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Rosemary's Posts
Diagnosis: Aortic Regurgitation, Aortic Stenosis, Bicuspid Aortic Valve, Aortic Aneurysm
Member Since: July 27, 2018
Member Since: July 27, 2018
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Rosemary Bobicz Creutz posted an update
7 years ago (November 17, 2018)
My husband came across this study currently being performed by the National Institute of Health (NIH). It may be of interest to individuals with BAV with stenosis. https://www.ncbi.nlm.nih.gov/pubmed/29561783
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Debbie Kelly and Karen Warren reacted to this
Rosemary Bobicz Creutz posted an update
7 years ago (October 17, 2018)
I have a question for anyone who has or had a bicuspid aortic valve.
I had a discussion with a resident about valve replacement choice. I will have an open heart surgery to repair an ascending aortic aneurysm and at that time my BAV will be replaced. When my I... Read more.
7 years ago (October 17, 2018)
Hi Rosemary - I cannot speak for what the resident may be talking about, but I can tell you what my Cardiologist has suggested for me. I have a BAV that is regurgitant with a 5.1 Ascending Aortic Aneurysm. My cardiologist wants me to have a Bioprosthetic valve replacement and... Read more.
7 years ago (October 17, 2018)
I think you're going to get a very different answer when you sit down to talk with your cardiologist and surgeon. A valve in valve can't be done on a BAV which is why it gets replaced. If a tissue valve is the replacement valve, then a valve in valve... Read more.
7 years ago (October 17, 2018)
Dan, can it be done if the tissue valve that wears out is calcified?
Anonymous
7 years ago (October 17, 2018)
Things are changing very fast in TAVR. They are actually doing studies on replacing BAV with TAVR. My native valve was heavily calcified and had a low raphe when I had my TAVR a year ago. I have been assured when and if I need a new valve it can... Read more.
7 years ago (October 18, 2018)
I had two surgeons tell me that bioprosthetic valves could be used as the landing point for TAVR
7 years ago (October 18, 2018)
I am counting on a TAVR when my tissue valve wears out. I also had a BAV , root, and ascending aneurysm replaced last year ....As my cardiologist says, I will be riding the "wave of technology"...
7 years ago (October 18, 2018)
Debbie, The tissue valve I'm getting is by Edwards.https://www.edwards.com/devices/heart-valves/aortic is treated to prevent calcification. I understand it that a replacement valve that is calcified does compromise a valve in valve procedure.
7 years ago (October 18, 2018)
My surgeon specifically gave me a tissue valve to replace my BAV, so that valve in valve could've done in later years
7 years ago (October 18, 2018)
I do have mild stenosis of my BAV so I don't know if that influences things with the first surgery. But thank you everyone for your input! I great appreciate hearing from each of you!
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Turning To Stone | Life Extension
https://www.lifeextension.com/Magazine/2015/7/Turning-To-Stone/Page-01
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