Hi Chris...I am Linda, a friend of Joe Gimble on the HVJ site. So sorry to hear you have had so much trouble. I hope you are improving since your last post. Yes, we all know that there can be complications when you have any type of surgery regardless of the skills of the surgeon. Stuff just happens...not a pleasant thought, but none the less a fact. I have not had my surgery yet, will go to Cleveland Clinic for aortic valve replacement and possible dilated aorta repair. There are some great people on this site, very good about answering questions and giving encouragement. I'm sorry I can't be of any help, but my time hasn't come yet, so you know much more than I. I will be praying that you get to complete recovery and all of this will just be a distant memory soon.
You mentioned about family heart problems. Just to let you know, Uncle Bob was in the hospital in January for three days with arterial fibulation. (Spelling?) The doctor said his heart beat should be between 60 - 90 and his was spiking at 140. Thank God, just like that, his heart went back in sinus rhythm all by itself. Family trait?????
I am sorry to hear about your set backs in healing. Just remember to keep strong and go with your "gut" if something feels wrong then something is probably wrong. And it's certainly ok to find a new cardiologist if you don't agree with your treatment or progress in healing. If you don't mind me asking where/what hospital did you have this procedure done? Best of wishes and stay strong.
Hey Chris! I come on this site often to read other peoples stories. I recommend to visit www.valvereplacment.org this is a great community/forum of people who have seen and been through it all. For Q & A its better than this site. I personally like both.
I want to tell you I feel for all you are going through. I just had aortic valve replacement surgery with aorta graft 11 weeks ago and 10 weeks ago had a pacemaker put in for heart block. BTW I'm 28 years old and up until 6 years ago never noticed any heart issues even though I knew I had a murmur. My story before surgery is similar to yours, one day I was running really hard on a treadmill and fainted, 2 years later I was on the table getting cut open.
Currently I'm dealing with annoying rhythm issues. They don't seem to be life threatening but if I had to live with them the rest of my life it wouldn't be nice thing. You and I are still early on enough in recovery that these rhythm issues may just fix themselves within 1 to 2 years after the surgery.
Another thing that is frustrating is that since I had a graft and mechanical valve put in I can really hear and feel every heart beat. half the day my heart is pretty calm, the other half of the day its thumping a clicking loud and hard, I truly hope this calms down with time, I have hope because half the day its barley noticeable, I can't see why once my heart remodels itself the "thumping" wouldn't chill out, I guess time will tell.
I still feel fatigued from time to time but I did go back to work at 9 weeks post op full time. I've also been doing cardiac rehab for a month now, I'm still only walking and taking an easy pace on the bike in these sessions, I still have weight lifting restrictions for about 2 more weeks.
My confidence is just not there yet with my heart. I feel fragile as if I try to run or get in a intense situation emotionally my heart rhythm will go nuts, it really hasn't but it just feels like it might. My cardiologist assures me that with time all these issues will resolve and this whole thing will be a minor inconvenience in my life. I want to believe him. At this point with the ongoing issues I can't see myself running marathons and feeling like my old self ever again.
I'm sharing all this with you to say this, even though things seem extremely frustrating and depressing at the moment we are still early in recovery. Everyone recovers at their own pace and most say that its take at least a year to really start feeling good again. There is hope in both of our situations, their is light at the end of the tunnel even though it seems like we will never be the same again we can be better than before with some patience and determination!
I have faith in Christ Jesus and I know that my purpose in life isn't to be scared and crippled but to be a blessing to people in general. We will overcome, and for now we celebrate small victories. May the Lord Bless and Keep You.
I am too new to this area to offer any meaningful advice. As a fellow human being, I just want to say that I feel awful about what you have been through and sincerely hope you can find a set of doctors who can help you regain your heath.