Nolan's Posts

Diagnosis: Bicuspid Aortic Valve, Aortic Aneurysm

Member Since: August 22, 2019

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Nolan Clark posted an update
7 years ago (August 22, 2019)
Looking to connect with anyone that is active and dealt with bicuspid aortic valve or aortic aneurysm monitoring. Young (28) and newly diagnosed, not sure how many years until I reach surgery etc.
Anonymous, heart valve patient
Anonymous
7 years ago (August 22, 2019)
Hey Nolan, I have 4.2 cm aortic aneurysm and mod/severe aortic regurg. Still waiting.
7 years ago (August 22, 2019)
Im about the same but valve is functioning perfectly fine. Any tips for a newly diagnosed (nervous) person?
7 years ago (August 22, 2019)
Hi Nolan. You have come to the right place. I've known about my BAV and Aneurysm for almost 31 years. Found out I had BAV at 5 and just had surgery at 36. Every year I thought this was going to be the year when I get surgery. I was... Read more.
7 years ago (August 22, 2019)
Hi Nolan. I have a stable 4.7cm ascending aortic aneurysm(3years now) and a functional bicuspid aortic valve. I have know for 3 years and think about it everyday. I get a CT scan every year. This site has helped me tremendously. Good luck on your journey.
Anonymous, heart valve patient
Anonymous
7 years ago (August 22, 2019)
Hi Nolan, for me, I will likely have to get OHS for my valve sooner than for aneurysm. As long as you have serial echos or CT, you should be fine. Cut off is 5cm for those with bicuspid so I would not worry if I were you.
7 years ago (August 23, 2019)
I was diagnosed with the same issues 7 years ago. It rocked my world, dominating my thoughts for 6 months or so. Then I saw a cardiologist in Boston who co-authored the main guidance on when to do surgery and related topics. He really put my mind at ease, suggesting... Read more.
7 years ago (August 23, 2019)
Hey Nolan I was diagnosed this past February with a monocuspid valve and an aneurysm of 5.3. I went and had surgery in May of this year. Now months later I am back to doing everything i used to do. Waiting is the worst part of this all
7 years ago (August 23, 2019)
Thank you all! It helps to know so many other people experience the same. I immediately thought "heart issue" and thought my hobbies all had to come to an end, but I guess it all comes down to trust and knowledge. If anyone knows of great people in the Orange... Read more.
7 years ago (August 24, 2019)
I was 21 when I discovered the same issues and just got the valve replaced and aneurysm repaired at 51 when the cardiologist said it was time. I was active and never had issues or any restrictions most of my life. Keep visiting your cardiologist even it's just to check... Read more.

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