiences would shine a light within you that opts to let in the possibilities of what you can do with the life that awaits you once your heart is mended and is in better shape to continue on in life stronger because of the surgery where you will have the people here in our community to support you along the way as you recover and find your way back from both your loss and the outcome of your
surgery. Here(this community)is a great group of people who know first hand how to
comfort and support each other and I am so glad you found this site for this reason.
I would also hope you have family and friends to also make this journey with you and
I can tell you first hand if family and friends are few you can still make it through this
with the Heart Sisters and Brothers and this community you are now a part of. Know you are not alone in this and that we will all help direct your needs with our collective experiences to help you along your way.
Diane Brown Thanks Terrie. I only considered not doing anything before I made the appointment with the surgeon. ... Read more
Diane Brown Thanks Terrie. I only considered not doing anything before I made the appointment with the surgeon. I'm a "young" 76, and still have much I want to do, and certainly prefer to do it in good health. I just wish I could get over this feeling of terror and the vivid pictures of what he's going to do that float around in my brain. :-( Other than feeling more fatigued than ever before, I'm okay.
Are the "Heart Sisters and Brothers" yet something else I should be resourcing?
Thanks again.
Hi Diane, First, my deepest condolences on the loss of your husband. As for going through with your operation--assuming you're otherwise fit to have it--I ...Read more
Hi Diane, First, my deepest condolences on the loss of your husband. As for going through with your operation--assuming you're otherwise fit to have it--I think your husband would want you to have it. Wouldn't he want the best for you? Well, now you should want the best for yourself too.
The operation itself, while a significant one for each of us, is pretty routine for your medical team. Most teams have performed thousands of these surgeries, with a mortality rate overall of two percent of less (and those were invariably people with other health problems). It's one of the very safest surgical procedures they do. And as you can see from the postings here, we all get through it and come out better--even MUCH better.
I encourage you at this point to surround yourself, in person, with others who have gone through it. They'll be an incredible source of warmth, encouragement and love for you. You won't be going through it alone. So contact a group called Mended Hearts through your hospital. Or if there's no such group local to you, ask your hospital if they can put you in touch with individuals who have had your procedure.
Wonderful as the people on Adam's site are, we're gone the moment you shut off your computer. You need in-person people now, and there lots out there. Go for it! My very best wishes, Artie.
Diane Brown Your kindness is heartfelt and much appreciated. I will check out Mended Hearts. I'll be very surpri ... Read more
Diane Brown Your kindness is heartfelt and much appreciated. I will check out Mended Hearts. I'll be very surprised if Florida Hospital in Orlando doesn't have such a neat support groupl
Actually, I am otherwise healthy. Heart cath last week was all good. I considered that the good news for my kids and grandkids too...no familial heart disease to worry about. And the only time I thought about not having the surgery was before I made the appointment with Dr. Accola. He really is a one of a kind surgeon personality! Thanks again.
I'm Diane. One of the great shocks of my life was being told on Dec. 10, that my aortic valve idamage has reached 'severe' and it's time to think about replacement. ...Read more
I'm Diane. One of the great shocks of my life was being told on Dec. 10, that my aortic valve idamage has reached 'severe' and it's time to think about replacement. I'm terrified! My husband died July 28, and the thought of going through this without him waiting for me just keeps me crying.
I procrastinated long enough and have a consultation visit with Dr. Kevin Accola on February 15. I also have Adam Pick's book from a dear friend, but can't make myself read it.
Is there anyone out there who ever decided not to go through the surgery? I guess that's an option too.
barrett burris Hi Diane,
I am so sorry for your loss and understand how lonely and afraid you must feel right now, ... Read more
barrett burris Hi Diane,
I am so sorry for your loss and understand how lonely and afraid you must feel right now, That is completely and normal. The good news is that our conditions are treatable, I pray for courage and peace for you and all of us going through this.
I'm sure you have family and friends who can support you, as well as those of us on this site, We all have an opportunity to inspire and help each other as well as those who will be reading our posts in the future.
Breathe and Peace be with you.
Roger Birch Read the book, it does help. I had AVR 1/22 and the pre surgery wait was for sure worse than the post ... Read more
Roger Birch Read the book, it does help. I had AVR 1/22 and the pre surgery wait was for sure worse than the post. At least so far! My biggest problem now is sleep, was never good at it. Now with more meds than ever the sleep is worse than ever. On the rare days I get a good night of sleep I feel awesome. Chest pain is very minimal, would have never believed that pre surgery.
Christine Oliva Diane, I am Psych Tech so I can relate to your position. I waited the full 3 months before returning, ... Read more
Christine Oliva Diane, I am Psych Tech so I can relate to your position. I waited the full 3 months before returning, lifting and restraining maybe necessary. Also, I asked my doctor to put my return per a weight limit of 25 pounds for next 6 months. I was surprised but my employer took it and even offered me shorter shifts for the next month or two. I may not need it for six months, but Roger B. is right it is harder to get more after you have asked. I don't think I will need the full six months, but I wanted to give myself the best chance possible. Heck we deserve it and if you have job working with compromised people you own it to them too. Don't be afraid to ask, I was and thankful I did. Condolences on your loss, hang tough Diane. Hugs & peace to you.
PS, its called workplace accommodation and under FMLA if you work fulltime. Goggle it.
Jean Raber Dear Diane, I know many people (but not on here) who decide against surgery. These individuals usuall ... Read more
Jean Raber Dear Diane, I know many people (but not on here) who decide against surgery. These individuals usually have multiple health problems and understand the inevitable heart failure that will ensue and what care will be required when that happens. Understanding what you're in for should you not have surgery is something you should discuss with a health professional. I would also urge you to discuss your feelings against surgery with a close friend, clergyman, or counselor. Perhaps the grief you must still be feeling over losing your husband are clouding your ability to make a good decision for yourself now. I do feel for you, and do continue to post here. People can offer a lot of support.
Liz Burroughs I thought about not having my surgery because I was so scared. I went through with it because I knew ... Read more
Liz Burroughs I thought about not having my surgery because I was so scared. I went through with it because I knew it was the right thing to do. I didn't want to have permanent damage to my heart. I think that you should go through with the surgery. I'm sure that your husband would want you to live a happy and healthy life. I'm so sorry for your loss. We'll be praying for you.
Lewis Garlisi Many of us were shocked and scared when we realized our conditions and the prospect of surgery. Havin ... Read more
Lewis Garlisi Many of us were shocked and scared when we realized our conditions and the prospect of surgery. Having to go through this without your husband has to be terribly difficult. But you still need to do whatever is right for you. You went to the doctor on 12/10 for a reason. Follow up. As you see from the prior comments, you can certainly get a lot of information and support on this site. Whatever decision you make, make sure its for the right reasons.
Wanda Mroz I'm so sorry for your loss... And your feelings are all normal. Know that not having surgery will co ... Read more
Wanda Mroz I'm so sorry for your loss... And your feelings are all normal. Know that not having surgery will compromise your heart and there will be other health problems. I'm sure your husband would not have wanted that for you. He'd want you to be healthy and find happiness. Go to the consult and know we are all here for you to support you and answer any questions you may have. Prayers that you find peace and make the right choices. Hugs
Diane Brown Wow - thanks to all of you. Forgot to mention, had the Heart Cath last Friday and heart, veins and ar ... Read more
Diane Brown Wow - thanks to all of you. Forgot to mention, had the Heart Cath last Friday and heart, veins and arteries are healthy! Very thankful for that. I'm 76 - a grandmother - so no work issues. I did read the book! I've always been a "the more I know, the less I fear" person. Not in this case. I really wish I didn't know so much.
No more consults that I know of. Dr. Accola was everything everyone else has described. Pulled out pictures of his then 4 week, 3 day, 7 hour old first grandchild. He was gaga over her. So not a surgeon personality, and as someone else said, answered all the questions before I needed to ask them.
I agreed to wait until April 5 when Spring Break is over and all my children are available.
barrett burris Congrats on the healthy veins and arteries. I was a bit surprised (okay, a LOT surprised) when I got ... Read more
barrett burris Congrats on the healthy veins and arteries. I was a bit surprised (okay, a LOT surprised) when I got a similar report. I'm like you in that I didn't want to know what was going to be done to me during surgery. Chalk it up to "ignorance is bliss", or "denial" but there wasn't an option, it had to be done. During my first post op visit, it was then I asked the detailed questions. I also agreed to have my procedure filmed for training/educational purposes and was given a DVD of the entire thing so if/when I'm ever ready to watch, I have it (won't be for a long time). Keep the faith and my prayers for courage and healing are with you.
Barrett
It all depends on what you feel comfortable in 😊👕👟